Hi, I'm still around! Update & TEE question

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M

Marge

Have not been back for a while. A couple of reasons:
(1) I really didn't want to think about this valve business for a while, and (2) actually, nothing heart related has happened to me for a while.
In non-heart news, I had a nice vacation in August in Santa Fe and we're going to Mexico in November. My husband had his long-delayed knee replacement operation in late June (he was supposed to have had it before my valve surgery!) and he is recovering -- more slowly than we hoped because it turned out the operation was more complex than most knee operations (due to previous operations, scarring, etc.) but according to his surgeon he is ahead of where she thought he would be at this point.

I hope everybody is OK, and I plan to hang here a bit and catch up with news, but in the meanwhile I have a question! About the TEE test.

Yes, I know the TEE has often been discussed here, and I tried to do a search, but I probably didn't go about it properly, and I didn't get anything helpful so am throwing myself on the collective mercy of the board. I know what it involves, of course, but I'd welcome personal experience of what it actually feels lik to have one. I am supposed to have one on Oct. 27. I never had one prior to my surgery; the only ones I've had were during/after surgery and I was not conscious at the time.

Am sure not looking forward to prospect of tube stuck down my throat, etc. Does the anesthetic they use REALLY numb you so you don't feel it? Do they REALLY give you enough sedative to relax you? I am breaking into a sweat just thinking about it, so I am counting on the sedative.

As for why I am having a TEE anyway -- well, since my mitral repair in February of this year (2004) I have had an echocardiagram -- in late June -- which showed that the regurgitation has started up (my surgeon said he had stopped it) and that I now have mitral stenosis as well (which I didn't have before the surgery or if I did nobody told me about it).

There is some dispute about what the echo really shows. The cardio who did the original analysis wrote that the regurge was "mild to moderate," and the stenosis was "moderate to severe." My own cardio says that after looking at the echo himself he thinks the regurge is only mild, and he doesn't seem too worried about the stenosis either. He says anterior leaflet is mostly immobile but posterior leaflet has "pretty good mobility." (Or maybe the other way around?) The echo also supposedly showed an EF of 30 -- the same as the cardiac cath I had in December but substantially down from the EF I supposedly had when I was discharged from the hospital (45). My current cardio thinks the 45 was possibly an artificially high figure due to whatever IV drugs I was getting at the hospital that were stimulating my heart function. He thinks that as long as the EF is no WORSE than it was in December I am doing OK. He also thinks the stenosis (if there is stenosis) may be a function of what was done during the repair itself.

This current cardio is a new guy (I mean, new to me) who replaced my former cardio when he moved away. This cardio says he is more concerned with "symptoms" and how I feel than tests and figures. Right now I feel fine, but I wonder if he may be one of those cardios who wants to put intervention off and off and off until you do develop bad symptoms and you have sustained real damage.

Anyway, I persuaded him I really do want to know what is going on. I also told him that if the repair wasn't successful and if I need another surgery and a replacement instead, I would rather have it sooner than later. (He hemmed and hawed a bit & talked about the "risks" of second surgery.)

He has had me do a MUGA test (supposed to give us more information on the heart function and the EF). I don't know the results of that yet. The next thing is this TEE, and then we will send the results to my surgeon for a consultation with him. So that is where I stand now.
 
Hi Marge,

A TEE is not very bad nor is it very comfortable. Compared to surgery, it is a major breeze. The one thing I can offer on the TEE is to remember to breathe through your nose and not your mouth. Might sound strange but many of us are "mouth breathers" and, obviously it is impossible to breathe through your mouth when the probe is in. If you try, you will start to panic and that makes things worse. Also if you concentrate on breathing, your mind will be focused on that and not on the probe. All in all, the TEE is not too bad. Once the probe is in place, the test is fairly brief. The other thing is they usually give you "forget" medication so the discomfort is limited.

I would suggest, if you are not comfortable with your cardiologist's recommendations, you should seek another opinion. While you don't want to force surgery when it is not needed, you don't want to ignore problems or destroy your peace of mind. The mental part of all this valve "stuff" is as important as the physical.

Good luck and stay in touch to let us know how you are doing.

Gina
 
I had a bad experience when a cardiologist was about to do a TEE on me and a fellowship Dr showed up and said "I've never done one before can I try doing one on this guy."

