M
momta3
hello everyone.
I just joined little hearts .org and was told to come over here to see about this site. Its so wonderful to see that people can still be nice and wonderful to each other.
I guess I will introduce myself and tell my story.
My name is Barb and I am the proud mama of 3 wonderful children, Brandon ( 9), Russell (5) and my miss Emmie (3/17/02).
My oldest child Brandon has Aortic stenosis. He was premature, born at 33 weeks. Coming into this world at 3lbs, 10 oz and 15 inches long. I was a pretty young mama, just turning 22 three weeks before his birth. Brandon was in the hospital for 3 weeks before he came home and no one said anything about his heart to me the whole time. I brought a 4 lb baby home when he was a month old and took him to his 1st doc visit. His wonderful ped told me she didn't like the way his murmer sounded and I should take him to see a cardiologist. Soo off we went, this tiny baby, and his dad and I at 22 not knowing what in the world we were in for.
Now 9 years later ( and 2 more children) Tom and I have been back and forth to St. Chris hospital so many times we could get there w/ our eyes closed.Every 6 months we have to go for EKG's and ECHO's and for some reason we were living in a world were things would just stay like this forever and it would never get worse. In Nov that all changed. We were told that Brandons leaking back into his heart has gotten alot worse and that it was time to start thinking about doing something about it. They made Brandon take have a # of tests , some normal ones we were use to and some not. Another and then another EKG and same w/ the Echo's. then came the stress test, We went into it w/ good faith that all would be well. Brandon did pretty badly for a 9 year old child. Even he knew he didn't do all that well. We left feeling panic!
Now in a week my oldest baby is getting a cardiact cath and maybe the balloon ( I can't spell for the life of me so you will have to excuse me) Altho the doc's have told us they don't think the balloon will be able to get done because of all the back flow of blood already going back into his heart, So we have to prepare for vauvle replacement over the summer. But I am trying to take it day by day--min by min.
I also must tell you all Brandon is a VERY smart little boy.. LOL Not your typical9 year old. He recently took a IQ test and got around a 180 on it!!! ( Bragging proud mama)
So we have been very open and honest w/ him and he knows as much as us. he goes w/ us when we visit all the docs and surgens even if its just to talk because as he says "its his special heart we are talking about!"
I just figured I would share our story right now. But I really must go ... My little Emmie wants to play.. I hope to get to know you all
Barb
I just joined little hearts .org and was told to come over here to see about this site. Its so wonderful to see that people can still be nice and wonderful to each other.
I guess I will introduce myself and tell my story.
My name is Barb and I am the proud mama of 3 wonderful children, Brandon ( 9), Russell (5) and my miss Emmie (3/17/02).
My oldest child Brandon has Aortic stenosis. He was premature, born at 33 weeks. Coming into this world at 3lbs, 10 oz and 15 inches long. I was a pretty young mama, just turning 22 three weeks before his birth. Brandon was in the hospital for 3 weeks before he came home and no one said anything about his heart to me the whole time. I brought a 4 lb baby home when he was a month old and took him to his 1st doc visit. His wonderful ped told me she didn't like the way his murmer sounded and I should take him to see a cardiologist. Soo off we went, this tiny baby, and his dad and I at 22 not knowing what in the world we were in for.
Now 9 years later ( and 2 more children) Tom and I have been back and forth to St. Chris hospital so many times we could get there w/ our eyes closed.Every 6 months we have to go for EKG's and ECHO's and for some reason we were living in a world were things would just stay like this forever and it would never get worse. In Nov that all changed. We were told that Brandons leaking back into his heart has gotten alot worse and that it was time to start thinking about doing something about it. They made Brandon take have a # of tests , some normal ones we were use to and some not. Another and then another EKG and same w/ the Echo's. then came the stress test, We went into it w/ good faith that all would be well. Brandon did pretty badly for a 9 year old child. Even he knew he didn't do all that well. We left feeling panic!
Now in a week my oldest baby is getting a cardiact cath and maybe the balloon ( I can't spell for the life of me so you will have to excuse me) Altho the doc's have told us they don't think the balloon will be able to get done because of all the back flow of blood already going back into his heart, So we have to prepare for vauvle replacement over the summer. But I am trying to take it day by day--min by min.
I also must tell you all Brandon is a VERY smart little boy.. LOL Not your typical9 year old. He recently took a IQ test and got around a 180 on it!!! ( Bragging proud mama)
So we have been very open and honest w/ him and he knows as much as us. he goes w/ us when we visit all the docs and surgens even if its just to talk because as he says "its his special heart we are talking about!"I just figured I would share our story right now. But I really must go ... My little Emmie wants to play.. I hope to get to know you all
Barb
