Kinda Nervous.....

[Harrybaby666]

Hi all you hilarious people out there in VR.com land...LOL

Just thought I would post and say that I am a little nervous about having another echo done in a couple of weeks. I was in the hospital in August when they did an echo and an echo stress test and it seems as if all my valves besides my mitral valve have progressed from trace to mild...I know that they say that this is nothing to worry about, but I am wondering if this means that they will progress even further and become moderate to severe....I am surmising that this might be so considering the fact that I have been told that my heart is wearing out from all of the years of having chronic lung disease (asthma, chronic Bronchitis, upper respiratory infections, sleep apnea, viral infections and now PH). I almost wish it would so that I can get the valves fixed and hopefully, start to feel better somewhat. I am tired of all the fatigue, and all the other lovely symptoms that go along with this. All I seem to want to do anymore is Sleep Sleep and Did I mention Sleep? I guess I am just tired period...I am sorry for venting...Harrybaby666

 

[Ross]

Unfortunately, I feel the same way even more so after being fixed. Guess I'm trying to say it may or may not help.

 

[Harrybaby666]

Well At Least We Aren't Alone..

Well At Least We Aren't Alone..

Unfortunately, I feel the same way even more so after being fixed. Guess I'm trying to say it may or may not help.

At least Ross, we both pretty much feel the same way....I guess part of my feeling nervous is I keep asking myself, how could this happen to someone my age (38) who is supposed to be healthy and full of vim and vigor.....I don't mean for this to be a "pity party", I am just looking at it from a logical standpoint, that most people my age are still able to do things that I can no longer do...and it really is depressing. I guess I will just have to hope for the best as we all do....Harrybaby666

 

[Ross]

I assure you my friend, your not that only one that feels that way. I was 33 when it all started for me. I asked myself those same questions for years until I got bored with it. This computer has been a life saver for me. If I can't do things for myself, I'll do them for others.

 

[Harrybaby666]

Thank You Ross...

Thank You Ross...

Well, I guess this means that I will have to get back to my humourous side and really let them rip...LOL If anything...I will die laughing...LOL

I have attatched a picture that shows how obsessed I get with my computer...I dunno what I would do with out it. LOL Harrybaby666

 

[McCln]

Harry

Harry

I was in a different boat. But I feel better after the surgery. But I had a blow 15 months after surgery, I developed type 2 diabetes. Got that monitored. Now feeling more better. No two people heal the same way from surgery. You might get lucky and not have surgery yet. Just wait till you get the echo done and fine out what is happening. Just try to hang in there. You will be fine. Take care.

 

[Debrinha GT]

You can chat with me!LOL!!

You can chat with me!LOL!!

Hello Harry, I'm sorry to see you feeling like this, but look, you can chat with me!LOL!! I really wish I had the power to make you feel better at this moment. Waiting to get an echo done is always nerve wracking, especially when we kind of know what to expect. However, I myself got anxious the other day when I had to go and see my surgeon, remember? Well, I didn't hear him say that I wouldn't need the operation, but on the other hand, it won't happen just yet which's good enough for me. Anyway, I can relate with you in your frustration, I mean, I've often wondered why it had to be me, and all that stuff. I'm afraid there's no answer to that question. I'm happy though that you won't need to go through all the bother of moving house, and hope your neighbours are long gone. How's your Home Page coming up, by the way? I'll get Robert to take a couple of pics of my scars to post on the scar stories thread. You only need to go through three OHSs to catch up with me!LOL!! Well, not really, by then I should've had the fourth!
Débora

 

[MichyB]

Good luck Harry ... try not to stress (easier said). There's probably no medical proof of this, but I really think stress can affect test results.

 

[geebee]

Years ago, I wrote an article for a cardio I had in NJ when he did a seminar presenting patient's views of illness. The article was titled " Open heart surgery, the physical is the easy part". I loved that article but I didn't get custody of it during my divorce so I no longer have it (just kidding, it got lost during the divorce hassle).
Anyway, I still feel that way. The physical can be treated with pain pills and the like. The mental stuff is just a bit harder to get your arms around.
I don't have magic words but I find just being here joy enough. Even on the days I am the worst physically (which seem more and more as I get older), I try to remember the alternative. There may be a day, long down the road, where the alternative is preferable but I cannot even conceive it right now.
Harry, you still have all of us out here who know what you're going through. Those of us who have had our surgery (surgeries) may be better off than you since you are still waiting, but we have been there.
Try to keep smiling,
Gina

 

[Abbanabba]

I am tired of all the fatigue....

Ah yes.... it reminds me of a song by Aussie band the "Hoodoo Gurus" which goes "..I'm so tired of waking up tired.." (unfortunately because I'm still waiting for my stuff to come out of storage I can't tell you the name of the song, but it sort of amuses me every time I hear it).

Anyhoo.... I'll be keeping my fingers crossed that the echo comes back OK. It may even be that the difference between "trace" and "mild" is the tech on the day and so maybe things aren't really "progressing" at all (which is what I'll be hoping for!). My valves have (apparently) been going from "mild" to "moderate-severe" back to "mild" again for the last couple of years, so I really do think it depends on who is doing the echo and who is INTERPRETING the echo. It could be what one person considers "trace" another person considers "mild"....

Meanwhile, try not to stress yourself about it until you know what it is you're looking at.

Wishing you the best
Anna : )

 

[gijanet]

I sure wish I had a magic wand..........

I sure wish I had a magic wand..........

but, alas! I don't or I would be waving it frantically for you and Katie both..........so, I guess you will just have to settle for cyberhugs and prayers. Katie rode a mild valve leak for three years before it went south and was re-classified as severe, but her little heart is about as buggared up as they come. So here's hoping that you get at least another three years at your mild classification, too, unless, of course, they can get in there to do something to get you to feeling better.

Please keep us posted as you know we worry about you.