Back in hospital for a night (long, sorry!)

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Gemma

Well, don't worry, it gets better, but Jim's had a bit of a setback. He had been doing really well, had a couple of episodes last week where his heartbeat went really fast but it sorted itself out in about 15 minutes so we didn't worry too much about it. I spoke to him on Monday afternoon and the same thing was happening but he said he was going to get some rest.
I had considered going to the cinema that evening with my mother but the showing was quite late so we decided against it.
I was sitting watching TV with my parents, went upstairs to the bathroom at about 8pm and decided I'd check my mobile (cell) phone. Now I'm not sure if this is something you have in America, but here there's a text message facility, kind of like instant messaging to phones. Great for everyday stuff, not so good when it says (and I quote) :"DON'T PANIC!! - taking Jim to A&E his heart rate is up & he needs a pill, not available til 9pm from doctor". No doubt you can all guess what I did next - I panicked!!! The message had been sent at 7.15, so I figured they'd been at the hospital about 30 minutes, rang his house but nobody was there. Decided to go down to A&E, where I found his dad (by this time it was 8.15ish) about to ring me.
I got in to see Jim where he told me he'd had 3 injections which had stopped his heart and had been meant to get it going in the right rhythm, but none of them worked. He later told me he'd really wanted me there. I really wanted me there too but as I didn't know I couldn't be. The moral is, never send important information by text message!!
Anyway, they then put him on a 1hour infusion of amioderone - got his heart rate from 166 to 142 in that time, then another 24hour infusion. He was taken up to the cardiac care unit, and remarkably the lovely nurses got me a recliner chair and blankets and let me stay the night!!! I know it sounds ridiculous to be happy about something like this but that was the best thing anyone said to me all day!
Turns out it was an atrial flutter (same as fibrillation?). He was back in sinus rhythm by about 4am. They've now put him on beta-blockers, not sure for how long, which will both slow his heart down a bit as his heart rate was still a bit on the high side (apparently - 80s resting) and also control any arrythmias. I'm not sure how long he has to take these, but presumably it will be monitored and adjusted/stopped when necessary.
The upside is that he also had an echo (ultrasound) of his heart, and incredibly after only 4 weeks it is back to normal size (4. something - 3 or 5 I think) - the left ventricle was about 7cm pre-surgery. Even the surgeon did not think this would get back to normal EVER!! So we did have some good news.
Jim was discharged last night and is now back home, taking it easy like he should have been before! He's feeling a bit worried about being at home, any advice would be greatly appreciated I'm sure - I said they wouldn't let him out if they thought it was going to happen again, but it's a scary time.
Gemma
 
Hi Gemma-

Sorry to hear about Jim's aflutter. It sounds like the docs think meds will do the trick. I hope so.

Joe had an appt. with his card. a couple of days ago and was in aflutter (fast rate with regular beats, afib is fast rate with irregular beats, Joe can have one or the other at times). But his heart rate wasn't as high as Jims was, it was about 108.

His card also put him on Atenolol, a very, very small trial dose because Joe has many problems with similar meds. Today his heart rate was 80 at rest, so even with a tiny dose it's better, not perfect, but better.

Our guys are "delicate", but don't tell them that! :)

Take care,
 
Hi Nancy,
Thanks, you've just answered 2 questions! Jim was definitely in aflutter, regular but fast. And we were wondering about another young bloke on the ward whose heart rate was about 140 also but very erratic, I'm now assuming this was afib - it was still racing when Jim was discharged.
Jim's also on the lowest dose of sotalol (beta-blocker), twice a day, and going into the ward again tomorrow so they can check his INR (didn't believe us when we said the surgeon set the target at around 2, they want it 2.5-3) will be taking the booklet, discharge forms, etc with us to prove we're not crazy:p :p . I suppose they'll also check he isn't having any side effects from the sotalol at the same time.
Hope Joe's doing OK - don't let on the guys are "delicate", it'll upset decades of women's lib:D :D
Gemma.
 
Gemma,

Sorry you had a "scare,' but it sounds like everything worked out. In the US we sometimes call what you went through a "bonding experience" (usually with a hint of sarcasm).

As for men being delicate... I'll be the first to admit it! Especially my ego! But I'm also delicate in the sense of chosing words and actions, so, in the end, it's probably a good thing...
 
Hi Gemma-

Perhaps with Jim's aflutter they would want his INR a bit higher. Those fast rhythms are cause for a little more anticoagulation caution.

Joe's should be around 3 also.
 
Gemma,

I had an episode of a-fib two weeks post surgery. I was put on Rythmol and Coumadin. I had a mitral valve repair.

I am very conscious of my heart rate and rhythm now. Luckily I have had no further episodes of a-fib but at times I feel my heart beating faster and I sit down and rest.

A person's heart during surgery has been "royally upset" and after surgery it is just trying to "right itself." I look at these arrhythmias that way. They will pass as the heart gets stronger and repairs itself, most of the time.

Tell Jim to take it easy and when he feels his heart doing "funny things" to kick back and rest. Time is on his side. There is no rush to get better, because recovery takes its own time, I have found. :)

Thinking of you both -

Christina L.
 
