Inr levels

Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
C

Curtsmum

just trying to gather some info together.When my son goes on warfarin, say he has a meal with broclli, will this one meal affect inr levels, can he just have it once, or does it meen that he then has to constantly eat it. I just dont get it :confused: :confused:. I have a feeling i am going to be totaly useless and constantly needing help with it.
 
I think you get it just fine when you have trouble understanding coumadin. If someone understands everything about coumadin, they probably don't know what they're talking about.
Experience with coumadin and INR levels will be a wonderful teacher -- but my INR goes up and down without any explanation that I can think of.
I choose not to eat broccoli, but then I'm not that fond of it; many others choose to eat whatever they want and dose their diet. I do eat asparagus when it's in season, because I love that, and I might intentionally take an extra milligram or so of coumadin to cover it.
Relax, even though Its Never Right, it's not that big a deal.
 
Once in a while may not do much, if anything, to the INR. However, if your always eating lots of greens as such, be sure to be consistent and eat about the same amount each day. Do not deny him vegetables. Dose the diet he eats, don't diet the dose.
 
Paula, don't worry - it really isnt all that once he's on it and you become accustomed to it. Chloe has always eaten vegetables - I insist on it and she loves them. As Ross says, its consistency thats the key! Chloe eats her veg regularly and is fine. Her favourite food though is coleslaw and I find if she 'overdoses' on that on rare occasions it can throw her INR slightly but not a lot. Don't worry about asking for advice either - its what we're all here for. I can give you my phone number too if you need a chat any time.
Love Emma
xxx
 
Thanks Emma, i find it a lot easier to write about it, than to actualy talk about it at the moment. All sorts of things keep poping into my head, so its easy to jot them down, i know your always on here anyway.Im starting to write a lot of things down, so i will have somthing to look back on when i need to. Thanks again and for all replys.
 
Another mom to a Coumadin baby...

Another mom to a Coumadin baby...

Hi Paula,

I too can help answer any questions...

My son had his mitral valve replaced at 2 1/2 months old, with a St. Judes mechanical, so we have been dealing with Coumadin, INR's, testing, and all the fun for almost 3 years...Keegan just turned 3 on August 15th. His 3 yr anniversary of his valve is coming up November 1st...It has been a long road and continues to be a pain in the rear at times, but it is totally able to be dealt with and go on to have a "normal" life...

Please feel free to contact me with any questions. I'd be more than happy to answer anything for you and/or tell you Keegan's story. :)
 
I have been monitoring a girl (who is now three) since she was about 6 months old. When she came in yesterday she told me that she had been playing on a water slide and a trampoline. Just thought it might be comforting to know that they can live normal lives.
 
allodwick said:
I have been monitoring a girl (who is now three) since she was about 6 months old. When she came in yesterday she told me that she had been playing on a water slide and a trampoline. Just thought it might be comforting to know that they can live normal lives.
Umm scuse me, but just how exactly do you stop them anyway?
 
exactly Ross! I dont think I could stop Chloe if i wanted to - which i certainly do not!!
She lives as all her friends do and probably more as she is so lively and full of energy - she runs, climbs, goes on trampolines (although not with a lot of other children), rides at fairs, play areas, to the park etc etc

Don't worry Paula - they really do lead normal lives with warfarin - its a mild inconvenience in her life as far as we are concerned, especially compared to what she would be without it!!

Emma
xxx
 
3 GREAT testimonies..of 2 Mothers and Al .that very YOUNG children ..can go on and lead normal lives on Coumadin...I don't think most adults...are as active as these children..Yet, Pre-surgery members still worry about being on Coumadin..After raising 2 children..a 13 year old Grandson and Now..a 4 year old and a 2 year old..new Grandkids.....They do things daring..that we older adults..would never survive...Running, jumping off things, ect.. and love it.. :D Bonnie
 
Paula,

Someone posted a very interesting analogy that I go by.

If you eat NO vitamin K, that would be similar to being in a dark room all the time. Then eating some vitamin K would be similar to turning on a light. HUGE difference.

On the other hand, if you eat SOME vitamin K daily, that would be like having a small / medium light turned on. Eating a large amount would be like switching from a 50 watt bulb to a 100 watt bulb. Not that big of a change.

I try to eat something green EVERY DAY but don't bother to quantify it and my INR is pretty stable with some seasonal changes, most likely due to activity level changes.

'AL Capshaw'
 
You are all so right...

You are all so right...

