Finally have a Date!!

Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
N

nadi

The Dr's ofc finally called with a date for surgery. Monday 5/5
Now I am starting to get a little nervous:D :D

I have a new wrinkle that is starting to concern me. The last few nights haveing trouble sleeping over 2 hrs I wake up wheezing really bad. Meds not working. Is this just normal or should I be calling the Dr? Any suggestions?

Nadine
 
Hi Nadi

Congrats on your date. You will be over the mountain faster than you know. This is truly the worst part of your journey. Try and stay busy this week and it will fly by. Enjoy everything this week, go out for dinner, and have a great time. I will put you on my prayer list till you get home.

As far as the wheezing goes, I can tell you I would call the Dr.---see what they say, can't hurt!!! I don't love "wheezing" and unless you're asthmatic or severely allergic to something, wheezing isn't normal. Sends up the hair on my neck, that's for sure!!

Let us know.

Ev
 
Congratulations

I do hope you don't bite your nails. You'll have to let go of the fear and let God take over.

I would most definately tell them about the wheezing pronto. You may end up with a different date.
 
Hi Nadi-

I'm happy that you have your date. Re: the wheezing, call the cardiologist. I guess your heart is telling you it needs a fix, too.

Take care.
 
Sleep apnea (spelling?) is common in these situations.
I had it prior to both surgeries. I would wake up basically not breathing and struggling for air.

Both times it went away after my valve was fixed.

It's a scary feeling, isn't it?

I don't know if that's what you have or not, but if your cardiologist thinks that is what it may be, then don't worry - it will go away with your improved heart function.

Try to relax as much as you can over the next week. It's easier said then done, but we are all pulling for you!
Kev
 
What really convinced me that the ER doctor had the right diagnosis was when I told them about my difficulty breathing (which made sleep nearly impossible) -- I could only breathe sitting up, leaning forward a little. A doctor called that orthopneumy -- straight breathing. Would sleeping in a recliner help?
 
Pre-Surgery Jitters

Pre-Surgery Jitters

Nadine, here are some things I can share about that completely understandable fright beforehand and how I dealt with it.

1. Try to identify exactly what your fear is. Are you afraid of not waking up? Are you afraid of the potential pain? Are you afraid of the aftercare? Or are you afraid of how everyone else will do while you're incapacitated? Once I identified the specifics, I was able to start addressing those things that alleviated my concerns. What I found after my very honest assessment was that I was worried about everyone else - my business (I own a small business), my elderly father, my recently incarcerated brother, my handicapped daughter, etc. I had only minimal fear of the surgery, I realized, so I concentrated on those things that did frighten me. Spent extra time with employees, lining things up for my dad, etc. This helped immensely.

2. Use deep breathing and visualize your breathing. There are many good books on this but to summarize the best suggestion from Dr. Andrew Weil: "Watch" your breath come in all the way from a few feet away from you, through your nose and into your lung as you inhale and then reverse that as you exhale, taking especially longer to exhale at the end (most of us cut that short at the end). I can use this technique for just about anything that stresses me out.

3. Harness any spiritual energy from both inside your body and from/to external sources. You don't have to be an overly religious person to believe that thoughts, prayers, "vibes", energy, etc. all enter our body and collectively give us more power than we could on our own. I practice both traditional Western religion and Eastern spirituality. You don't need to practice either - just put your faith in the fact that if you open yourself to those thoughts, prayers, etc., you will be stronger.

4. Stay busy. I was SO busy the week before that I found myself just waiting to be able to be laid up and rest! I did not subscribe to the theory that you should "take it easy" before the surgery. I also used vr.com a tremendous amount those last few days - it really helped. Can you work on a room in the house? Anne-Marie and I both fixed up rooms as ?Recovery Rooms? and had fun doing that.

5. Let go. I don't know where you are on the control continuum but I am somewhat of a control freak. That my life was in someone else's hands seemed abominable to me at first. This whole experience has been very good for me for letting go of a whole bunch in my life. I KNEW I had a great surgeon, cardio, anesthesiologist, etc. and that they almost laugh at how routine this is.

6. Visualize, visualize, visualize. Visualize your heart healing after the surgery. Visualize that you will meet some great people at the hospital taking care of you (two nurses and the anesthesiologist made specific trips to visit me just before I left). Visualize that which relaxes you. While I lay on the operating table (more like a board), I visualized a favorite lake I went to as a kid. Can't remember anything from when I was under but I bet that lake came up while I was asleep.

