Massive screwup

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Der Biermeister

Hello - its been awhile (Dec) since I last visited. Want to bring you all up to date.

The subject I am about to discuss is not for the squeamish .. and don't read it if you are eating your dinner.

This is my horror tale - like nothing I've ever gone through.

A little background first - I have Aortic Insufficiency that we've known since last summer. It put me down for about 3 months and then finally they got me stable with the right balance of diuretics and potassium to keep fluid from building up behind my lungs and suffocating me. I've been doing great since early Oct -- walking 4 miles a day. Also, because of two stents put in about 14 months ago, I've been on Plavix (a blood thinner) since then.

Now fast forward to a week ago Wed. I went in for a "routine" colonoscopy. Even though I had listed Plavix on my form 3 weeks before the surgery, no one contacted me to tell me to stop taking it. I was too stupid to put two and two together - so for Gods sake, every one of you take heed from my mistake AND LEARN.

3 polyps removed -- I guess they are like chicken livers - :D

Anyway, at 6 pm, I started hemorrhaging from the place where the sun don't shine. Pure blood - thick dark blood. It was awful. I had about 3 bouts of this blood letting and we headed off to the emergency room. (This btw is a supposedly excellent hospital). They got me rushed through the triaging pronto and into a room. I must have trumped 150 people. This was 7:30 at night. Over the next few hours, I had a couple of more bouts of the bleeding - filling the toilet bowl. I had one of the nurses take a look. She used some kind of swab and put samples on a paper disc. They had taken a blood test and my hemoglobin still looked real good at 13.5 (most men are 14 and women are 12). So -- against my wishes, they discharged me and told me to contact my GI doctor the next morning. Which I did. He called back and we discussed it, and even though I told him the severity of the blood loss, he must not have believed me. Told me to come see him the next day. I bled most of Thursday and it finally stopped at 10 PM. Saw him on Friday at 4 PM. He took another blood test and my hemoglobin had fallen to 8.9. By this time, I had lost approximately 5 pints of blood (approx one pint per unit hemoglobin). A big guy like me has about 12 pints, so I am approaching half of my blood being lost. I was having angina with any kind of walking, but felt fine at rest. He conferred with my cardiologist and they decided -- since the bleeding had stopped that I should go home and stay off my feet and rest for the whole weekend and my blood count should begin to rise. If I started bleeding again or have any kind of cardiac event, I was to get my butt back into the emergency room.

That night I went to sleep feeling ok and my resting heart rate was good (52) and blood oxygen was good at 97%. I woke at 1:30 AM and my heart was in tachycardia - scared the beejezzus out of my. Called the Rescue Squad and they got me back into the Emergency room. I told them to radio ahead and be ready to get a blood transfusion. You can imagine how that went over with the staff.

They immediately did an EKG (looked ok) and blood test looking for a raise in enzymes (a sign of a heart attack). Enzymes came back just barely above normal, so this lady doctor comes in and tells me I am going to be discharged. I am almost crying telling her the chest pain I am in and she can't do that. She tries to tell me that I am simply having an anxiety attack and to calm down, I am going to be ok. This went back and forth for a couple of hours. They did another enzyme test and --- walla -- a heart attack. So, after about 9 hours in the ER, they finally admit me to the Cardiac Care Unit where I began getting my blood transfusion and every test in the world thrown at me -- and more "sticks" than I ever thought possible. At one point, I had 4 IVs going, and after a few days, they ran out of good veins.
Immediately, I was put on a Heparin drip (a blood thinner). They knew it was a roll of the dice as it could start the hemorrhaging again. The plan was to do a heart cath on Monday morning. And after two days of heparin, sure enough -- another day of severe blood loss at 4 AM and the heart cath was postponed. More transfusions. Heparin stopped and I finally stopped the bleeding. So, on Monday night, I had to go through another prep for another colonoscopy on Tuesday morning, where they went in and cauterized two of the three polyp areas.

This finally got things turned around and I began making progress. A heart cath was done on Thursday morning -- with mixed results. No blockages found and no apparent damage (or very mild) from the heart attack. But it did show that my cardiac function is quite a bit down from last fall, so in discussions with the cardiologist and the surgeon - I am having open heart surgery on Wed, April 12 to replace my Aortic valve and while they are in there, they will automatically do a triple bypass. Going to be a cow valve - and like you can do at some great steak houses, I'm wondering if I can pick out my own cow. I think it should be a Holstein - what do you all think?

Back to being serious. As soon as I am up to it, I am going to sit down with the top dog that runs that hospital, and let them know they almost killed me -- especially on the first trip to the ER. Had they realized what I tried to tell them about the extent of my blood loss, I am confident I could have gotten transfusions started that night and averted a heart attack. I am pissed -- REALLY PISSED. They are going sit there, and shut up, and listen to me. Hopefully, something like this won't happen again to someone else.