You all have that right. Keegan does stuff that he probably shouldn't do. :eek: He loves to wrestle, jump on the bed...Stuff that the medical professionals told us that he should NEVER do. They put the fear of God into us, as new parents...Telling us that he cannot get scratches/cuts, that he will have to wear a helmet, to avoid head injuries, etc...He looks like a 3 yr old, bruises, bumps, scratches...There is no problems. His cardio told us that he's a boy and let him be one to a certain extent. :)

Keegan also LOVES his greens! He eats brocolli, green beans, salads, etc...On a regular basis. I love what I learned on this site!!! To medicate your diet, not diet for the medication. This place is awesome!!! We now live by that quote!
 
Your INR forms a baseline with the dosage of medication. At least that's what doctors do once they finally get the levels all settled. But that's based almost entirely on what you've eaten for the particular time that your dosage is measured out to.

In other words if your levels even out and that week you had one serving of greens, next week if you have two servings your level will be different from the previous week. So they tell people who take multivitamins, to make sure they take them regularly because their dose is based on what they've been ingesting over that certain period of time. That's why the doctors and nurses will warn you that drinking alchohol is fine as long as you do it consistently. If you go on binges, it will really mess up your INR.

All of this is also determined on how a person's individual body chemistry is affected by the medication.
 
If it were only that simple - I'd be out of business.

Actually greens appear to play only a minor role in maintaining the INR. In my experience, exercise and things that affect the thyroid (please see http://warfarinfo.com/iodine.htm ) play a much more important role than greens. I saw a woman who ate a whole bag of cole slaw mix during the two days before I measured her INR. It went down to 0.2 units from the previous month and two days later was back up those 0.2 units. Almost a pound of cabbage in excess of her usual diet made practically no difference. I have finally convinced the dietitians and nurses at my hospital to quit scaring people with the green vegetable legends. People seem much more at ease about taking warfarin if they have not been threatened with death if they eat two extra forks of lettuce.

If someone who has been in good health comes to the clinic with a broken ankle, however, I can almost guarantee that their INR will be high because they are not getting the usual amount of exercise.

I do agree that being constant in what you do is the biggest factor. The easiest people to manage are those with barely the mental capacity to live alone. Every day they get up, eat a bowl of cereal, wash the bowl, watch TV until lunch time, eat a peanut butter sandwich, wash the dishes, watch TV until suppertime and then have a bologna sandwich, wash the dishes and watch TV until bedtime, take their warfarin and go to sleep. They seldom exercise or go anywhere else. Their INR is always the same and their warfarin dose never varies. The hardest to manage are the street people. The do not sleep set hours, never know where their next meal will come from, and rarely take anything such as medication on a set schedule.
 
allodwick said:
The hardest to manage are the street people. The do not sleep set hours, never know where their next meal will come from, and rarely take anything such as medication on a set schedule.
Uh oh, this sounds like me to a T :eek: I'm turning into a street people.
 
Thanks, i am begining to feel a lot more relaxed about it all now. I was going to stay off for awhile to give myself a break, didn't last long. I will go back on al's website, when i have a few spare hours and have a good read. I dont think i have to worry about the alchohol bit, for at least awhile yet anyway. I was a bit worried because Curtis is very hypo never keeps still, not even when he's eating and he thinks that he's a stunt man and will have a go at anything, even when is friends wont. He never sleeps at night and wont always have his tea when we do, maybe he is a street person like Ross lol. Anyway thanks for all the great info, i am beging to see it in a different light, i can't change it anyway, so i will just be greatfull they can do all these wonderful things to keep him alive. Thanks Paula :)
 
Skate boarding

Skate boarding

for you Mama's out there with young kids..Please..never let them get into skate-boarding on coumadin....My age 13 year old Grandson talked me into taking him to local Mall..where they have an inside skateboarding rink..He's been skate boarding for many years..but, today..I have never seen such stuff..Grant you floor to celing chain-link fences for us mama's, ect.Kids have to wear helmets , elbow and knee protection..but..they do not follow the rules about being outside..I went in several times (shopping in mall) to check on him..Those Mall-Rats were flipping their skate-boards, ect. around where we were sitting.. :eek: That is all I needed to have one fly off and hit me in my head.. :eek: After 2 hours, I told him..enough.. Granbonny refused to go back in there. :eek: His head and face was soaking wet..but LOVED it..... :D Bonnie
 
Granbonny said:
for you Mama's out there with young kids..Please..never let them get into skate-boarding on coumadin....:D Bonnie


Ah, too late.
 
Back
Top