Also one technician in the hospital told me they have a smaller unit for people who have sore throat issues (my throat was sore from aventilator not properly installed). I forget what she said they call the smaller unit but I would opt for that if I had to have one again.
 
TEE Not Too Tough

TEE Not Too Tough

I think the idea of it was far worse than the experience. I had one last year.

Being the curious type that I am, it was interesting to be alert during the procedure and see the results on the monitor. They had given me a couple things to numb my throat--which worked great--and while the tube was slightly uncomfortable going in, it seemed easy enough to let them poke around for a while and find out what they needed to know.

The scary part for me was just not knowing what to expect or how I was going to react. Now I know that it ain't so bad.

Given the choice between a root canal (eeekkk) and a TEE, I'll take the tube.
Dental work, now that's torture.

Good luck.
 
I've had a couple of TEE's and several upper endoscopies (looking at your esophagus with a scope).

First, they spray your throat with a yucky tasting medicine that helps to suppress the gag reflex. Make sure they use enough and then swallow the yucky stuff.

Second, they give you an IV with Demerol (for pain) and Versed (to relax you). The amount of Versed used can control your level of consciousness from alert to not being aware of anything. Versed also has a short term amnesia affect, especially in higher doses. If you don't want to be aware of the procedure, tell you doctor and he can make that happen. You will need someone to drive you home.

'AL'
 
It's as the others here have said,they will give you plenty of medication to relax you and it's really not that bad.I had my TEE 4 years ago.However,I was apparently unique...you see...even konked out as I was,I kept biting the doctors(my sister remarked I always was fighter) so they had to knock me senseless even more in the OR.I think I set a minor record at the hospital,as it took the 6 hours to get this test done. I hope this made you laugh a little! :)
 
Here's an article about the smaller probes:

From:
http://www.ncbi.nlm.nih.gov/entrez/...list_uids=7546790&dopt=Abstract&holding=f1000
>>>>
J Am Soc Echocardiogr. 1995 Jul-Aug;8(4):527-35.

Miniaturized biplane transducers have recently become available (2 x 32 channels, dimensions 9.5 x 8.7 mm, and circumference approximately 30% less than the conventional echoscope) and allow ultrasound examination at 3.5, 5.0 and 7.0 MHz. A prospective study was carried out in 90 patients to compare difficulties on insertion of the probe, subjective evaluation by the patient during examination, and the two-dimensional image, as well as Doppler and color-coded Doppler quality of the miniaturized biplane versus the conventional probe. In 62 patients, intubation of the esophagus proved less difficult with the smaller instrument and more difficult in nine cases. Seventy-six patients reported that they suffered less discomfort on use of the narrow instrument. Concomitant parasympatholytic medication was needed with the smaller probe in seven cases and 17 times with the conventional probe. As anticipated, quality of the two-dimensional image attained by the miniaturized probe was lower. With transmit/receive frequency of 7.0 MHz, however, image resolution was excellent in the near field of 5 cm and nearly equivalent to that of the conventional probe (5.0 MHz). Pulsed-wave and continuous wave Doppler and color-coded Doppler information from both probes was similar in quality. Whenever examination with a conventional transesophageal transducer promises to be difficult, or when sedation is contraindicated because of a severe illness or respiratory insufficiency, transesophageal echocardiography should be considered with a smaller biplane probe at higher transmit-receive frequencies.
>>>>>
 
TEEs are not bad at all. I have had three of them. The anesthesia does not knock you out, it is to relax you. The cardio will spray a substance down your throat to numb it and then another spray stop the gag reaction. Its not as bad as it sounds, I never had a problem at all.
Bush league compared to OHS. By then we all seem to have ammased a great deal courage.
Today I laugh when a nurse takes blood or gives a shot. They may say "now this may hurt a little" Being an OHS patrient I say "you can't do posibly do anything that will bother me on the least"
 
Thanks, all ...

Thanks, all ...

Well, thanks for all the replies. I appreciate the information. I am not really that nervous about the TEE although still not looking forward to it! The cardiologist who is doing it is the same one who did my cardiac catheritization in December of last year and she seems very competent so I am not worried about that.

I will ask about the smaller probe. I have had sore throat/coughing issues since a respiratory infection in the latter part of August (cough goes away from time to time but keeps coming back and sometimes my throat is really raw).

I will keep you all posted on the results of both the MUGA and the TEE and what my cardio says when I see him.
 
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