Sorry to bare my sole (or butt as the case may be), -- no pun intended --- ah maybe it is intended -- but I want to impress upon all of you to:

1. DO get your colonoscopies -- it virtually guarrantees you won't get colon cancer, once you are on the "3 year plan"

2. But for God's sake, if you are on any kind of blood thinners (Plavix, aspirin therapy, etc.), contact your doctor for instructions on when to STOP it (usually a minimum of ONE WEEK before your colonoscopy, unless you have other considerations).

3. And I think another lesson is to be more insistent when you "know" what is happening to your body.

Now -- anybody got a hamburger??

MOO
 
I absolutely cannot believe that they actually sent you home from the ER with active "frank" voluminous blood coming out of you. And you even demonstrated this to them while in the ER. How stupid and how dangerous for you! They should have kept you in the hospital and monitored your hemaglobin and hematocrit for a day or so, and then when it showed that you were still bleeding, they should have gone back in there and cauterized whatever was bleeding. And you should have been transfused as soon as the tests showed you were in need of blood. Anemia can stress your heart, and your heart attack shows that.

Joe recently has had problems with upper GI bleeding. He was passing black tarry stools (actually diarrhea). No one even considered sending him home. I brought him in through the ER. He stayed until they knew what the devil was happening with his GI tract. And everyone from the beginning was very concerned. He got transfusions asap and they made sure his blood volume stayed stable with IVs until they could get the blood ordered. They also immediately put him on oxygen, even though his O2 was OK by pulse-ox. That too was to protect his heart.

I think you should report your situation to your State licensing board and any accrediting agency responsible for that hospital and ER (which might be run separately from the hospital, you never know in today's medical business)


Everyone has to be a strong advocate for their medical care. It is not unreasonable to state in no uncertain terms that you feel they are doing something wrong by discharging you, and it is also not unreasonable to start asking for the responsible persons' names and the spelling and their title. And having someone there to take notes is always a very good idea.
 
I'm sorry to hear you've got an early date for replacement, but you'll have it out of the way. (I don't know if that's any consolation!)

My father-in-law had almost exactly the same experience following a routine colonoscopy. He had been on coumadin for reasons other than having a mechanical valve, and it was stopped prior to the procedure and restarted the coumadin the following day. When he started passing blood, he was hospitalized , but lost 8 pints of blood before they were able to get the bleeding stopped (had to cauterize a place that had nicked). He is in marginal health anyway, so we were afraid he might not make it. Luckily, he pulled through, but he's no longer on coumadin.
 
Wow, Biermeister, you are lucky to be alive. Thanks for posting this--in my wildest dreams I would never imagine such widespread incompetence.

I agree. Holstein.
 
It is scary that something like this could happen but I am afraid it won't be the last time. Thanks for the reminder that we have to be the advocate for our health care. That is so hard when you are in such bad shape.

I do hope that you are able to effect a change in their future dealings with patients. Doctors are not perfect but one hopes that they are quick learners and do not repeat this kind of gross error again.

I am so glad you are alive and hope that your surgery goes much better than that fiasco. Prayers are going up for you.
 
So sorry to hear you've have such an ordeal. Wow!

Your story got me thinking a bit - when they remove polyps during a colonoscopy - why don't they cauterize the area? I did a brief web search and found that cauterization is used to stop bleeding polyps and diverticula, so why can't it be done on someone who must take an anticoagulant, at the time the polyps are being removed? Or maybe it is, and I just haven't heard about it? I had a mole removed from my face, with a scalpel, and the doctor just cauterized the area immediately. Now the colon gets more "action" than the face, so maybe there's still a danger from the cauterized area .

Anyone know about this?
 
Give them Hell

Give them Hell

Go visit the ACT forum and read the many posts by warrenr to see the hell that his father went through as the result of what bad doctors do. I would make case loud and clear to the jerks who took "care" of you. Smooth sailing to you
on your surgery, you have certainly paid your dues! Good luck my friend!:)
 
Dear Lord, such an ordeal! Sounds like you were a victim of the avoid-an-overnight-admission-at-all-costs syndrome. Wonder if insurance-company pressure is partly to blame. At least your sense of humor is intact. Love the thought about picking out your own Holstein as in a fine steakhouse. I have a porker's valve so I cannot view barbecue in the same light anymore. :p

Anyway, congrats on surviving all that, and I hope the OHS will be as routine as possible.
 
2. But for God's sake, if you are on any kind of blood thinners (Plavix, aspirin therapy, etc.), STOP it a minimum of ONE WEEK before your colonoscopy.

Yes please do change this!!!

We are not physicians and this is certainly not the typical thing to do for a mechanical valve reciepient on Coumadin. This could very well cause someone to develop and throw a clot becoming a vegetable for life. There are protocols to be followed and apparently, someone dropped the ball big time in your case.

