Thank you all so much. This is Kevin's wife, Janene. I wanted to look around the site a little while for ...I don't know what for really! All your kind posts brought tears to my eyes. I'm trying so hard to keep it together. Focusing on all the details that I need to take care of before Wednesday keeps me sane. When I'm in motion, I don't think too much. I'm trying to reassure the kids as much as possible. Ryan's 29 months old today, so he's not aware of what's coming up, but Alexandra, at 5, is very aware. We're trying to prepare her gently, not too much, but she senses the tension and stress, I suppose. Yesterday, she said, "Mommy, when is the bad thing happening?" (We have NEVER used this phrase). I asked her what she meant, and she said, "When is Daddy getting his 'operator'?
My need to remain in a little denial even kept me away from this site for a while. Kevin's been on more and more, and there were times I just couldn't.
In my heart (!), I know he's in great hands at Hopkins. I really like Dr. Cameron. It's so hard turning over someone you love and saying, "Okay, cut him open, stop his heart." It's too much sometimes. I'm so glad he found this site. We've learned so much from all of you and I thank you for that. And thank you for giving him a support and understanding that I can't. I haven't been there. I'll keep you informed as soon as I can.
Janene
