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Peg

Hi Everyone,
I'm not sure this is where to start, if not tell me.
I'm a new member whose doctor just told me two weeks ago that I will need mitral valve surgery. He also told me I have Pulmonary Hypertension.
I started looking on the internet for a surgeon preferably minimal invasive mitral valve surgery. I am looking for suggestions. I also wonder if anyone has used Dr. Chitwood in Greeneville, N. Ca.
Peg
 
Help

Help

Peg,
I don't know the answer to your question, but I think we need to move the question to its own thread so it will get more "air time". There are a zillion people (actually 989) who can are so knowledgeable and will be glad to help you.
Let me see if I can get someone's attention that knows how to get you on a new thread.
Mary
 
Help!

Help!

I've found Peg on Yap's thread and she needs information. Can we move her onto her own new thread?
Mary
 
Hello

Hi Mary,
Thanks, I wasn't sure how to post a message I'm kind of new at this. Any comments or suggestion with my previous post are welcome.
Peg
 
If you posted on Yaps' thread, somebody musta moved you (Ross maybe) because I found you all by your self in your own thread.

Anyhoo -

welcome to VR. Many folks will probably be answering you before the evenin is over. And welcoming you to VR. A wonderful place to be while you are going through this. We stay right with you all the way from now til you are over the mountaintop.
 
Hi Peg,

Welcome to this forum. Before long you will feel like a family member. Dr. Randy Chitwood has an excellent reputation and has in fact been used by a few members on the board. As you have probably already researched, he is an expert on minimally invasive techniques as well as a pioneer in robotic surgery. I've watched a web video of a surgery done by him as well as a few web conferences in which he was a participant. My PCP actually had recommended Dr. Chitwood to me but Duke was more conveniently located.

Dr.Donald Glower was my surgeon at Duke. He is also an expert in minimally invasive surgery and the Heartport procedure in particular. That is the procedure I had done. I would pick my same surgeon but I'm not sure I would have the same approach done if I had it to do over. Everyone is different though.

I've got a little pulmonary hypertension but it seems pretty stable. I wish the very best for you. Keep asking questions and really work on becoming an expert on your own case. Always ask for copies of test results and labwork and maintain your own health file. Again.......welcome!
 
Welcome

Welcome

Hi Peg
Welcome to the site. This place has really helped me through the whole process of having open heart surgery. I had minimally invasive mitral valve surgery this past January in New York at NY Presbyterian Columbia Univ. Hospital with the Director of Cardiothoracic Surgery, Dr. Mehmet Oz. I had this surgery because I was in congestive heart failure. I previously had a balloon valvuloplasty done the previous year in PA (Univ. of Penn Hosp.) with a different surgeon, but it didn't work so Dr. Oz scheduled me for a mitral valve replacement, however once he opened me up he decided he could do a repair instead. Pre-surgery my mitral valve was 1.3cm, post surgery it's now 6.9 cm, a huge difference. My incision is about 2 1/2 inches long just under my right breast, you can't see it unless I'm without a shirt, I can even wear a bikini and it covers the incision. The surgery itself, even though minimally invasive, still entails a 6 week minimum recovery period. They will have to spread your ribs which is a little painful and you still have to go through the whole chest tube and ventilator experience but it's not as bad as it sounds. They will keep you medicated throughout your stay at the hospital. Make sure you do your research regarding your choice of surgeon, not all surgeons are qualified to do the minimally invasive type. If you have any questions please do not hesitate to private message me on the site. Best of luck to you & stay positive!
Dawnwit15
 
Hello

Hi Betty,
Thanks for the welcome, It is good to know a PCP recommended him and some of the board have used him. I would love to know how they liked him. I don't know what the Heartport procedure is. What was your PH pressure and did it improve after your surgury? Mine was 47. Peg
 
Hi Peg,

I notice you are a retired RN...me too! Pre-op my right ventricular systolic pressures ranged from 38 to 47. At three months post-op it was 41 and at 6 months post-op it was down to 34. As you know there is an awful lot of guestimate that goes into echo readings.

Our member, Caroline, had Dr. Chitwood for a repair. She may see your post and respond. You live in Ohio....are you also considering the Cleveland Clinic?