The guidelines can be found at the link below:
High Risk---Discontinue warfarin 3-5 days before procedure. Consider herapin while procedure.
http://www.asge.org/nspages/practice/patientcare/sop/preparation/2002_antiCoag.pdf
 
RCB and Ross - of course you are right. I was too focused on my particular case, and not thinking about stroke victims etc. I have edited the original post.
DB
 
Medium rare please

Medium rare please

Dear Der,
All I can say is unbeluckingfeavable! Thank You for your story and I wish you the very best with your up and coming surgery. God Bless:)
 
Der Biermeister said:
RCB and Ross - of course you are right. I was too focused on my particular case, and not thinking about stroke victims etc. I have edited the original post.
DB
Thank you! We don't want to come off as sounding critical of your post, but we also don't want anyone to take matters into their own hands and do something that may cause them even more harm. Hope you understand. :)
 
Cauterization

Cauterization

Karlynn-

In regarding the snaring of polyps--when we would remove a polyp from the large intestine, we would most often use a disposable "snare" that was fed into a port on the colonoscope. This device would be hooked up to electocautery unit, and the pt would also have a grounding pad applied, usually on the thigh. We would grap the polyp into the loop, and I would close the snare snug around the tumor, and then the surgeon would step on a foot pedal and fry the polyp from its stump. Rarely did this cause any bleeding, but if a pt didn't stop their ASA, even a baby ASA can make a slight ooze.

I have talked at length to both surgeons about what would be the approach if Nathan ever needs an upper or lower scoping. They both absolutely refuse to scope him while still on warfarin. I even begged, but they argued that there is always a risk of perforation (not the risk of polyps), and while I have only seen one perf since I have assisted starting in 1998, they are a big time problem and they will not take that risk with Nathan....no matter how much I trust them. These guys scope on average 30 colonscopies per week.
 
sfconstrct

sfconstrct

think i would lood for another hospital and doc. nothing worse than not having complete confidence in you surgeon and facility. good luck. steve in so. ca. avr 9 days ago, went very smooth no complications and very little pain. rember screw me once shame on you screw me twice shame on me. peace!
 
Sfconstrct

My problem is not with my heart surgeon or my cardiologist, or even the CCU for that matter. It was the ER and the GI doc.

The guy who is going to do the surgery is highly rated. His name is Wolfgang. How can you go wrong with a name like that?:D
 
Nancy said:
I absolutely cannot believe that they actually sent you home from the ER with active "frank" voluminous blood coming out of you. And you even demonstrated this to them while in the ER. How stupid and how dangerous for you! They should have kept you in the hospital and monitored your hemaglobin and hematocrit for a day or so, and then when it showed that you were still bleeding, they should have gone back in there and cauterized whatever was bleeding. And you should have been transfused as soon as the tests showed you were in need of blood. Anemia can stress your heart, and your heart attack shows that.

Nancy - exactly right. And I am afraid I fell into the category of believing that I wasn't as bad off as I thought I was when they released me. A blind spot in me, and now I am paying the price. I should have insisted to be admitted.

As I sit here at home trying to recoup some strength, it is becoming quite clear that, heart wise, I won't get back to my pre-colonoscopy condition. I have no way of knowing exactly what my hemoglobin is right now - but I suspect it is closing in on 12 (10.9 two days ago - Friday -- when I was released). My resting pulse is about 6 beats higher (58 vs. what was 52). My walking pulse is up around 90 and before it was around 80. I get angina now with much less exertion. My doc has prescribed Isosorbide Mon 60 mg
ERTAB once per day. Just read up on it and it is slow release over 6 hours to relieve symptoms up to 8-10 hours. I am thinking I would do better with a twice a day dose -- once in the morning and once at night.

Anyway, decisions decisions. I would like to try to get into the office as earlier as tomorrow, since I've been away for almost two weeks now. I know most would say - STAY HOME, TAKE IT EASY. Well, the good news is that now that I am retired and working back there only as a consultant, I really have almost no stress. Quite enjoyable actually. Walking to and from the parking garage (several hundred yards), etc. is probably the most taxing thing I do there. Plus, beginning April 12 (surgery day), I will be out for probably 4 weeks? (I need input on this).

Now that I am closing in on AVR - I am going to be throwing dozens of questions out here to the brain trust.
Thanks Nancy for your continued excellent input and thanks to all who will be helping me in the weeks to come.
DB
 
Oh My Golly Gosh...what an ordeal you went thru there DB....

We dont all need to have these colonoscopies done before our AVR do we? anyone know?...

I am sending out healing hugs for you , what a shock to your system that would have been...

Ahh...April is the month AVR's are on special I think :D ...there are quite a few of us lined up for April...me included...

All the very best of healing and everything leading up to your big day in the OR.

God Bless

healing hugs

ton
 
Oh wow!!

Oh wow!!

Just so glad to hear that you are okay now and able to post and tell us of your experience. However, I'm sorry you had to go through it. Good for you for taking charge of your health care.

Christina L
 
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