I'm back....and i'm scheduled tentatively for surgery on July 17th

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Dawn-Marie

Hi Everyone!

I've missed you all so! I could read everyone's messages, but several letters on my keyboard were not working (due to my spilling food on them as i have a bad habit of eating all my meals at the computer). Now i've got a new one and it's working fine :eek:).

I've had a date for a couple weeks now, but i had an accident at my microwave where i was heating a 20 oz. cup of boiling water for my bedtime tea and my neighbor banged on my door really hard and it startled me and i ****** my arm and the cup hit the side of the microwave and tipped over. My electric wheelchair was turned off, so i could do nothing but sit there and have all the hot water run all over my left hip, the top of both my legs and on the side of my right leg. Mostly Second Degree burns, but one that was almost Third Degree. All are healed now except for the one that was really bad. My visiting nurse has to call Dr. Strzalka's office (my heart surgeon) and tell them on Tuesday how the burn is. If it's still open, which i'm afraid it will be, he may delay surgery another week. I hope it's not delayed though as i just need to get it done because, you're right, it's the thinking about it that is so hard. I wake up every morning and start sobbing. It really scared me when he said the other doctors in his practice said he was crazy to touch me, plus that there isn't much chance i'll get off the respirator. I agreed to stay on the respirator for 2 months trying to get off of it (which he said i had to commit to if he operated), but after that i will ask to be removed from it. It's not my idea of what a life should be, if you know what i mean. I've been on a respirator twice after surgeries on my spine, and i absolutely HATE respirators, especially when they suction me. I still haven't found anyone who wants my two Ragdoll cats, Maggie and Smudge, who are 6 years old. They're my only family and i worry about them so much! Everyone i've asked wants cute little kittens. I think worrying about them has been the worst thing. At least the man who i bought them from is coming over and feeding them every day for me while i'm gone.

I have a question for all of you. Do all of you see Cardiologists after your surgery? Dr. Strzalka said i shouldn't need a cardiologist...that i can just see Rod, my Physician's Assistant. He's nice, but back in 1997 his clinic found that i had Aortic Stenosis, but they didn't find the Bicuspid Aortic Valve. He told me that it was "nothing" and would never bother me, and never again checked my heart. Then i ended up with Congestive Heart Failure in November, 2007 and i ended up in Buffalo and they found out that i had critical aortic stenosis. I'm not really sure if i feel safe just going to my PA's clinic. I have a cardiologist in Erie, Pa. who did the TEE on me and he said he would be more than willing to have me as a patient. His father did all my surgeries on my ribs and lungs when i had cancer back in 1980 thru 1984 (the same cancer that was in my spine). His father was the best dr. i've ever had and his son is very meticulous too. I'd feel much better going to him for checkups than just seeing my P.A. What would be your advice??? Thank you!

Well, i have to be going..i'm waiting for John to come over (who's taking care of my cats while i'm gone). I have dial-up for my computer and we have a security phone downstairs for my apartment complex so i have to be off the computer to buzz him in. I have to show him where everything is for taking care of them.

It's SO nice being back. Hopefully, i'll have a chance to be in here on and off the next few days. I still have to get all packed since i will be in the hospital, and then whatever rehab. or long term care facility they can find for me that knows how to take care of someone on a respirator and with a spinal cord injury. He said even best care scenario, i'll be in the long term care facility for 3 months. I'm hoping and praying he'll be wrong and i'll be back much sooner.

Bye for now,

Dawn-Marie
 
Dawn-Marie, good luck and best wishes - you sound like quite the fighter, I am sure you will be off that respirator as soon as you can, and be home pretty soon, too. Maybe they'll have highspeed in the convalescent home, and you won't want to go back home to dialup :D

you know, depending on the facility, you might just be able to get yur cats in for a visit ... ask when you get there.

And yes, get your physicals etc. doen wherever YOU feel most comfortable and cared for .
 
So happy you updated us, Dawn Marie.
You have the best fighting spirit. I think you are right it would be good for you to see the cardio about whom you think so highly.
If we don't hear from you again before your surgery, BEST WISHES. Prayers going your way for the easiest journey through this possible. Wishes for successful surgery and recovery. Sounds like you have a great surgeon who is willing to fight to help you.

Godspeed........
 
So glad to see you posting and I think of you everyday.

With that fighting spirit you will be OK and I do think you need a cardio.

I do hope you can post again and will someone be able to post for you after your surgery to keep us updated?