7. Treat Yourself! ? Treat yourself to things this week that you normally wouldn?t. I love Italian wines but I normally pay less than $15 a bottle (I usually only have one glass). In the weeks beforehand I treated myself to $40 bottles. Exquisite, although now it is hard to go back to the cheaper stuff!

I hope this is of some help. If I think of anything else, I'll add it. My thoughts and prayers are with you.

Paul
 
Wonderful news, Nadine

Wonderful news, Nadine

Hey, Nadi - good for you. It's truly better for you that you get this over with.

Are you sure it's wheezing you're having? When I got so bad I was bubbling. Sounded and felt like I was breathing through water (hohoho - to my surprise I was). Speaking to your doc is NOT optional if you can't lie down to sleep.

You know most of my advice since you've been following posts the last few weeks:

- Don't allow yourself to obsess on your fears. Do whatever it takes to compartmentalize and enjoy yourself. This includes tranquillizers or other better living through chemicals.

- Take care of personal matters - will, durable power of attorney, etc. Get bills paid or checks written and bills given to a responsible person to be mailed when necessary. Due to timing of my surgery, I actually bought some birthday and Valentine's cards early (a shock that I thought about them). I enjoyed sending them, too. A little more control and participation.

- Stock up on your favorite entertainments for recovery - movies, books, crosswords (ha - just TRY to remember those words. And this is really good mind exercise), needlework, etc. You won't be going out to get this stuff for a while.

- Have a recliner available that fits you and you're comfortable in. Most folks find them more comfortable and easier to get in and out of than bed. Some even slept in them at night. They provide good support for your incision.

- Please find someone to post for you so we nosy folks will know how things went.

- And lastly, pamper yourself. As Paul said, good food, good drink; go to a spa; get your hair done. Spend some money. Get really nice lounging pajamas so you can feel nice when people come to visit.

Best of luck. You have our thoughts and prayers with you and we'll be waiting for you here on the better side.
 
Thanks All

Thanks All

Sorry I haven't gotten back to thank all of you for you kind & inspiring words(spend money LOL:D :D ) We have had friends in from Louisiana and having trouble finding time to check in. I am so behind in reading the posts

Thanks to all for your good wishes!

Georgia, I think you are right, the wheezing is more like bubbling thru water. That is the feeling I have been telling My PCP for over a year but I don't think it "clicked" until this last episode happened because I also had pneumonia everytime.
I took my lasix tonite(9pm central) to see if that helps, if not I will call the dr. in the morning.

Paul, thanks for some of your thoughts on the fears and I do have a control problem( I like it!! LOL) but I do trust my surgeon, cardio, ect. Also I am worried about my husband trying to care for me. He is disabled from a car accident(severe back problems)
and I am afraid he will try to do too much!! Our daughter has 2 small children and can't stay here(Ciara likes her own bed) so I will have to work this problem out (again the control thing LOL).

Nadine:D
 
Hello, Nadine! Well, you now have your date, and a finish line you can plan around. Time will move quickly now, and before you know it you'll be on the other side of the mountain, and on your way to feeling much better. I can completely relate to the breathing difficulties at night; I can recall sitting bolt upright in a panic thinking I was being smothered. When I laid on my right side there was sort of a crackling/bubbling sound that seems quite close to what you are describing.

The good news, this is all gone now with my new valves. The weird part is I still haven't gotten used to being able to sleep flat on my back -- I got so into the habit of avoiding it that I haven't "unlearned" it even a year later.

My most sincere wishes for a smooth procedure and uneventful recovery!

Johnny
 
Called the Doctor

Called the Doctor

I did call the Dr's ofc today and told the nurse what was going on she spoke to my Cardio and he immediately tripled my lasix and called in potasium(SP). I am starting to feel a little better and I sure hope I sleep tonite.

Now I have a dumb:D question:
1) I get the hiccups nearly daily and sometimes multiple time a day. Any suggestions for after surgery?

I had another question but for the life of me I can't remember it LOL:D :D I hope surgery helps this problem
Nadine
 
That's good Nadi-

Glad you called the doc and the Lasix is starting to work for you. It'll help a lot to keep you comfortable until surgery.

Take care,
 
Hi Nadi,

I'm glad you have a date and now can make some definite plans. I hope you are feeling better and are feeling geared up for surgery. I hope and pray that your trip over the mountain is smooth and uneventful and that you will soon feel like a new person. This will probably be a busy week-end for you but I hope you find some quiet time by yourself too. ...........Betty
 
OH GAWD! HICCUPS????

OH GAWD! HICCUPS????

