coumadin and health (PROFESSIONALS)

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zipper2

Well-known member
Joined
Feb 7, 2008
Messages
2,492
Location
Canada
Hoping someone can answer some questions till i get my appointment
in Edmonton as i,ve been casted out by Regina for surgery.
When i had a cyst removed in 1996 and had some complications related to anticoagulation and required a laparotomy i was bleeding so badly in surgery
they had to quickly shut me closed,although they were to perform a hysterectomy they never did. Into 4 days i was turning black all over and they kept saying it was the bruising from surgery noone was aware i was being given 10mg of warfarin daily where after a surgery going back on the warfarin you are started back slowly they said should have been 1 mg not 10,
daily ,so for 4 days 10mg,i noticed things stopping,i cried the 4th day and begged for a catheter i couldn't pass urine,couldnt go to the bathroom,supposedly to go home in the morning the nurse lifts the sheets and gasps out loudand runs away to get some Dr's,im then wheeled to icu where they rip out my staples omg did that hurt:eek: They leave on a gurny in the hallway and till this day i have never thrown up to hit a ceiling so high of yellow bile,thinking on my deathbed they will have to repaint this whole room now,the stain will never come out,they gave me nothing to throw up sowas this the effect of throwing up from being over anticoagulated?
the incision stayed opened after staples were briskly removed.No one in that whole hospital listend to me all weekend on how sick i was and the swelling in my legs was incredible,noone worried.

The next day the general surgeon came in with his training
march band of students and gave me the bad news that i was
given to many mg. of warfarin10 instead of 1 for 4 days into 5th
He apologized mistakes happen and the nurse misread the dosage
I was so incredably ill i felt i was going to die,All i could do was
find the strenght to say --------------i wont say it on here and
i told them to get an ambulance ,call my family dr. i was going home
before they kill me,he told me the general surgeon in all the surgeries
i will ever require in life go to the States where they can keep me
alive,noone can do anything more for me in Saskatoon,I donot know
how high my pt was or inr,he told me cus i was over anticoagulated
that my organs all stoppedand were failing,he telephoned my family dr.
my family Dr. wanted me home while i was still alive,i came home by
ambulance ,which we paid,they didnt even offer to do so much for their
wrong doings and to shorten this up as i get so emotional even typing
about this cus i kick my ass i didn't sue the whole works of them.I
spent 2 months in the hospital on heparin shots before i ever could
take warfarin again.

Ive never ever had any type of surgery since as of all
drama and pain i endured from this, my cardiologist in Regina
has sent a letter saying he doesnt have the surgeon or team
to meet my needs,but hasn't offered any explanation of further results
of my echo what hes going to do as he stated in first letter
that following the echo he would make further recomendations
will guess what he did check into the crime of surgery ,the laparotomy
the cyst,the abuse of over anticoagulating me and hes heard
the worst of what happened to me and has escaped even speaking
to me ay further about it,it's like theres a big secret out about me
and noone wants to talk about the concerns and issues,the
complications this has caused me now that i need a mvr.Now
this is worrying me and i know my immune systems deteriated
alot since the anticoagulant was misused in 97 ,when i got
staphylococus homis bacteremia . It was a late prosthetic valve
endocarditas,the infectious disease was stumped,how i could have
gotten this on top of all i'd gone through,in 2006,2 brothers died
of their issues yet im walking around with endocaritas,no prior
work done on teeth no surgeries no cuts .....no figure on how
the endocarditas. Im not so sure any one's gonna want to do
surgery on this valve replacement if i'm high risk,my red cels and
white cells are generally at a mess ever since my organs got the
knock down I can almost bet this is gonna be a big concern of
my surgery already and if someone wants to do it even. Don't
have an appt date for Edmonton yet,but their should be lots of
questions for Edmonton due to the practice they used to coagulate
me in Saskatoon and loss entirely of my organs almost death.
What has this done to my body ? to having surgeries now of
any kind for that matter? Ive already been turned away by one
cardiologist,the anxiety of what Edmontons is going to say and
the risk in all my body went through then and the effects of a
surgery now.If Regina turned me away,who else is next and can
my body after all that happened to it do another heart surgery.
i'm hoping not too many of you can relate to me on this as i'd
hate for anyone ever to endure this kind of ordeal at any
hospital,and cus i'm turned away by one doesn't mean another
team will wanna do this surgery either and day by day im not
getting better with the mitral valve.This all began friday
when i heard from my family dr and he says Edmonton is a much
better alternative with better technolgy,who can fix my
technology from 1997 though,im a little concerned and cant
any answers right now from Dr's and Regina says i have to
go where it's better equipped.:(

K sorry i made this so long and dragged out but this is whats happening
and im a little concerned with the outcome of all this and thought i'd let
it all out.I can't change the past and whats happened to me,but now it's
time for stopping warfarin again and having a surgery i guess if
somebody wants to take me on,im willing again.I just pray they
know what complications will occur from the past and are ready and able
as i am once again to put my body through hell again which will be harder
with the past mistakes.


zipper2
 
Sorry you went through all of that, but it sounds to be like the perfect malpractice lawsuit to be made. Anticoagulation is not going to cause your organs to shut down. What will cause it is, lack of blood flow. They screwed you up big time and do not want to own up to it probably for fear of legal suits.

