2x AVR
2x AVR
I had a AVR in March 2008 after Bacterial Endocarditis. The valve (St Jude) failed(the surrounding tissue, despite the 1 million units/hour of Amoxicilan(sp).
The 2nd surgery was successful, but the valve size went from a 28MM to a 25MM.
I would have chosen a homograft and risked a redo, as I am a serious and intense athlete and the deconditioning has been difficult and psychologically
painful.
I went with another mechanical because the docs advised that I would be dead in 7-10 days without the AVR and locating a homograft may take longer.
I am on blood thinners/ thyroid meds and epilepsy drugs and depression meds (the bacterial infection caused a brain bleed in my right frontal lobe)
I am not in fear of a 3rd redo, albeit fraught with higher risk then the 1st redo.
I will attempt to gain back as much of my prior cardiac fitness as before this condition, but it is painfully slow.My strength training is back to pre-surgery fitness, albeit discouraged by the cardiologists. My research indicates they err to the conservative position. My experience is that they believe that most patients don't choose to research their own health sufficiently, so they place everyone in the same band of nutrition and rehabilitation. If you listen to the doctors without being your own advocate, they may kill you or in the least, make you deconditioned, overweight, depressed and inflicted with a host of other disease processes as a result of a passive lifestyle and heavy drug regimen.
None of the Docs that I was under the care of understand the morphology of an athletes heart, describing the enlarged left ventricle as Cardiomyopathy, when it is really Physiologic Left Ventricular Hypertrophy. The difference is that the heart is adapted to work at high intensities and to pump more blood than an untrained person. So, they treat you as if you have a disease state.
Initially, they had me on lopressor to control my blood pressure. Being that my normal bp was 100/70, with the drug, it sometimes dropped to 80/45, which caused dizziness and lightheadedness. Finally one Doctor took me off the drug, after recommending that for a few weeks, skip the drug when bp was below 90/60.
The Docs like to medicate and many of them are offended when they are challenged with research a patient has performed.
I may sound cynical, but after 120 days in hospital and rehabilitation, I consider myself experienced and versed in caregivers styles and knowledge. I will say, that most of my treatment from the nurses was fantastic and my "hat is off" to them!
If anyone wants to hear more of my rant, please email or PM me. (Email address removed for user safety)