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The Bionic Duo

Hi everyone

I feel as if I already know all of you as I have been lurking here since just after my husband had his Aoritic valve replaced last January. I have stayed away from joining forums because I am a computer technician with multiple email address and I get a ton of spam mail that I can barely keep up on, but earthlink has come up with a pretty good spam blocker (its almost too good, it blocked a message from my eldest son the other day) so I decided to finally join.

I guess some history is in order. Last December 30 my husband Bob passed out in our living room, and landed up in the emergency room. After questioning, and I assume, listening to his heart (I was hung up in admitting while they were doing this) they called in a cardiologist and he immediately asked him about his heart murmur. My husband told him he had always had a heart murmur and between the two of us we kind of filled him in on his past history. Even I didn't know that he had been having SOB whenever he excercised heavily, I did know that he had colapsed when he was in the Navy (when he was quite young, and long before I met him), and that for the past year or so he had been coming home and sleeping almost every afternoon. Well after an hour or more of extensive questioning the Dr decided to keep him overnight in the hospital, and to run some test on him in the AM. He must have given us some indication of what he though was wrong (I'm a little fogging there, that was one traumatic evening) because when I finally got home I went immediately to the web to do some research.

Many years ago I had been a vocational nurse so I knew the questions the cardio kept asking him over and over had some significance, and when I looked up aortic valve steniousis (sp) I discovered that he had been having almost all the classic symptoms. (I wish I had found this sight, but alas I did not come across it until after his surgery.) He landed up in the hospital for five days, and all the tests they ran comfirmed that he needed a valve replacement ASAP. Unfortunately they couldn't do the surgery until he had gotton over the upper respirtory infection he had, so they sent him home, he came back two weeks later and got a St Jude mechanical valve put in.

In a way I am glad he did not have any time in the waiting room, but I have sure come to realize how lucky he was. First I am rarely home in the evening on a week night, I usually work from 1-10 PM, but the community college I work for gives me so many holidays that I was able to take a two week break during the holidays, so I was home that evening. Second he had been having symptoms for a long time and his murmur was evidently quite loud--his PCP kept sending him to have stress tests--but she never sent him to a cardio to have the murmur evaluated. (That PCP is history, she missed other medical problems he had as well.) When I think of all the times he could have passed out the same way he did that evening I get goose bumps.

Oh I guess I should explain the screen name, I am going in to have my left knee replaced next week, so now we will both have bionic parts. :D Anyway thats about all for now, this is long winded enough.

Joan
 
Joan we don't spam you. You will get nothing from this site except an occasional annoucement and then only if you wish to be notified. You've been hiding too long for no reason. Glad to see you come into the light.

Welcome aboard! ;)
 
Oh I know you don't spam, it is just a managment thing with me, I've been having a hard time separating the email I want from the junk, gets real frustrating--grrrr.
 
So how is the husband doing now? It's amazing what some folks walk around with and don't even know it.
 
Hi Joan-

Welcome to the site. I can understand your vivid memory of seeing your husband pass out. My husband has passed out several times a while back, and it's a very scary thing. He's fixed up now, so hopefully that's just a memory also.

We have a family friend who had a knee replacement over a year ago. What a difference it made in her life. She put it off for a long time, and her leg was held together with a special brace. She's doing very well now, and no more pain.

Hope to see you here more often.
 
Boy Ross you said a mouthful there--I get chills everytime I think about what could have happened. What really get me is that his PCP totally missed the symptoms too--she was part of a HMO and would never make a refferal, he finally had to beg her to send him to a surgeon to get a hernia repaired, and the surgeon was the one who discovered that his acid reflex was being caused by a gall bladder full of stones!!! He switched to a PPO coverage this year, and we are much happeir with the doctors we see now.

Anyway he is doing very well, it was a blessing that he was unemployed at the time so he was able to take his recovery very slowly and go completely through phase II of cardic rehab. (He's lucky, he gets medical insurance through SBC because he took a retirement from PacBell) He is having the usual problems with his INR the doctor keeps thinking its too high and keeps adjusting it all over the place. His dose is only 2.5 so he a slow metabolizer, he went off it for two days for a colonoscopy a couple of weeks ago and it was still in range when he went in for the poceedure!! QAS is sending us one of their new type testers next week, so we'll have some info for you on this real soon. (Sorry I can't think of the name of it right now, will get back to you with that.)

He has a cold right now, but he seems to be getting over it a lot faster than he did before the surgery--URI's would just hang around forever with him before the AVR. I know he has a lot more energy than he did before, but he still has to watch it--his body lets him know when he's overdone it--which he does quite regulary. :rolleyes: :rolleyes: :rolleyes:
 
Hi all

The tester we are getting is the INRatio Meter by Hemosense. We chose this for a couple of reasons: each strip runs a calibration before you can test--the strips are a little more expensive but you don't have to use as many, and Bob's insurance will pay for it so cost is not a factor--also the machine is manfactured right here in the Bay Area in Milpitas CA, figured we could get replacements easily.

I will start a thread in the Coumadin forum once we get it, and let you all know it works out.

Joan
 
Mornin, Joan - and welcom to VR. As you know this is the best site around for valvers. Glad to know your husband is doing well - we never know when we will get a dr who isn't just right.....

Prayers for you on your surgery next week.
 
Welcome Joan, we are glad your here. Glad to see that your husband is doing well. Sounds like he was very lucky to have caught it in time. That is what is so scary about these valves. There seems to be alot of PCPs that don't have a clue unless you have a cold. I know mine from the early 90's didn't have a clue. If he would have treated my blood pressure back then(it normally ran 135-145/105-110) I might not have had the problems I ended up with. He thought it was marginally high and didn't warrant treatment. That is why it is so important for us all to educate ourselves to be sure we are getting the treatment we need. Insurance companies are are whole different set of problems and I won't get up on that soapbox today. Welcome once again and let us know how things are going and please share your husbands experience so that others may learn from him.