What's with this 1mg per day stuff? What do you normally take to keep you in range? I know you've said it, but I forget now. Just everything I'm reading here sounds like NOT ONE PERSON at Regina should be in the field of medicine. I sure as hell would not go back to that place, but I guess you folks don't have many choices with your health care system?
 
The 1 mg. stuff aday Ross was in 97 when they took me off
the coumadin for surgery,then surgery is over ,they start you
back on it after surgery so the general surgeon said i should have
been put back to 1 mg to start they gave me 10mg by accident
into the 5th day of the cyst,lapatotomy surgery,then i had my
organs shut down related to the anticoagulation mistake.


It' now having to go for the mitral valve surgery that the Dr's are trying
to retrieve these files from 97 in Saskatoon to see weather any what
happened will effect my surgery to add any complicated results,they
in Edmonton need this info,and now today Regina has info on all that
happened in 97 but not talking to me because since they retrieved
the info from Saskatoon they don't want to tell me the bad news.
My family dr. says i need surgery quick and hes not fooling around
and has made arrangements in Edmonton where they are prepared
for any unexpected events to happen during my mvr surgery.
My family dr. feels Edmonton is better equipped than Regina,and
now i know Regina would do the surgery too,but my Cardiologist
has put me off in discussing info of 1997,he knows more and won't
talk to me,God knows iv'e tried to reach him on too many
numerous occasions about this.I know Edmonton is contacting the
cardiologist today for information,in the mean time i'm sitting
waiting and don't know where i stand with surgery or who's gonna
do it or when.My family dr spoke to Edmonton today and they
are getting all the collections of past surgeries etc together,so
will be contacting me soon occording to my family Dr.
i'm just concerned now that what happened to me in 97 will
cause some unexpected complications and so does my Family
Dr. so hes sending me to Edmonton where it's not a surprise
to the surgeons if they have to deal with a complication,He feels
Regina maynot be prepared for this.
I'm kind of broken up cus i was aiming for Regina and now it's
further away and just kinda ruined our plans for alot,Makes
difference on closer to home and having this surgery,but that
isn't gonna happen,because of past mistakes made at other
in Saskatoon.....No wonder when they screwed my organs over
they told me never to come back to Saskatoon even for a sliver.
I'm just worried cus of the damage done and now i need surgery
as end result how much of what Saskatoon did to me is gonna
have complication effects on the mitral valve replacement,
No answers yet and the waiting is awful hard,i just don't
wanna turn negative with all of this,still staying positive with
alot of concerned issues on our shoulders right now


zipper2
 
Yeah 16 years ago and not ticking now but it willnot be changed
out ,its fine occording to
regina it's the mitral----not mechanical my own that has gotten to need surgery soon here.the reason mech.isn't clicking is cus the mitral's not got enough pressure to pump it ,it's like a sprinkler goes chchhchc will if turned done you dont hear it cus of pressure down...so Regina says i dont need the mech.changed but who knows what edmontons vedict will be:eek:


zipper2
 
So supposedly when they do the mitral,the aortic will resume
it's missing click and be fine:) I hope Regina is right.


zipper2
 
This 1 mg. crap happened in 97
for last 11 years im on 8 and 9 mg. daily my inr's are fine
to be at 3 and 3.5 it's staying in range it's good

zipper2
 
Ross i've confused you somewhere obviously??

I went for surgery of a cyst in 1997,they here in Canada
take you off coumadin for a surgery,they did me anyway
surgery was done then they did inr and dr concluded i needed
to be started back to i mg after the surgery according to inr
nurse missed the instructions ...whatever and i was given 10 to start back on for 5 days.........end result ...........my organs shut down i started to bleed
internally,

but i had my mechanical valve done in 92 always have been on 8 or 9 mgs
daily with the mechanical now 16 years old ive always taken 8-9 mg daily
the cyst surgery in 97 i was on warfarin they stopped me consuming it few days before surgery ,then restart you back on after surgery

zipper2
 
ok, gotcha now. They should always start you out back on the same dose you were on before. 1mg would have done nothing for you anyway. 10 yeah, I can see where that would be a problem. I just couldn't understand what the heck was with 1mg.
 
oh, poor, poor zipper2 - I feel for you, you must be scared silly!

But I think your family doc is right, you will probably get better care in Edmonton, their facilities are bigger, better equipped, more experienced surgeons etc.

I think also, the more the docs know of your history BEFORE going in, the better they can prepare, there are choices they can make - different anaesthetics, for example, can have different effects on the other organs, and they will choose one that fits your unique situation.

Anyway, good luck ! I will try and post a little more frequently than in the past few months (hmm, I have been MIA for 3 or 4 months now, nothing bad, just busy.)
 
I've been thinking about you, Zipper, and hoping you would post.

If I understand correctly, you should be hearing from Edmonton today or at least this week? I hope they contact you with news they are ready to set an appointment with you to discuss doing the mitral valve surgery.

Good luck. You're in my thoughts.
 
Been thinking about you too, just didn't know what to say. But I am praying for you that you'll hear from Edmonton soon.....real soon.

You'll probably never find out what went on/wrong in '97 besides the over dose. I think you might still be in that time frame for a law suit - which would explain why everyone is keeping thier months shut.

Please keep us informed. We're praying for you.
 
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