I'm not sure how bad they'd be - seems like mostly in the diaphragm, so with your pillow gently held against your incision it might not be as bad as, say, the dreaded sneeze (btw: sneezing did NOT hurt me as much as a real cough - isn't that odd?).

If you wake up tonight with sob (or bubbling), call your cardio in the morning - they can get rid of that with an IV lasix pdq. That's what knocked it out of me, and then the oral lasix kept it out.

There really shouldn't be too much hard work for your hubby in helping you. If you need help sitting up from lying down, you need to put your arms around his neck and then he can lift you gently with little strain. If his back is just awful, I suggest you lie in your bed on your back and figure out how to get yourself into a sitting position using your arms and no stomach muscle. For instance, I discovered I could do this by pulling up on my headboard, so I never needed help getting out of bed. If you need to have a tall heavy chair moved next to your bed, or something, do it before you go to the hospital.

And I forgot one of my more inspired pieces of advice: get a two-step plastic stool to put in your shower for about the first couple of weeks - that hot water can make you pretty dizzy; and you DON't want to be afraid to shower if he can't get you out of the shower, because showering's heaven.

Other than getting you up from lying down, the most strenuous activity related to your recovery for your husband will probably be carrying innumerable foodstuffs to you that you'll find inedible.

Spending much? :D :D :D If not, get cracking; if you are, GOOD.:D
 
Showering and hiccups

Showering and hiccups

I just read this on another site regarding showering. It seems to make sense and answer why folks with heart problems and those post surgery sometimes get dizzy in the shower. Raising your arms above the head puts an extra load on the heart because the blood has to be pumped upwards. I guess that would also apply to any other thing you would do with the arms raised. After the heart is healed and function returns to normal, things should improve.

This hint for stopping hiccups has helped me, in the past, if you can stand it. Cut a wedge of lemon and bite into it and suck out the juice. Yucky, but it did work. Rinse out your mouth afterwards so the acid doesn't linger on your teeth.
 
Nadine - as to your husband's disability and your care. I found that I could do most of my own stuff, albeit slowly, without much help. I stayed with my nurse cousin. She and her husband slept late every morning. I get up before the chickens so I had long since made the coffee, read the paper, did my little exercises (gently) and sometimes fixed my breakfast before they even popped an eyelid. The main thing is that you not be alone. I am sure you both will get through this ok.

Your day is coming rapidly and aren't you glad it will be all over by this time next week. The worst part is the waiting, as everybody says.

I want to wish you an uneventful trek up the mountain - watch out for the truck. GODSPEED
 
Showering

Showering

I am lucky when it comes to showering, we have a walk in shower with a built in seat that I use at times now when not "breathing" well.

Thanks for all the suggestions about my husband and my hiccups!

The extra lasix seems to be working I slept most of the night and only a little gurgling this am. YEAH!!!!

I will be going in this afternoon to pre admit. Yucky another needle!

May everyones day be drier than ours! It's been pouring here for the last 5 hours.

Nadine

P.S. Ross, yes I have started biting my nails again since all this started about a month ago. Hopefully I can quit again after I get to the other side of the mountain :D :D
 
Hi Nadi,

I'm just a week out of surgery and boy does it feel good! I'm still pretty stiff and slow, but can get around OK. I'm finding little things, like reaching for a glass in the cupboard, hard to do, but for the most part, by the second day post op, I was able to ambulate on my own (I found out that I have stomach muscles!!) very slowly and carefully.

For the hiccups, I think you'll be ok with your "teddy" hugged close. I made the mistake of watching The Simpson's and Raymond. Laughter might be considered "the best medicine" for some ailments, but I was quite sore afterwards!

I've been taking just plain tylenol since the day after surgery. The first day, I was on a morphine drip and felt no pain at all. The next day when they started the tylenol with codeine, I felt so nauseous that I insisted on plain tylenol. I did fine.

I was mentally preparing my "I'm back" post in my head while in the hospital. It included "The worst thing about heart surgery was..."....but I've since forgotten what that was, go figure!

Best wishes Nadi!
 
Argh, sorry for the repost.....just posted a lengthy post in the post-op forum and lost it somehow. Guess I timed out. Went back in my browser and refreshed, ended up reposting....long story short:)
 
the big day

the big day

Dear Nadi,

I just wanted you to know that I will have you on my heart and in my prayers tomorrow. I will anxiously wait for you to let us know how things went. I hope you have a smooth climb over and paved roads ahead! We'll be in the waiting room waiting to hear..................Betty
 
Back
Top