James is having ross prcedure March 21

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djlfranklin

Hello everyone, We Had our appoinment yesturday with the surgeon at Loma Linda . James had commissurotomy and valvuloplasty ( valve repair on his aortic valve) last July and it didn't hold up. Now he has Severe aortic regurgitation. We knew he was now going to need replacement soon, but the surgeon wants to get it done as soon as possible. So he is scheduled for the first open day on the surgeons calendar which is the 21 of march just two weeks away. we thought long and had on as what to do and disscused the options on what would be best. James is 16 and very active he loves to ride dirtbikes so we have decided to go with ross procedure as to avoid the blood thinning drugs. We jsut hope that it will last a very long time we know nothing is 100%. His regular Cardio recommened James home school until after sugery and told him to take it easy. It's going to be a long two weeks James has only been out of school for a week and he is driving us and himself crazy He just can not relax. I guess I will have to go get him some new video games to keep him busy when he is not doing home work. He wants to go out for one last ride before surgery and I won't let him I can just see him go out there and doing crazy jumps and getting hurt and delaying his surgery. So I am not his favorite person right now he says I am over protective. I can live with that.
Sharon Mom to James
 
Sometimes being the best mother you can be just isn't easy. Hang in there; you're doing well.

I want to wish you and James all the best.
 
It's hard for a 16 year old to be restricted under normal circumstances....I have one and I know (a daughter.....much worse than my son was at this age!). However, you are doing the right thing and deep down I suspect he knows it. I'm sure it doesn't make it easier though. Hang in there. The two weeks will fly by. Best wishes to both of you.
 
Sharon,
I put James on the calendar for the 21st.
Best wishes to him and to the rest of the family.:)
 
Wishing James well...

Wishing James well...

I just had the Ross procedure done 3 weeks ago today. I'm fairly young as well, but not as young as James (I'm 33). I'm very pleased with my decision to go with the Ross. I didn't want to be on Coumadin at such a young age, so I opted for the Ross. I'm hoping for many 'normal' years out of those two new valves and excited about the future. I know James is feeling anxiety right now, but honestly, the surgery and recovery isn't that bad (in my opinion). The hardest part is laying around and doing nothing for a while...and that isn't so bad sometimes. Let us know how he does and if you have any questions regarding the Ross, please feel free to pm me.

Take care and God Bless!
 
Sharon, its called tough love and I'm sure your son does know - deep down, it is for his best interest.

Thoughts and prayers are with you both.
Good Luck and take care
 
Best wishes to you and James. I will pray for a successful Ross and a complete and uneventful recovery so James can be back to all his favorite activities soon.
 
Wishing you all the very best. Hope James as a smooth surgery and a speedy recovery, take care.
 
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