Earline
 
Hi ~ Thank you everyone! Yes, Jane from Tennessee (who for the life of me i can't think right this minute what name she goes by in here) and i have become friends. I'm giving the hospital her name and telling them she has my permission to call and be informed how i'm doing. Yes, i am quite a fighter (my dr. always called me Tiger in Maryland because he was sure the cancer was going to kill me, and it didn't. It was a rough four years from 1980 to 1984, but finally the cancer quit coming back and i've had many, many wonderful years since then.
Right now though, i'm mostly just close to being terrified, but i know i'll make it through this or, if i don't, it will be okay too. I've always believed that Heaven is our true home and i'm not scared of going there. I just don't like the suffering beforehand. But, hopefully, i'll make it through and be back home with my cats soon. At least i know John will give them really good care while i'm gone...that's comforting to know!

Well, have to be going again. I got all my stuff packed and my friend, Ruth, is coming over to pick it up tomorrow. Guess i will have some time to be in here. I worked non-stop for a couple hours and got a lot done.

Just please say some prayers for me that i'll recover. Thank you so very much!

Dawn-Marie
 
You will be in my prayers and thoughts Dawn Marie. I will put you on the calendar for the 17th and we will look forward to getting updates from Jane. You are a fighter and I admire your spirit. Godspeed!
 
It is so good to see you posting Dawn-Marie. I'm sending all the best wishes and healing energy I can. I hope nothing delays your surgery since I know you're prepared both spiritually and mentally for your climb to the top. Before you know it you'll be on your descent down the other side of the mountain and all of the pre-op worries will be smaller than they ever looked from the bottom of the slope. Keep fighting and
Take Heart,
Pamela.
 
Dawn Marie,
It was good to see your post, I wondered how you were. I am sending you all the positive thoughts that the internet can hold! And you can be sure that I will be thinking and praying for you on the 17th. ( well I hope that it is a go for you that day). No matter what you think about yourself you are one strong lady and I wish you all the best as you fight this next battle.
God Bless You!
 
Dear Dawn-Marie,

You are in my thoughts & in prayers everyday! I will be praying that you will have a successful surgery & will not have to be on that respirator for a long time & that you will return home to your two loving friends, Maggie & Smudge who will be anxiously awaiting. And that includes all of us here too Dawn-Marie; you're in our prayers. Stay positive & keep fighting!

My prayers to you! Godspeed! :)
 
Hi Dawn-Marie

Wishing you the very best of luck and a good outcome for your upcoming surgery.

Kia kaha (stay strong)
Bridgette
 
Dawn Marie,
Will the visiting nurse be there this Tuesday to check the burn? If she reports that it hasn't healed sufficiently, will you remain at home a few days or a week or so longer?
I believe Jane from TN is designlady so perhaps she will know about the surgery date. Whatever happens, I will keep you in my prayers and hope that everything turns out for the best.
God Bless and Godspeed
 
Hi Everyone ~

Thanks everyone again for your prayers. Yes, Jane is DesignLady. With all that is going on, my mind just blanked and i couldn't think what her name was here. Yes, the hospital has permission to tell her how i'm doing and she can tell all of you. She's such a wonderful person and has gone through so much herself, as have all of you.

I have a nurse come and bandage the burns every day. Only one is really a problem now. Laura (my nurse) will call Dr. Strzalka's office tomorrow since she is off Tuesday and Thursday. He has office hours on Tuesday, so his nurse will relay the information to him as to how the burn is, and then he will make a decision whether to operate on Thursday, or to wait a week. Laura is sure it will be healed by the following week. It's way down on the inside of my thigh, so she doesn't think it will matter to him all that much.

We're supposed to have absolutely gorgeous days...sunny, mid-70's and low humidity, so i'm going to try to get outside and enjoy them as much as possible before i go in. They will probably my last Summer days to enjoy, since if the doctor is right, i won't get back home until mid-October if i have to stay on the respirator 2 months and then a month of rehab. afterwards. By mid-October near Buffalo, it's about ready to snow!

I hope you all are well while i'm gone and that those who have surgery will do fine and have easy (as possible) recoveries!

Dawn
 
Prayers are being offered daily!

Prayers are being offered daily!

Hello Dawn-Marie!:D

You are in my thoughts and prayers! As so many people have expressed, you are one tough lady! You have a huge family here on valvereplacement.com!!! So many, many people that love you and pray for you! You can be absolutely certain that I will keep them all updated on your progress! I will pm you sometime tomorrow!

Hugs from Tennessee!!
Jane:rolleyes:
 
I'm so glad you were just having silly computer issues. So sorry to hear you got burnt, I hope they all heal well. I wish I could take your lovely cats...ragdolls are just gorgeous.

I will keep up the prayers for you...

hugs and prayers
ton
 
Dawn-Marie:

Best wishes for a successful surgery -- and I'm praying it will be quite boring and you'll be twiddling your thumbs during recovery.

Know what you mean about being back home with your cats. We have several that would make wonderful nurses if they were human!
 
All the best, Dawn Marie, for a sucessful surgery and as little time on the vent as possible. I'll be sending good thoughts your way. I know how you feel about your cats. I have two cats too, and they are very important in my life. Take care and keep us posted.
Jane
 
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