Hi again,
Jim had his INR checked again today and it's up to 2.4 which everybody seems happy with!
Christina - he's been worrying about the "funny things" his heart's been doing since he left hospital, so thank you for your words of wisdom. He's just nervous about it happening again as he doesn't want to go through the trauma of having his heart stopped again - VERY NASTY!!! Especially as it didn't even work!!!:eek:
Has anybody had any experience of a dull sensation in your arms? Like a dead arm, as if you've been hit in the arm - lasting about 5 minutes??? And he's still got a sore neck and shoulders - any tips apart from baths and massages? Think a medieval rack might do the trick if anyone's got one going spare:D
 
Alot of us around here have had to go through cardioversions for arrythmias. It is no fun but it is worth it when it works. His heart might still be irritated from the surgery and it is quite possible that these problems will go away so try not to get discouraged. Over-all it seems like Jim has done really well.

Do you have any wedding plans in the near future? Don't worry, I won't tell anyone.....:) :) :)
 
Hello Gemma,

The Cardio's act like arrhythmias are a pain in THEIR Neck but we all know how disconcerting they can be. Hopefully they will just 'go away' a couple of months post op (or so).

I found the 'arm cycle' exercise machine in Cardiac Rehab REALLY helped to loos my shoulder, chest, and back muscles.

And YES, MASSAGE works wonders when they act up. Better than waiting for pain pills to kick in. I have an old 'disk vibrator' that anyone can use. It provived almost immediate relief.

'AL'
 
Hi Gemma,
Sorry about your scare but glad evrything is better now. One of the side effects of both the surgery and some of the drugs I am taking have been muscle pains and spasms. I have had a couple in my arm,s that were quite nerve racking, seemed like may the type of "dead arm" you described and lasted probably 1 to 2 minutes, but seemed much longer.\
Steve
 
Hi,
Thanks for all your replies - I'm sure I don't need to tell you how much better it feels to have someone to share these worries with who has actually experienced it, rather than parents/friends/medical staff who are helpful and sympathetic but maybe don't understand completely.
Steve - I think Jim's been having the same kind of dead arm experiences as you, and having read his medication leaflets again "numbness" is listed as a side-effect.
Al - We're still waiting for an appointment to come through for the cardiac rehab programme, but I'm sure when Jim does start it he'll start to loosen up a bit more. Walking alone helps a lot - we've been for a couple of walks over the weekend, 2 miles each day, and I was tired at the end of the second one!!! Jim cheerfully said "well we're on a par which is good" For him maybe, but surely I should be fitter having not had OHS 5 weeks ago:eek: :eek: Must work out more!!!
Betty - interesting question, not something we've really talked about YET. ;) Who knows what might happen though...;)
Now we're still having some problems with administration - when Jim went for his INR check today it emerged that the clinic had no idea he'd been to the CCU ward to have it checked on Thursday (in spite of the CCU nurse ringing the clinic to arrange today's appointment:confused: ). Really have to keep your eye on these things to make sure everyone's up to speed on dosage changes, new meds etc. No doubt it'll all fall into place eventually. I'm being cautiously optimistic for the time being, and Jim's being a much more patient patient now than a week ago, and feeling better as a result - much better to feel good with a slight reserve of energy than do too much because you feel good and end up exhausted!:D
Hope everything's going well for everybody,
Gemma.
 
hi gemma!
what a scare! i know that although afib/flutter is not really life-threatening ()provided that you are on blood thinners within a certain amount of time after they start), but it is still frightening.
while away in aruba, joey had a very salty meal and went into afib.
he came out of it on his own after a few hours, but it was still scary.

i'm glad that things seem to be easing up with jim and that he is doing better.
please let us know how he does and how his "numbness" is.
all the best, sylvia
 
5 weeks today since Jim's op!

5 weeks today since Jim's op!

Hi,
Jim went to see his doctor today who put his mind at rest - apparently the numbness is largely attributable to the surgery and is probably a trapped/bruised nerve which will sort itself out. The other stuff - rash, puffy eyes (think I mentioned this in a post in Heart Talk) is because of the amioderone he had in hospital last week. The ramipril probably won't be for long, beta blockers are more of a wait and see situation. He's also got some antiobiotics just in case the bottom of his scar is infected at all (not healing very fast because it's where he bends), although his doctor thought it looked OK. Better to be safe than sorry.
Also, interesting fact I learned today - apparently when a person lays down on one side their heart beats faster than the other way because of the way adrenaline gets into your heart (???) - lying on your right slows it down, lying on your left speeds it up, by a difference of about 10 bpm. Fascinating stuff!!!
Jim's doctor seems to be the only person who's had all the reports and referrals so far, had it all on his computer records about going into A&E last week and everything (the anti-coag clinic didn't know anything about it, or even that his warfarin dose had been changed!!). Nice to know someone's up to speed.
Jim's bought himself a new mountain bike frame as a five-week present! Gives him something to focus on, and it's very LIGHT!!!:D He's very generously said I can have his old (HEAVY) frame, so when he's feeling up to it I can chase him uphill and coast past him downhill:D :D The things we do for love!!!
Will keep you all posted, got to fit a bike wheel now!!!
Gemma.
 
my heart goes really fast when i was in the hospital and it makes me nervous cause i can hear it plus it jars my whole chest. it is nothing for my heart rate to be 150. they put me on some med called Tambacor. They may need to put me on something else . I will find out tomorrow.
 
Gemma

I'm glad to hear things are going better. That is interesting about the difference in heart rate depending on which side you lie on. I had never heard that before.

You are so supportive. It's good of you to take that heavy bike and use it.;) You better get practicing on it for the days ahead!!!

Heather
 

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