Going for pre-op, have no valve decision

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PegB

I'm heading up to Cleveland Clinic later today for my ALL DAY pre-op on Wed., and I'm wondering if they are going to want me to select a valve? Dr. Cosgrove is 98% sure he can repair my mitral valve, so I haven't even given it much thought. Is it OK to just tell them to select whatever they think is best for me? I'm sure I can deal with whatever decision they would make, from cows, pigs, ticking, Coumadin, whatever. Everyone is so dedicated to their valve choice, and here I am saying "surprise me"!!! I think Dr. C has just allowed for his 2% margin of error in case he gets in there and everything is wackier than it looked on film. I'm just not feeling that valve choice enthusiam that everyone seems to have.

I am feeling so good going into this next Monday though. Really annoys me that I'm going to be feeling so rotten in one week. We totally asymptomatic ones have a really hard time rationalizing this whole thing. My Dr. told me last week that "I'll be as weak as a newborn kitten". She even wanted to write a prescription for a bedside portable commode since she thinks I'll have trouble getting to the bathroom. I'm just not good at DEPENDENCE!

Just wondering if any of you all didn't have any choices made going into surgery?:confused:
 
Hello Peg!
I bet it is hard for you folks who feel fine pre-op to be knocked off your feet from surgery. Yep, you are weak, but it doesn't last too awfully long. I was so excited about feeling good again that I didn't care what I had to go through. You're lucky though that you don't have to waste much time at all in the big picture feeling kinda yucky.
I had my surgery at Cleveland Clinic also and like you I was told a repair job would more than likely be what I was looking at. At my pre-op appt with Dr. Pettersson, I told him to be aggressive in surgery and if there was any doubt at all please replace and replace with a mechanical valve.....(age 49 at surgery.) He was somewhat put off by me ....not understanding why I would rather be inconvenienced by coumadin as opposed to a subsequent ohs later down the road. I ended up with a repair. At my last appt with my cardio here in WV 3 months post op, however, he picked up on some increased leakage. I am going to a new cardio in about 3 weeks. I will be anxious to learn more about this so called new leak. I am so hoping it was just a glitch in my 102 year old cardio's hearing.
Anyway, Peg, what I am trying to say is speak your mind and speak it clearly. My only 5 second reasoning for going mechanical was simply cause I was whimpy and didn't like the idea of going through the anxiety of a second ohs. :eek: All in all I could do it again, I would just prefer to be playing tennis. :D
My best to you! You will do fine. My care at CCF was over the top by the way! As you enter the surgical area, look up and see the magnificently placed words.....You are entering the portals that hold the world's very best heart surgeons! Awwww, just what the doctor ordered!
Debbi
 
One more thing......

One more thing......

About the potty.......You will be catherized and from what I can remember I didn't have to worry about the potty for a couple of days at least....including ICU and all. In the meantime your strength is building. I remember being frustrated cause I had to switch off my roomie' s little pee thingy for mine and then put hers back on and that wore me out. She had millions of guests helping her every step of the way and I didn't have anyone and think I might have been harbouring some envy along with some DANG IT attitude. :mad: :eek: :( :rolleyes: Geez, her sister went in the shower with her for hours, shaved her legs and everything and I just wanted someone to put the toilet seat down for me. I did like my roomie. Retrospectively, I was just admittedly green-eyed. You know come to think about it I did have my angel , Atlanta Pat's wife, Patti, who sincerely wanted to help me ...... I just couldn't imagine asking my brand new friend to come help me pee-pee. I know in my heart she would have though!! That is how sweet she is!
I was strong enough to sit up 99% of the way home (6 hours worth) and upon arrival at midnight was taking my shower ...so you know I could potty all by myself too. I have a thing about independence too! :D
Debbi
Having a hard time sleeping tonight, can you tell?
 
Which Valve

Which Valve

Well, I hope that your surgeon will make a decision for you if you are unable to choose. They are after all the professionals. I was horrified when they told me it was my choice of valve that they would put in unless they found something that meant otherwise. I have no expertise of valves :( how am I supposed to know. I had no worries either way about warfarin or reoperation, so that was not a factor. I did ask if I could cop out and not express my choice and they were not too impressed with that suggestion. In the end I was in theatre and they had injected me with knock me out drug and asked once again. I still did not know. Apparently I did reply, but had no idea what I had said until I asked someone upon waking again.
Turns out it's faulty anyway. Ho hum...................

Wishing you all the very best for next monday.;)

Lotti
 
Hi Peg!
I went to Cleveland too and was very happy with my care there. Regarding valve choice, I can understand your feeling somewhat removed from it since it's such a remote possibility, but, in the very unlikely event that it happens, I know I would feel better having had an active part in the decision making process. Personalities differ, but for me, there were so many things I had no control over during and after the surgery, it would have been hard to have my valve chosen for me too.