With my Heartport procedure my right rib cage was opened and most of the work was done with large scopes. To allow for more work room the right lung was deflated. I have some fibrosis(scarring) to the right lung and the presumptive cause is the manipulation of it during surgery.
 
Hi Betty,
I'm glad to hear your Ph pressure went down.My pressure was 47 by cardiac cath and 45 by echo. Thank you for explaining the Heartport, I don't think I would want that, I am already having trouble breathing. I considered the Cleveland Clinic and they seem to only consider the upper sternum as mininimal invasive. I really don't want to go the sternum route if at all possible. Thanks for your input.
Peg
 
Peg, I never really heard the heartport as being minimally invasive but it seems to me it would be classed that way. I know in Belgium it is almost the norm for mitral valve surgeries. I don't want to sway you away from it. It seems like everyone has something or other that is a bump in the road for them. For me it involved a lung. For others it is sternum pain. Just do your research and determine what is your preferred route.
 
Hi Peg-

Welcome to the site.

My husband has had 3 heart valve surgeries, the last one was done through his rib area (HeartPort) since he had already had two sternum surgeries. For him, this surgery was much easier than the other two. His surgeon did an excellent job. He has also had 2 lung surgeries prior to his last heart surgery, one for a benign tumor and the other for scar tissue of unknown cause, but it could have been caused by his PH.

He has had PH for several years. The reason for it could not be determined, so he has Primary Pulmonary Hypertension. His mean pressure was 75 by RHC and he was in Class 4 PH when he was put on Tracleer. Last echo, his pressure had come down to 41, so Tracleer has been a miracle drug for him. He is due for another echo next month, so we'll see what that shows. As you probably know, echoes are not very reliable for giving PH pressures, The pressure can sometimes vary from the results by 20 percent either way. The RHC is the most important diagnostic tool for PH, unfortunately.
 
Hello

Hi Nancy,
Boy it sounds like Joe has been through everything. Thanks for the welcome.
I have a lot of questions for him. Did his PH pressure come down after his mitral valve surgery? What was the compariable time in recovery between his surgeries? Are you all going the PHA conference in Miami the end of June?
I would love to meet both of you. I want to tell that before I joined VR.com I lurked for about 10 days. I really appreciate all the wonderful info sites you have put on VR.com.
Many Thanks
Peg
 
Hi Peg-

Joe's pressures did not come down after his mitral surgery. I guess his is not caused by his valve problems per se, however, he did have rheumatic fever as a teen which caused all of his heart issues and in the back of my mind there lurks the question about whether it also caused his lung problems. So many rheumatic fever folks DO have lung problems as well, and some even PH. Not much written about it in the medical stuff I've read, just seems to be at the root of all evils for my buddy Joe.

Joe had his aortic valve replacement in 1977, then nothing until 1999 when he had the mitral replacement. Then in 2001, the mitral repair for a paravalvular leak. He also has a leaking tricuspid, but it doesn't appear to be problematical right now. It might have been made worse by the PH. One cardiologist has mentioned it as an "innocent bystander". His last echo was technically pretty poorly done, so maybe next time we can get an idea if the tricuspid has improved with his pressure coming down.

He has also told me that his two lung surgeries were much, much worse than any of his heart valve surgeries. They were done several years ago. His back scar tissue areas are still quite sore. Lung surgery, not a fun thing.

Recovery time is pretty much uniform for valve surgeries, 2 weeks or so with the early very sore stuff and other normal but intense stuff, gradual recovery until 6-8 weeks, then things start to even out, and the final recovery comes at 6-12 months, when people start feeling very well. The HeartPort procedure cut the early time in the recovery phase by several days, no sternum healing.

We can't make the PHA conference. I'm not really sure how Joe would do now with flying, even though his PH is much better. He still gets breathless and very tired with lots of exertion. He can do many things though, just came in from working in the yard for 3 hours, and can do the treadmill, at least a mile. His oxygen SATs are 95 in room air. So as of now he doesn't need 02. But flying with the cabin pressures might just be too much for him, even though they are regulated.
 
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