E
ericaj
Hi Everyone, thank you all for your input leading up to my appts today with my EP and with my Cardiologist. My EP interrogated the reveal monitor and upped my dose of the Midodrine, otherwise no changes there.
My Cardio appt went well also, each time I see ym Cardio (3rd time today) I get to liking him even more, he is kind, caring, lets me ask questions, listens to what I think and ultimately wworks with me to get things going. It is a group heart center he works in at the Children's Hospital in Milw, WI but he always sees me and never avoids my calls or if i am having a problem he tries to help me. Today he also had one of the clinic NP's with him and I think she is officially apart of our little team there. And I liked her as well, very much.
The lung problems I have are now officialy named and is called: Restricted Lung Disease. He also suspects of of 2 things either Postural Orthostatic Hypotension Sydrome or some other form of tachycardia that I can't remember, but unfortunatelly he said beyond the meds I am trying now there really isnt any really good treatments for either. He also told me of a underlying problem that he thinks is causing everything (heart,lungs,muscles/nerves) but it was a long and complicated word that I can't remember but I know it has to do with abnormal amounts of protein in the blood causing abnormal thicknening of affected areas.
Really tired and although teh Drs. appts this far have went well, and I am happy about that it has otherwise been a bad night. (Long story no good thoughts on it yet)
Will post more tomorrow as I feel up to it.
Erica
My Cardio appt went well also, each time I see ym Cardio (3rd time today) I get to liking him even more, he is kind, caring, lets me ask questions, listens to what I think and ultimately wworks with me to get things going. It is a group heart center he works in at the Children's Hospital in Milw, WI but he always sees me and never avoids my calls or if i am having a problem he tries to help me. Today he also had one of the clinic NP's with him and I think she is officially apart of our little team there. And I liked her as well, very much.
The lung problems I have are now officialy named and is called: Restricted Lung Disease. He also suspects of of 2 things either Postural Orthostatic Hypotension Sydrome or some other form of tachycardia that I can't remember, but unfortunatelly he said beyond the meds I am trying now there really isnt any really good treatments for either. He also told me of a underlying problem that he thinks is causing everything (heart,lungs,muscles/nerves) but it was a long and complicated word that I can't remember but I know it has to do with abnormal amounts of protein in the blood causing abnormal thicknening of affected areas.
Really tired and although teh Drs. appts this far have went well, and I am happy about that it has otherwise been a bad night. (Long story no good thoughts on it yet)
Will post more tomorrow as I feel up to it.
Erica
Another true like we said the other night what would our Drs. do with 2 of us?? 
