legs "asleep"

[wanagto]

After having stroke like symptoms I have had a pins and needles feeling in my feet and calfs. Docs could not find anything. Lived with this for about a year the tingling spread all of a sudden to my hands. Went to mayo and 2 weeks of testing and waiting still nothing. I wondered if anyone out there could help.

I have had 3 AVR's (St. Jude) and in the last one the did the desending aorta, conduit, and tricuspid. 14 hours of surgery later I am doing pretty good living a somewhatly normal life of a 25 year old.

 

[HFK]

Hi ,
Welcome to this sight. Sounds like you have been thru alot.Why did you need 3 replacements? If all your testing is negative, I would try vitamin b complex with a good multi vitamin, if you can take this with coumadin I don't know you will have to talk with Dr. Mayo is suppose to be one of the best diagnostic centers in the country. Have they checked for MS or other neurological possibilities? I can't imagine they wouldn't. Mayo's motto is "they assume you have some disease until proven otherwise". Not to worry ,but that's why they are so detailed. I know many people who have gone there and turned up with clean bill of health,but still have odd symptoms. HFK

 

[hensylee]

peripheral neuropathy? Restless legs? Tests should tell you something. Do you have this when at rest, during walking - when? Always?

25? You are so young for all of this. Bless you.

Welcome to VR. This is the place to be when you have questions, and I am sure there will be many for you.

 

[JimL]

Welcome, fellow Michigander! I can't help with your problem at all, since the first thing that comes to my mind is that it must have to do with the onset of winter, snow, and such. But there are many here who have much better ideas.

 

[wanagto]

Thank you all, they have done all the nero exams and they all came back neg. No ms, no tumors, no growths!!! the onset of this was in the spring and is not effected by the weather. The docs at mayo never gave me a diag. The docs in town are calling it a neropathy. I will check with a pharmisist today about the conflict of vitamin B conflict with my little brother(coumidin). Again thank you all.

 

[HFK]

I am glad all your tests were negative, at least you can have some comfort that you have been REALLY checked out and it's all good news. Talk to your DR and pharmacist,about B complex and Lecithin they are both good for neuritis and or neuropathy. More than likely coumadin levels would be affected,but what I gather is if you stay consistent in what your taking than your level can be maintained more easily.
HFK

 

[maxximom]

It sure sounds like neuropathy..are you diabetic? Have they checked your back..sometimes a nerve can be impinged upon by a disk and cause pain and tingeling in the legs. Is this both legs?Have they tried giving you Neurontin that is often used for Neuropathy. I am familar with Neuropathy as I have it in both feet..it does take time for the Neurontin to kick in..if you should take it.

 

[wanagto]

I have been tested for and I am not diabetic. I was on neurotin for a couple of moths and it had no effect. thank you all for the info

 

[DuchessBear]

Are you taking any of the statin drugs for cholesterol? If so, tell your doctor right away. Peripheral neuropathy is a known side effect of these drugs. It's rare, but it does happen. I know because it's happened to me.

I was taking only 20mg of Zocor, but after several months I developed significant muscle weakness and experienced most of the neuropathy symptoms listed below. Sometimes the burning in my feet was so bad it kept me up at night and walking was painful. About 2 weeks after I stopped taking Zocor, my muscle strength started coming back, and after about 5 weeks the neuropathy started to subside. After 3 months, I'm still feeling the neuropathy effects and it will probably be many months before I can declare victory.

By the way, all my blood tests were normal, so don't let your doc dismiss the possibility of statin sensitivity just because your blood looks good.

Here are the symptoms of peripheral neuropathy from a WebMD page:

· A tingling sensation in the toes or in the balls of the feet that eventually spreads up the legs toward the trunk. Less commonly, the sensation may begin in the hands and spread up the arms.

· Numbness in the hands and feet that spreads up the arms and legs.

· Weakness or heaviness in muscles throughout the body. This may be accompanied by cramping, especially in the feet, legs, and hands.

· Sensitive skin that may be painful to the touch. Prickling, burning, tingling, or sharp stabbing sensations may occur spontaneously and usually worsen at night.

· A foot-drop walking gait and/or problems with balance or coordination

 

[wanagto]

I am only on coumidin and asprin, for meds. The def from webmd is exactly the syptoms that I have. Thank you again everyone this has been very helpful.

 

[hensylee]

my brother and my nurse cousin have had peripheral neuropathy for years. Nurse cusin was given one of the old timey antidepressants (amitryptiline, I think) and it relieves hers. Brother's dr said some of the newer antidepressants are better, but he still has lots of problems with his. ( he has Parkinson's, too). Has your dr suggested any medicine for this. Nurse cousin takes one pill at night and if really, really bothered, she can take another one and she is helped a great deal. She's been on this for years because I guess there isn't a cure for it. a nerve problem.