Husband's upcoming surgery

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ladybug

My husband "Chevyman" registered yesterday. He has posted under Pre-Surgery. He is having pulmonary valve replaced Nov. 13 at Univ. of KS Med. Ctr. by Dr. Daniel Marelli who used to be with UCLA. My husband had ToF at age 10 and no problems until 1998 when he had VT. I almost lost him at that time, but thank God he came through it and had ICD implanted. No problems until he found out through checkup several months ago that pulmonary valve is leaking and RV is enlarged from working overtime. Of course, I'm very concerned, but try to be positive for him. I have faith that everything will work out fine. I have been reading this forum for a few weeks and an encouraged by the stories I have read. Any suggestions on how I should deal with this would be very much appreciated!
 
Ladybug - Glad you could join us. I had RF when I was age 10 with heart valve damage. 37 years later I had valve surgery (mitral and aortic) in 2001. I had a very supportive wife who went to Cleveland with me and stayed with me throughout the entire ordeal. After getting out of the hospital (10 days for me), she took time off from work, and we spent several weeks in the NC Outer Banks. We really bonded and I slowly got better. I am forever grateful for the great support. Hope this helps
 
Ladybug,
Welcome. I'm sure you've already found that this site is full of people who really care. We have many spouses that post regularly, along with their spouse, or in place of their spouse.

My first advice - breath! Ask questions, and more questions and even more questions of the doctors, nurses and here. We have a lot of members that know a lot of things - even though they will be humble about their knowledge.

This is the best source of information I have found for "Valvers" (as we sometimes call ourselves). No matter what question, someone will be able to help in finding the answer/s. Most importantly it is the best source of support you'll find anywhere. You haven't just found a place for information, you've found a family that welcomes anyone who chooses to join.

Keep us posted.
Blessing on you and your husband,
Karlynn
 
Thanks Bill and Karlynn. It's good to hear from others who have been through similar situations. I have done quite a bit of research on the internet about the valve replacement surgery and what to expect afterwards. I have learned a lot from this site. I plan on being w/Kelly from start to finish with this. We're a team and I know he would do the same for me. Thanks again, and I'll talk to you all soon.
 
Hi ladybug-

Welcome to this fantastic site. being a caregiver wife myself, I can relate to what you must be feeling. My husband, Joe, has had 3 valve surgeries and 2 lung surgeries, he also has a pacemaker and several other very serious conditions including congestive heart failure, and pulmonary hypertension. He's always got something going on with his health.

There are times when the stress can be unbearable. At those times, I have to try to take little mini-vacations from things. I go to this site and read and post things, I escape to the sewing room, and get really involved with making something creative, I look for new recipes that will be good for Joe (he's strictly no salt) and will be tasty, I go outside and do some gardening, raking, etc., in other words, I get my mind off things and let it rest a bit. When things get really terrible, I get in the car and run some errands, with the cellphone (so Joe can call me if he needs to), and I close all the windows and turn up the music really loud.

We have both learned not to project too far ahead, because with Joe's conditions, it's hard to plan too much into the future. We try not to worry about all the "what if's" that could happen. Don't get me wrong, I have an emergency plan in the back of my mind at all times, but it stays there. If things are good today, we celebrate today, if he is feeling a little better today, then we can think about tomorrow being even better. Just have to take it one day at a time, and live in the present.

With your husband facing surgery in the not too distant future, there are several things to remember.

This surgery is a life-saving thing. His ablation is a life-saving thing.

The surgeons who do this, are in and out of people's hearts all the time. They can do all the necessary things to take care of your husband's problems. They are very expert at what they do.

Your husband will be taken care of extremely well in the hospital. everyone in the ICU and step-down units is top-notch.

The pain medications are very effective.

Your husband will most likely be in the hospital from 5-7 days, perhaps a little longer, but usually not by much. That's a pretty brief period of time.

After he gets home, the healing begins. And as you can read from many of the posts here, after a year, things are back to normal and even better than before.

So there is much to celebrate. It is a hard thing to experience, but it is well worth whatever has to be endured in the short term. The gains are long term.

Please come here often and ask all kinds of questions.

We all pretty much agree that learning as much as you can about what your husband's conditions are is just about the most important thing you can do. It's hard at first to read all this stuff, but it does get easier and will help you tremendously.

Best wishes,
 
Hi Ladybug,

Several suggestions:
1. Buy a telephone credit card at Sam's.
2. Have a friend at home be your contact for everyone outside of the family.
3. Have someone with you at the surgery.
4. Be prepared for a lot of guages, bags, etc. in the post operative room. It looks worse than it is.
5. Be prepared for some depression following surgery.
6. Expect 4 months for total recovery.
7. Keep accurate files for insurance and bills.
8. Rely on some help to relieve you during the recovery at home.
9. Expect some bad days

With God's help, rehab., and good physicians, all will be well.

God Bless!
 
Hi Ladybug,

My husband just went through mitral and aortic valve replacements and an added thrill of a pacemaker - onlly 10 days ago. I agree with all the suggestions others have made. It is very much a day to day thing. 1 week after the surgery he was still in the hospital and so week, miserable, etc - worse even than the day right after it. Then two days later he was home doing great. Today he is extremely tired and feeling depressed because he's just not used to feeling so low on energy. We just need to stay strong and encourage them that all this is normal and in a few months they'll feel better than before it all happened. This is a great site for sharing experiences, and even though everyone is a little different you can get some good ideas or things to explore further. Good luck to you both.
 
hi lynne!
please tell your husband to try and be patient with his recovery.
my husband, joey, thought he would be up and around in no time. he was shocked that he was so tired and couldn't sleep whenever he wanted to, etc._ his entire schedule was off. he was very frustrated about his initial recovery.
still, he walked, breathed and rested as much as he could.
little by little, he started having more good days than bad.
please urge him to try and rest a lot, do his breathing exercises, and walk a bit here and there (whatever he is comfortable with). these things will make him feel so much better.
please keep us posted on his recovery. also, please try and get some rest yourself!!
be well, sylvia
 
one day at a time.

one day at a time.

I learned at a very very young age to live in the present. Nancy is correct! I think if you stay committed to it, it will help you.
med
 
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