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J

jenny

Hi everyone, I have been on this site a few times and you guys are just great. I have learned so much from all of you. First let me say thank you. In 1997 I have a mvp repair. Off and on through the years I have had a few bouts of a fib. I am now on coumadin. Since February, I have been to the hospital about 6 times in a fib. I have been converted back to sinus rhythm each time. The drs. have tried putting me on anti rythmia drugs but I get very very sick with them. So I cannot take them. Period.
The doctors want me to have a ablation which I realize only works 50 to 70 percent of the time. However, when I was in the hospital for a fib yesterday, a Surgeon that knows a friend of mine came down to see me. I told him about the a fib episodes , now 6 times in 5 months and I told him about the repair on my mvp. The repair started to regurtutate about a year after the repair, it is now at moderate level. The surgeon who did this told me that it would need doing over again proberly in 5 years, it is now 7 years since my operation.
So telling this surgeon, that I met yesterday in the emergency room he suggested that he would take me as a patient to do the Maze proceedure and he would replace my valve with a pig valve. I am 58 years old. I come from Rhode Island and I would feel better having this done in Boston. (My sister had the same thing done last year and is doing great) I have made an appointment to see her Surgeon in August. I guess what I am asking you all is even though the valve as of yet is not in need of repair or replacement but will in the future, does not need to be fixed YET. I do need the Maze proceedure, but do not want just the Maze done and then go back in for the third time to have the valve fixed. I am wondering what your feedback would be to this. And I am also wondering if anyone here has had this done? If so could you please tell me what the results were? I so appreciate any information or advice that you could give me. Thank you so very much. Jenny
 
Hi Jenny,
If you would prefer having your surgery done in Boston, you should consider sending your records to Dr. Lawrence Cohn at Brigham and Women's Hospital in Boston. He is one of the "best" and as he has recently done with Randy, I am sure he would be willing to take a look at your records and give you an opinion. I am not knowledgable as to whether or not he does the Maze procedure, but he does minimally invasive valve replacement and is partial to the Edwards bovine valves.
 
Reoperations

Reoperations

Hi Jenny, I'm sorry to hear that you've been going through such an upseting time. To me it was as simple as that. I had my first MVR(replacement) in 1975 at the age of ten and I thought that was it. Then at fourteen, the cardio I had at the time examined me and told my mum it was time for the next one. I was in shock and broke into tears. Well, I was then convinced that there had been a wee problem but everything would be OK after the surgery. I went into hospital after my birthday party. Many years passed and one day, during one of my visits to the doctor while living in Scotland, I asked if I would ever need another surgery and his answer was that my valve wouldn't last as long as me and I got it. I was very angry because noone here in Brazil had told me that. I took a good while to come to terms with that and in 1995 I had my third replacement. Well, now that's me again, going through the same old thing once more except this time I want to get my hands on all the information I can in order to be prepared for it when the time comes. A week from today I'll be going to see the cardio which has been a different one for ten years now, and I admit that I feel quite aprehensive about what I might hear. I know I have the problem again, but I'm not ready yet and hope I'm still OK. I know that what I've just told you has got noghing to do with the information you're after but I just felt like sharing my experience with you anyway. I hope everything works out for you and that you can have a break from these A fibs. Take care!

Débora from Brazil
 
Maze Proceedure

Maze Proceedure

I am wondering if anyone here has had the Maze Proceedure? And if so , could you please tell me where you had it done. I would appreciate any information you could give me. Thank you. Jenny, and thank you for answering my other post :)
 
Jenny,
here's a post from whiterocks - you mighjt privately email him and also put in a search for "maze procedure" and you will come up with all posts on it.


whiterocks 06-11-2004 11:08 AM

--------------------------------------------------------------------------------

Update from Whiterocks

Hi everyone,
I'm still here and still feeling pretty good. I'm 11 weeks post op and have started riding my bike about 6 miles a day and slowly working up. I was in A-Fib after surgery and was put on Didg and Motropolol to help bring my rate down. They did take my rate down to about 40bpm. They took me off the two drugs and will monitor me in two weeks. I can get my rate up to about 74 when riding my bike and feel good. Everything else seems to be going well for me. I have very little sternum pain if any. Its a little tender when I sneeze or cough. I have days when I'll sneeze 3 or 4 times in a row 5 or six times a day, thats rough! I will keep you all informed as to how the Maze procedure works out for me, I'm confident that it will. Anyone wanting to contact me please feel free. I'm here for all of you.
 
Maze

Maze

Jenny,
Most Surgeon agree that it is better to do everything
all at once, rather then separate operation. Unless there is
a high risk with replacement. There are many Maze sites
on the internet- here is my favorite;

http://www.mddietofutah.com/wwwboard/index.html

Had my Maze and other valves done at CC 6 weeks ago. If you have a specific question- PM me. One thing- Don't wait! It will be harder on your heart and less chances for a
complete success.
 
Maze

Maze

Gee Thank you all so much for answering me. I really appreciate it. I am going to look up all the information you sent me. I am still in afib and not doing to good, and like I said before I hope the valve I had repaired in 97 is causing this so both the Maze proceedure and valve can be done together. One of my other children, I have 3, one in Lackland Air Force Base, Texas, the other California, and my angel who I know will watch down on me.
My son from the Air Force is coming home in about a month, so I have to be very very brave for him. I sure don't want him going off to strange lands to worry about his (really scared) mom....Gee , I knew I should have been an actress :cool: ...Thank you all...........Jenny
 
maze ....rcb

maze ....rcb

thank you thank you .........iIfeel so much better after reading what you sent to me..........thank you so very much.Jenny
 
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