I'm not sure how old you are (your profile says retired, but that can cover a lot of years!:) ) or where your bathroom is in your house, but in most cases people are able to (and encourage to) get up and walk around enough to get to the bathroom by themselves as soon as they are off the catheter (if I remember correctly, this is was the second day after the surgery). Walking is an important part of the healing process because it helps clear fluid out of the lungs, gets the heart back into shape, reduces body aches, and just makes one feel more human. You'll receive detailed instructions at the Cleveland Clinic based on your specific situation, but I'll bet they'll want you up walking! Best, Kate
 
Peg,

When I went in for my first OHS, my surgeon was so sure he could repair my valve that we didn't discuss valve replacement options (not that there were all that many in 1980). I came out ticking.

In retrospect, I think it unlikely I would have chosen differently because I did not know I would need 2 more surgeries. I believe my surgeon made the choice he felt would prevent additional surgeries. Avoiding more surgeries was the goal back then although it seems to be changing now.

If you trust your surgeon, there is nothing wrong with letting him make the choice. Just because there are many options, doesn't mean you are forced to decide; it just means that you can.

You have so many things to concentrate on that if making a valve choice is taking up too much of your time, leave it up to your surgeon and spend your time on other things.

You will be past the "dependence" stage very quickly so try not to worry about it. The good thing is for the first week or so you won't care that you are weak. You will be happy to have others around to help. I know it sounds impossible right now but, trust me, you will be fine.

Take care.
 
PegB said:
Is it OK to just tell them to select whatever they think is best for me? I'm sure I can deal with whatever decision they would make, from cows, pigs, ticking, Coumadin, whatever.

YES! I had a very hard time making a decision. You are paying the surgeon for their expertise. They do this every day. If you can truly deal with any type then let the surgeon make the choice for what he feels will work best for you. I got a tissue (porcine) valve at 39 because a reop didn't bother me and the surgeon knew this. When he got in there and found the aorta was not as bad as originally thought he put the tissue in instead of the expected mechanical.

Don't worry about "being as weak as a kitten" the day after surgery I was getting up out of bed by myself and walking around. Be as stubborn as possible and refuse to give in to weakness. (disclaimer for all the PM's about to be sent to me for that statement - yes I know everyone has different results after surgery)
 
Peg,

Wow! You must be both nervous and somewhat excited just to get this thing done and be able to move on! Of course, I'm just "in the waiting room" for who knows how long so I can't give you any advice from personal experience. My 2 brothers had their mitral valves replaced with a St. Jude. One had it done 16 years ago (he is 56 and is an avid powerwalker and even in marathons) and the other 8 years ago (he is a firefighter and EMT) and they are still going strong. However, things keep changing (for the better of course) so I would think since you have the king of mitral valve fixing he should be able to advise you well.

I've got you marked on my calendar! Can't wait to hear all about your "vacation" to Cleveland. Rest, relax and know you are in good hands. They will take good care of you.

Keep us posted!

Jane
Buckeye in MI
In the waiting room...
MVP/MR
Moderate to Severe
6 month check
 
Being ready

Being ready

One thing I learned in the military is that the best way to avoid a problem is to be ready for it. I'd make a valve choice!

Tom in Cincinnati
 
Hi Peg,
If you truly don't have a leaning, or a bit of a gut instinct on what valve you'd want to end up with, then I'd let the surgeon choose.

Best wishes!
 
Great Post, Peg

Great Post, Peg

Wow... that was like a breath of fresh air! I hope I'm as relaxed as you are going into pre-op!

Just a couple of thoughts...

PegB said:
Is it OK to just tell them to select whatever they think is best for me?

It's probably my conspiracy-theory side speaking here, but I'd want to at least make sure I didn't get something experimental that they may be trying to prove is the greatest thing since sliced bread... I'd want to make sure I wasn't inadvertantly signing onto some sort of FDA clinical trial or something!

PegB said:
I'm just not good at DEPENDENCE!

Better "dependence" than "Depends"... if you know what I mean... :D
 
Peg,
I am also in the waiting room so can't adivise you on surgery. I do want to wish you the best of luck. Will be waiting to hear from you after surgery. God Bless!!:) :)
 
I was told I had an 85% chance of repair, and I spent almost all my energy pre-surgery agonizing over the "backup plan". I didn't feel any pressure, but my surgeon was definitely "nudging" me in the direction of an ON-X valve. He did, however, present all angles and made a pretty good case for any type of replacement - which I appreciated. I would guess Cosgrove would do something pretty similar. Keep in mind, the vast majority of people who have valve surgery are not on this website and probably know very little about valve choice. I would say that the most comforting thing is knowing that your heart will be working 100X better, regardless of what you choose.
 
Congrats on the date! I think having that at least you have some time to plan.

First off.. I too was feeling pretty good and didn't like knowing that I was willingly going to make myself feel horrible!
but honestly it wasn't as bad as I thought. I felt much much worse with the 2 massive pericardial effusions that I had as complications..

the surgery itself is pretty much a blur..I have windows that I remember but not much and I don't remember pain. And I am the one WHO can not take narcotics..so Pain was a HUGE factor for me.