Rick
 
Hi, Joan

Hi, Joan

Dittos to all that's been said previously.

I also have a pcp who's history - missed my problems although he saw me repeatedly. In retrospect it seems like my valve trouble and your husband's were the elephants in the livingroom. How could any doc miss them???

My mom's bionic - two hips and a knee. Knee's aren't fun - but if you do all the pt as recommended you'll be SO much better. Just think all the time you can spend here on vr.com while you recuperate!:D

Really would like to hear how your hubby's doing now.

Welcome.
 
Good luck with your bionic knee

Good luck with your bionic knee

Joan:

I've noticed that URIs are scared of me since my MVR. Maybe those germs don't like artificial valves??

Good luck next week on moving toward becoming a Bionic Woman. Don't go jumping on Santa's team of reindeer to help deliver packages. :D
 
Hi Joan--
Good luck on your knee replacement!
I noticed that you live in Danville, which is just down the road from me. I'm in Lafayette!
If I get this valve surgery, I will also be part of a bionic duo, 'cause my husband is also due for knee replacement soon. He has a partial knee replacement, but it is worn out, and he needs a full knee. Hopefully this will be done next month: his surgeon may have a cancellation of a patient who is scheduled for Jan. 14 (she has multiple other medical probs and has had to cancel before). If she cancels, he gets the slot.
I tell him he better get it done ASAP so if I get the valve surgery he'll be available to ferry me around places & bring me chicken soup.

Marge
 
Hi everyone

So pleased to see all your responses--and so quickly I just joined last night!!

I really like Georgia's elephants in the livingroom--its all so true. From the look on the cardio's face when he first listened to Bob's heart in the emergency room I would guess that his murmur was VERY obvious--in fact almost every Dr he ever went to asked about it. (This same cardio got a big smile on his face the first time he listened to his heart after the AVR and turn to me and said "no more loud murmur, just tick tick tick.) From all the reading I have done here and elsewhere it becomes quite clear that many PCP's have little or no idea about how to handle or even recognize cardiac problems. I blame a lot of this on Medical training, and mostly on insurance CO's-- his last PCP through the HMO was concerned about the murmur enough to keep sending him to stress tests, but was real reticent to actually give him a referral to a cardio--I guess she was hoping that the stress test would prove the need for a visit to a cardio--but somehow it
never happened, in fact he never really heard what the results of the stress test were.

Rick--I too don't want to get started on insurance co's. When Bob arrived in the emergency room on Dec 30 he was still covered under the HMO, but when he was discharged on Jan 3 he was covered under a PPO. I cannot tell you all the hours this has cost me on the telephone getting all the charges straightened out. We also have dual coverage (both BC now, but one is out of state) and they can never seem to keep the secondary and primary straight.

To all of you who have sent me incouragement on my impending Knee surgery, thanks. If I said I wasn't just a little nervous to go under the knife I would be lying, but so far everyone who I have talked to has said that I would find an big improvement once the surgery is healed. The Knee has been going down hill for a long time and it was extreamly painfull last winter and I would have probably sought some relief last year but this "little" thing with the SO's heart kind of took presidence. Actually it was all the good referals from his surgeon and cardio that led us to a new and much better PCP--that and having dual PPO coverage has opened up a whole new array of Dr's we can go to.

Ross--is there a spell checker in this forum, I can't spell for beans and I usually really rely on them to correct all my bloopers.

Once again thanks all

Joan
 
Welcome from cold "burr" Chicagoland!!

Welcome from cold "burr" Chicagoland!!

Dang it IS cold in Illinois now! Thinner blood doesn't help.

Welcome, Joan (and Bob) to the VR.COM family. Like you, I didn't find this support site until after surgery-but I've enjoyed every minute of it since. One of the coolest thing about this group is the Reunions. If you ever get a chance to attend one, it's well worth your time to experience a cross-over from cyber-people to real people. I've been to two Reunions since I underwent double valve replacement nearly four years ago now and have met many wonderful new friends. The next Reunion is this fall in Colorado. We Chicagoan's have "mini-reunions" all the time and sure enjoy each other.

Even though I've since gone to a new one, my PCP over three years ago was totally responsible for first hearing my bad valves and sending my butt over to cardiology for tests. The rest is history.

However, life has sure changed since. Other than a few more bruises and annoying bloody noses, I am happy that I got my valve job even at age 50.

If you don't mind my asking, what are your ages?

Well, best of luck on your knee replacement and keep us posted on your progress.

Happy Holidays.
 
Oops--I guess I could have been more informative, but I did that first post last night at work between panicked students trying to do last minute homework that they haven't read the book or attended classes for. (The Community College I work for goes into finals next week, so the computer lab I work in won't be open then.)

Hope this fills in some of the blanks:

Bob is 62 years old and I am a "young" thing of 59. His arotic valve turned out to be bicuspid (completetly unknown to him) and had significant steniosis, and was badly calcified. I guess when he passed out on Dec 30 he was basically suffering from a severe lack of Oxygen. Although he had not outright passed out like that before for a VERY long time, he would experience bouts of woozyness, and came very near to fainting on more than one occasion. When his surgeon came to talk to me right after the surgery was completed he told me about the calcification and stuff he said to me "I'll bet that explans a lot of things", and ideed it did. All the strange symptoms he he had been having, like SOB after vigorious excercise, excessive tiredness, constant URI's, etc all of a sudden made sense.

If you have any other question please ask--I'm a little distracted right now with my impending Knee surgery (they won't let me take any aspirin right now so the knee isn't being very nice this weekend).

Joan
 
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