C
Cherokeegoddess
Hi...i came across your forums today while researching my son's condition and it just seems like this might be somewhere ot get more information and vent my frustrations.
My boy is 12 and started complaining of heart problems at 10. He has been diagnosed with Bicuspid Aortic Valve Disease and is being closely watched by his cardiologist and pediatrician. My younger boy is 10 and has just recently began complaining of the same symptoms. He goes in for a check in March. Not so bad for them. THey have military insurance and very good doctors. I am blessed.
But me....I have had heart issues since I was a child and no one ever paid much attention. Long story but 7 kids and one parent, a little chest pain is nothing to worry about. So here i am turning 33 tomorrow, I have been in and out of cardiology offices from Idaho to Wisconsin. Always the same story....aww you have PVC's you are young I wouldnt worry about it. OK, no problem right. Well in the last 5 years it has progresed to the point I cannot breathe after walking so much as a flight of stairs, I nearly pass out every time i stand up or move too fast, i have chest pain that radiates into my shoulder and I feel like I cannot breathe. I worked as a nurse until I couldnt take it anymore and now when I try to get a job I cannot pass the pre-employment physical. So you guessed it no insurance.
a month ago I had such intese chest pain and fatigue I went to my doctor who did an EKG and sent me to the hospital. EKG said left ventricular hypertrophy, sustained vtach. Got to the cardiologist and he said "without insurance I am not sure we want to do a whole lot of testing" Take this toprol for 2 weeks and see if you get better. Well I took it and it did nothing. So Tuesday I had an appt with a different cardio guy who did an EKG as well as having seen my previous info from the past 3 years and my family history (father dead at 44, uncle at 46 and grampa at 38 all with the same arrythmia). This guy says, I want to put you on a med called Solatol and see how you do. If anyone has had this drug I want to hear from you cause it specifically states not to be taken unless in a monitored cardiac unit as it can cause bradycardia and MI. Well I live a good 30 minutes from any medical help and this guy wants me to take this drug. He also wants me to come back for a 48 hr Holter moitor next week and might be able to "persuade" his collegues to do a EP study to try and excite my heart into an even more dangerous rhythm. Does any of this make any sense to anyone? Or am I really getting the "you have no insurance" shaft?
I am scared and I dont know what else to do.
Thanks to anyone that might have an opinion
Laura
My boy is 12 and started complaining of heart problems at 10. He has been diagnosed with Bicuspid Aortic Valve Disease and is being closely watched by his cardiologist and pediatrician. My younger boy is 10 and has just recently began complaining of the same symptoms. He goes in for a check in March. Not so bad for them. THey have military insurance and very good doctors. I am blessed.
But me....I have had heart issues since I was a child and no one ever paid much attention. Long story but 7 kids and one parent, a little chest pain is nothing to worry about. So here i am turning 33 tomorrow, I have been in and out of cardiology offices from Idaho to Wisconsin. Always the same story....aww you have PVC's you are young I wouldnt worry about it. OK, no problem right. Well in the last 5 years it has progresed to the point I cannot breathe after walking so much as a flight of stairs, I nearly pass out every time i stand up or move too fast, i have chest pain that radiates into my shoulder and I feel like I cannot breathe. I worked as a nurse until I couldnt take it anymore and now when I try to get a job I cannot pass the pre-employment physical. So you guessed it no insurance.
a month ago I had such intese chest pain and fatigue I went to my doctor who did an EKG and sent me to the hospital. EKG said left ventricular hypertrophy, sustained vtach. Got to the cardiologist and he said "without insurance I am not sure we want to do a whole lot of testing" Take this toprol for 2 weeks and see if you get better. Well I took it and it did nothing. So Tuesday I had an appt with a different cardio guy who did an EKG as well as having seen my previous info from the past 3 years and my family history (father dead at 44, uncle at 46 and grampa at 38 all with the same arrythmia). This guy says, I want to put you on a med called Solatol and see how you do. If anyone has had this drug I want to hear from you cause it specifically states not to be taken unless in a monitored cardiac unit as it can cause bradycardia and MI. Well I live a good 30 minutes from any medical help and this guy wants me to take this drug. He also wants me to come back for a 48 hr Holter moitor next week and might be able to "persuade" his collegues to do a EP study to try and excite my heart into an even more dangerous rhythm. Does any of this make any sense to anyone? Or am I really getting the "you have no insurance" shaft?
I am scared and I dont know what else to do.
Thanks to anyone that might have an opinion
Laura
