How quickly does Mitral Regurgitation progress?

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emmylala2003

I have MVP w. Moderate Regurgitation. I was told by my doctor that the condition does not usually progress but if it does surgery might be needed in the future. My question is does the condition progress? and if so how long does it take to progress to "surgery" status? Does being pregnant make the condition better or worse? How often is surgery necessary in a pregnant woman with MVPw.MR like me.

thanks in advance for you help
:p
 
Hi again Emmy,
As I mentioned in your last thread, pregnancy is the big unknown for women with valve issues. There doesn't seem to be any hard and fast rule for how long it takes a valve to progress to surgery stage. Everyone is a different case. You really need to consult with a high risk OB/GYN that is familiar with valve disease and pregnancy. You would be considere high risk when pregnant.
 
I know how you feel!

I know how you feel!

Hi there Emmy, I've been having mitral valve replacements ever since I was ten as a result of rheumatic fever, but only got pregnant after my third one. I didn't have any problems at all and wouldn't even be able to tell you how it feels to be sick at all, lucky me! Anyway, my daughter Bruna is coming up for 8 next February and is quite healthy although she was diagnosed with mitral valve prolapse a couple of weeks ago. In her case there's no insufficiency or regurgitation so I'm afraid I can't help you here, but I'm sure someone will come forward with an answer to your question soon. You've come to the right place and I too want to welcome you to the site!
Débora
 
It is impossible to even guess what your timeframe would be likely without a knowledge of your current regurgitation, valve thickening, EF, and chamber sizes, as well as those going a few years back. With that, it would be - just a guess. The problem is that it is still an inexact science as to exactly when someone should best go in for surgery.

The informal consensus in these forums seems to be to go early in the game, before permanent damage is done. But it's hard for anyone, including your cardiologist to determine at just what point that might happen. There are thresholds at which it is definitely necessary to go for surgery, but it is not at all cut-and-dried as to when the best time to go is for each individual.

Untreated valve conditions don't improve over time. Depending on the individual situation, they may remain stable for many years, even outliving their owners. In general, however, they become worse over time. The decline tends to accelerate as the condition becomes more severe, especially when calcification is involved. This appears emphatically true of the aortic valve, but also follows with the mitral.

The Valve Disease Progression Axiom is: "The worse it gets, the faster it gets worse." (my opinon...RDH)

There is little question that pregnancy does stress your heart and your valves, but the effect it has on an existing valve condition varies greatly by individual. It would be foolish to think it would have no effect, if the valve condition is past its mildest form, yet it does seem negligible in some. There is speculation that there may be hormonal changes that benefit and protect the heart somewhat during pregnancy, but I have not seen an absolute statement to that effect. It would not be surprising to find it to be true in some women.

I do suspect that the further along the valve issue is, the greater the impact a pregnancy would have.

As far as surgery on a pregnant patient, I think that doctors would prefer almost any other option than putting a pregnant woman on bypass.

Best wishes,
 
One more thing!

One more thing!

Emmy, I've just remembered that I'd been trying to get pregnant when I learned that it was time for my third OHS, I mean, the doctor thought I would have another year or so before I would have to go in again, but due to an abrupt rupture on the already replaced valve, I had to have surgery within a month's time. I got so anxious about the whole thing that my period was late and I thought I might be pregnant. When I asked the doctor what would happen then, he said that they would have to wait until the first three months were past and it whould be ok then. Well, the test came up negative so I never went into detail about that, but I thought you might find this useful. Discuss all possibilities with your cardio and make sure you get all the answers from him. Good luck on your decision.
Débora
 
Thank you guys for all of your wonderful responses. I don't know what people with these conditions did for support back before the days of internet. It's truly a god-send.

Now, I guess that my next question would be, if my regurgitation were to remain "stable" or "moderate" (whatever that means to my Cardiologist) at the time I were to become pregnant. Would it then be reasonable to assume that the pregnancy would not aggreviate the condition to such a degree, as to, make surgery for repair or replacement immediately necessary ? Again, I have not discussed the condition with my doctor at length. To be honest, I didn't think anything of it until I started to research the condition further on the web. The feeling I got from her (my Cardiologist) was that I was fine, the condition was nothing to really worry about, that I should come in annually to have it looked at, and go ahead and have kids and that if it became worse, surgery would be necessary many years down the road. Now, I understand that alot of doctors are very casual about this condition, but I'd hate to think that she would steer me SO wrong, if my condition were that bad. Am I being naive about this? At any rate, I did phone her office and ask for copies of my files so I could look them over and pass them on to my fertility doctor so she is aware of my condition as well. I also plan to visit my Cardiologist again before I go ahead with becoming pregnant, to follow up on the condition and to ask her some more questions. I think keeping a journal would be helpful. That way I could write down all of my questions and all of her answers to my questions, and refer back when I need to.

Thanks again for the support! :eek: :eek: :eek: :eek: :eek: :eek: :eek: :eek: :eek: :eek: :eek: :eek:
 
After daughter's insistance I finally had an echo done.

Have mild mitral regurgitation and trace tricuspid regurgitation.
Nothing has changed in 6 years since the last one so I am not worrtying.

Taking the meds for the cholesterol. Hoping the numbers will be coming down soon.

One never knows. I will always keep on top of things.

blessings,
bobbbie (mom of Janine MVR 6-7-04 NYU)
 
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