Hello everyone

[LoraW30]

Hello,

It's been a few months since I've logged in to this wonderful site. These last few months have been pretty hectic. Last November my stepdaughter was diagnosed with Hodgkins Disease and my husband and I have been keeping the interstate hot with trips back and forth to Children's in LR.

I have been fairly stable, going to the doctor every month until December. My doctor decided it would be less stressful to me if I didn't have so many trips to LR and didn't want to see me again for 3 months.
We've both realized what a mistake that was. Last week I had what one of my docs called a hypertensive crisis. I blacked out for a couple of seconds and apparently struggled for air. I spent two days in the hospital having ekg's, echoes, x-rays, and pacemaker checks to find out what happened. Well, we think because of my LV disfunction, my pulmonary pressures are getting higher.
Now, I've been given stricked instructions not to do ANYTHING. I can't walk around, do household chores, anything that would create stress on my heart. I now have a wheelchair for shopping excursions, and have been told to carry my O2 more. I don't know what's harder, just having PPH, or watching other people clean my house.

I've really missed the companionship and support of this site and plan on logging on more in the future. I hope everyone takes care.
Lora

 

[bvdr]

Lora,

I'm sorry to hear you are having such problems. I have missed seeing you on this site. I remember a post of yours, maybe last spring, about enjoying the little pleasures in life. I don't remember if you mentioned flowers and fresh air but I somehow associate that with your post. I've wondered how you were doing.

How is your step-daughter doing now?

Are you on the transplant list?

Welcome back.

 

[Nancy]

Hi Lora-

Wow, lots of things going on in your life. I have forgotten, are you on Flolan, Tracleer or Remodulin for your PH? I remember when Joe was passing out, I don't honestly know if it was the PH, or his arrhythmias. It was very scary. He doesn't do that anymore, thank God. Tracleer seems to be working well for him. He's sees a new PH specialist on the 23rd. His terrific former specialist is doing research at the time. So we'll see what she has to say. It looked like his PAPs had come down quite a bit from the echo they did prior to his month-long hospitalization last January (2003).

I hope things will be looking brighter for you soon.

Please don't be a stranger, now. We missed you.

 

[LoraW30]

Betty,

I had forgotten about that post, but as soon as I read your mention of it, I remember that day. It was one of those beautiful days you want to put in your pocket and carry around.

Courtney is responding well to her chemo treatments. As far we the doctors can tell, the mass in her chest is gone. She has another month of the treatments and starts her two months of radiation to make sure there aren't any cancer pockets left. She's a trooper and is planning on going to her Junior prom.


Right now I'm not on a transplant list. Because of the pulmonary pressures I need a heart/lung transplant and my many doctors strongly advise against it at this time. We'll see how things go.

Lora

 

[LoraW30]

Nancy,

Right now I'm not on any medications for my lungs. At this point, my cardiologist is hesitant to prescibe since my PPH is brought on by my new and current heart difficulties. So far I've only had one passing out spell (knock on wood). I get to see my cardio sometime next week and we'll go from there.


Lora

P.S. It's good to be back talking to you and everyone else.

 

[Turkey Hunter]

Lora, We are with you

Lora, We are with you

Lora,

May the Lord bless you and keep you,

may the Lord make his face to shine upon you

May the Lord lift up his countenance upon you, and grant you peace.

We are here for all you need.

I am trustin gall will be lwell with you and your family.

Ben