Atrial Septostomy

[Leah30]

Hi

I was wondering if anyone has had this procedure done and what it was like. I have primary pulmonary hypertension and my specialist is wanting me to have it done.

Thanks Leah

 

[Ross]

Hi Leah and welcome to the forums.

Give it some time, someone will have some input here. Until then, I'll be the welcoming committee.

 

[Leah30]

Hi Ross

Thanks for the welcome.

Leah.

 

[Ross]

Bumpity for Leah. Anyone able to help on this thread????

 

[Nancy]

Hi Leah-

Just wanted to welcome you to this wonderful site. My husband also has PPH, as well as several other cardiac problems. He's on Tracleer for his PPH, so far it is working OK.

For those who don't know what Primary Pulmonary Hypertension and Atrial Septostomy are, here are some informative links:


Atrial Septostomy description:

http://www.ncbi.nlm.nih.gov/entrez/...ve&db=PubMed&list_uids=10498139&dopt=Abstract

Overview of Primary Pulmonary Hypertension:

http://www.emedicine.com/ped/topic2531.htm

 

[hensylee]

Leah, have you checked into Dr Rich's site in About.Com - cardiology/heart disease. He can answer any heart question. He's an EP and answers questions (no diagnosis, tho) in a short time. Good luck