K
Karlynn
Something always bothers me any time we get into a discussion, no matter how calm or heated, about valve choice and I thought it might be helpful for me to post these thoughts.
When we have valve discussions, I believe we are thinking about it in terms of adult valve replacement. I always feel badly when a Valve Parent posts and has taken one of the other posts as a criticism, or a questioning, of the choices they have made for their child.
It's my belief that valve selection and choice for children (age 0 to when they're out of the house ) is a totally different ball of wax. I don't mean this from the standpoint of anatomy or science (which I'm sure there are differences) but from the point that as a parent of a child, you are making decisions to come up with the best course of treatment possible in order to get your child through to adulthood in the best possible shape, when it will be their choice to decide what is done. This is a much harder position to be in than all of us that are adults making our own decisions.
I'm sure that a lot of the information we present in these discussions is helpful to you. But also understand that we are speaking in terms of adults whose bodies are no longer growing and who probably have less complex anatomy than your child does.
I really highly doubt than any of us here would even think of questioning the decisions you make for your children. You know your child, you are much more aware of what will work for your child and what won't. You have partnered with doctors for hours, far beyond any of our consultations, to make your choices and I don't think any of us would ever begin to think of telling you what you chose was wrong. (And we really try not to with adult valvers, but sometimes it doesn't appear that way.)
I personally, would rather have 100 OHS procedures if it kept my children from having 1. You really are my heroes. If you could bottle your courage and energy - I would buy a case of it.
God bless you all.
When we have valve discussions, I believe we are thinking about it in terms of adult valve replacement. I always feel badly when a Valve Parent posts and has taken one of the other posts as a criticism, or a questioning, of the choices they have made for their child.
It's my belief that valve selection and choice for children (age 0 to when they're out of the house ) is a totally different ball of wax. I don't mean this from the standpoint of anatomy or science (which I'm sure there are differences) but from the point that as a parent of a child, you are making decisions to come up with the best course of treatment possible in order to get your child through to adulthood in the best possible shape, when it will be their choice to decide what is done. This is a much harder position to be in than all of us that are adults making our own decisions.
I'm sure that a lot of the information we present in these discussions is helpful to you. But also understand that we are speaking in terms of adults whose bodies are no longer growing and who probably have less complex anatomy than your child does.
I really highly doubt than any of us here would even think of questioning the decisions you make for your children. You know your child, you are much more aware of what will work for your child and what won't. You have partnered with doctors for hours, far beyond any of our consultations, to make your choices and I don't think any of us would ever begin to think of telling you what you chose was wrong. (And we really try not to with adult valvers, but sometimes it doesn't appear that way.)
I personally, would rather have 100 OHS procedures if it kept my children from having 1. You really are my heroes. If you could bottle your courage and energy - I would buy a case of it.
God bless you all.