They will have you up and walking quickly (I was in a chair the same day )
I think instead of the thougth of being as weak as a kitten, it will be more like how quickly you tire..and a good I have to nap kind of tire from simply walking to the bathroom those first days.
But, the energy and strength return quickly.

As for the valve. My surgeon was also very sure he could repair, but I needed a back up for him. I wanted tissue and he said he would recommend mechanical b/c of my age 43
I figured he knew best and I ended up with a repair (rebuilt and a ring)

I hope that you get all the answers you need and have a great pre op visit.
 
First of all, the fact that you feel terrific now and have a 98% chance of a repair is wonderful and means you are doing this at the right time. I know it is counter-intuitive to go have heart surgery when you feel fine, but as my surgeon explained to me when I first saw him in December 2004, at which time he thought I had a 95% chance of a repair, people with the same profile as mine in 10 years either get to a point where they HAVE TO have an operation or they are already dead!!! At that time, he had said that I should have the operation within a year or two. He said to have an echo done in 6 months and then have an appointment with him. I had the echo, but with the fact that my surgeon is the head of surgery and is always off somewhere, and with the fact that this is Canada where we have public medicine (I?m originally from the States), his secretary said I wasn?t going to be able to see him until September (2005). In the meantime in August 2005, I had A-fib, finally went to the ER (because that?s the only way of being seen shortly here) and stayed in the hospital 9 days. If my surgeon hadn?t been going out of town, I would have had the surgery within a week. I actually could have if I had let another surgeon do it, but I knew this surgeon?s reputation. When I saw the surgeon before he left for his trip, he said that the chances were now 80% for repair because he had seen a lot of things on the TEE. He never actually asked me what type of valve I would like if he could not repair it, but I knew he was thinking mechanical because he said that if I have a repair, I would be on Coumadin for 3 months, then low-dose aspirin for the rest of my life. If I had a replacement, I would be on Coumadin for life. I never questioned his decision, because I did not want to face another OHS. Granted, I did not want to face Coumadin for the rest of my life either, and I must admit that seeing that the chances were down to 80%, I of course only saw the 20%!!! I spent the night before the surgery in the hospital so they could prep me. One of the young doctors who works with my surgeon came to the room to have me sign the documents (I felt like I was signing my life away). When I showed my nervousness, he asked me what scared me the most. I said ?Well, besides the fact that I will be opened up like a chicken, the thing that really scares me the most is if a repair cannot be done?. Well, when I woke up (breathing tube and all) at about 7:00 p.m., first my husband said ?The surgery went very well?. I wanted to say, ?Go on, go on?. He then said, ?They were able to do a repair?!!!!!!!!!! I gave him the thumbs up sign and also tried to give a feeble clap with my hands. I did the same thing when the surgeon repeated what my husband had said and also explained that he did a maze procedure (which I knew he was going to do) and patched up a hole in the septum between the two atria. When I saw my surgeon in March, he remembered my doing that!

Actually, they had to do the repair a different way than they usually do since I had a lot of calcium deposits on the valve. However, my surgeon?s great interest is valve reconstruction, and he did a fellowship in the 90's with Alain Carpentier of Paris, one of the innovator?s of today?s repair methods.

In any case, I was so ecstatic to have had a repair, that while I am usually a terrible patient, I could accept anything. As far as the potty situation, I was on the catheter for 3 days (it is usually 2, but I had fluid buildup and they gave me a strong dose of lasix which would have made me pee every 2 seconds, knowing my bladder. I managed to get up and go to the washroom after that.

I just want to say that every day there was improvement until finally less than 3 weeks later I felt totally wonderful!! Anyhow, all this blabbering away to say that you are doing this at the right time, and you will see how fast you will start feeling better.

I will be thinking of you Monday as I have my follow-up echo and another appointment with the cardiologist (which is making me nervous)!!!
 
Peg:

Unless your pre-op condition is really really REALLY poor, you'd be wasting money by renting a commode. Save your money. You'll need the exercise anyway. :)
I was weak, sure, but not as weak as a "newborn kitten," and I've seen plenty of newborn kittens in the last 15+ years. :D
It would be extremely helpful to have someone around for a week or so post-op, if possible, if for no other reason to make sure you do eat, to take you to medical appts and just to be there. I stayed with my parents for 2 weeks after leaving the hospital and I have wonderful memories of that time, despite feeling under the weather at times.

My surgeon gave me a 90% chance of a repair, but despite 2 attempts, it did not work out that way. I had chosen a St. Jude as a back-up.

Going through the surgery gave me a lot of confidence in myself -- I had "conquered" something many people find formidable. Post-op, many people said, "Oooh, I could never go through heart surgery."
Sure, you can, if you know the alternative. ;)
 
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