Any TAVR patients here?

[canon4me]

Curious what your TAVR experience has been like, how you are getting along and how long has your surgeon estimated your TAVR valve might last. Thanks for your response!

 

[epstns]

Is this a question "for information" or are you having trouble with your CE pericardial valve? (I ask because I, too, have a CE pericardial valve. . . )

 

[canon4me]

My BAV was replaced with a bovine valve about 3 years ago and my Cleveland Clinic surgeon estimates it will get me 20 years down the road which I think is overly optimistic but I hope he is right. The surgeon said TAVR surgery will be commonplace by that time and not just for high risk patients but mainstream patients as well. I would just like to hear what the experience has been like and how well the patient believes the valve functions etc.

 

[Paleowoman]

I don't think anyone here who had had tissue valve has had a valve in valve TAVR - it's far too early days in the 'history' of TAVR. Currently it's just high risk patients who have TAVR - no long term studies have been done on any of those. I have a tissue valve and I chose it knowing that I would need replacement surgery one day, traditional replacement. I may be having mine replaced sooner rather than later and I know it will be not be a TAVR - I wouldn't want a TAVR anyway as there's no longer term history of it yet ! Things improve all the time in the world of medicine though so who knows what things will be like in 20 years !

 

[neo]

Interesting you say it's far too early for "valve-in-valve" tavr procedures. Edwards had their Sapien valve FDA approved for valve-in-valve today! Of course, like everything starts out, it is just approved for high risk right now...

https://finance.yahoo.com/news/edwar...?.tsrc=applewf

 

[Paleowoman]

Interesting you say it's far too early for "valve-in-valve" tavr procedures. Edwards had their Sapien valve FDA approved for valve-in-valve today! Of course, like everything starts out, it is just approved for high risk right now..]

But who's had a valve in valve TAVR ? How many people ? And how long have those people lived afterwards ? No one on here has had valve in valve TAVR, never mind only one or two regular TAVR.

 

[neo]

FDA would only approve it if there were studies to back it up. I am sure someone could find the data

 

[canon4me]

Cleveland Clinic told me they are using TAVR in a study on a small group of average risk patients.

https://www.fda.gov/NewsEvents/News...ivery&utm_medium=email&utm_source=govdelivery