T
tarikemre
Dear all,
I am 32, male, from Istanbul, Turkey
I had an OHS in jan. 1998 ..at that time, my bicuspid aortic valve was tried to be repaired....which took me around 5 years ... in Sept. 2002, I had my aortic valve replaced with a medtronic mechanical valve (21) ... I was feeling so great for the next 18 months after my AVR .. however, since march things seem to chance slowly.... I sometimes accuse myself thinking maybe I pushed so hard at the gym (although I did not do anything excessive) but whatever the reason is, my valve seems to get limited in opening .. may 2004 echo showed an estimated opening area of 1.0 cm2 and the one I had last week showed 0.8... aortic gradiend was 30(aver.) and 50 (max) in may, and now it is 60 in max .. this is the result that I got from my cardio last week .. I also had another echo done right after that which showed a result of 30(avr.) and 50 (max) ... which seems to be the same as the may 2004 echo .. (this one did not show any valve area measurement) ...
both echos I had last week show normal hear functions... but the second one indicates increased thickening in intraventricular septum to 13.4 (normal 9-11)
My cardiologist said he wants me to meet my surgeon .. I will meet with him on 27th.. he also said that this is not the situation expected from my valve ..which also dissapoins me a lot .. I remember a thread here about a friend (RobNYC) who had 100 gradient maximum in an echo test ..(with the same size "21" valve) but the result he got in cath was 50 in maximum so his planned OHS were cancelled ... I try to think in a positive way and hope that my echo result is also showing more than the actual situation ..
I am not symptomatic ...can walk with a speed of 5.6 - 6.0 km for an hour in cardio .. but I also feel that I am not as good as I was last year ..I dont know whether this is psycological or because of the stenosis... but really dissapointed to see the decreasing level of function of my valve ...
while waiting to see my surgeon in a couple of days, maybe it is too early but as the worst case scenario, I am trying to prepare myself for a possible 3rd surgery since the valve opening area seem at a very critical level,
I have seen many friends here who had more than 2 OHS's .. their words/experiences really give me strenght for another possible war to come with destiny ..
I am 32, male, from Istanbul, Turkey
I had an OHS in jan. 1998 ..at that time, my bicuspid aortic valve was tried to be repaired....which took me around 5 years ... in Sept. 2002, I had my aortic valve replaced with a medtronic mechanical valve (21) ... I was feeling so great for the next 18 months after my AVR .. however, since march things seem to chance slowly.... I sometimes accuse myself thinking maybe I pushed so hard at the gym (although I did not do anything excessive) but whatever the reason is, my valve seems to get limited in opening .. may 2004 echo showed an estimated opening area of 1.0 cm2 and the one I had last week showed 0.8... aortic gradiend was 30(aver.) and 50 (max) in may, and now it is 60 in max .. this is the result that I got from my cardio last week .. I also had another echo done right after that which showed a result of 30(avr.) and 50 (max) ... which seems to be the same as the may 2004 echo .. (this one did not show any valve area measurement) ...
both echos I had last week show normal hear functions... but the second one indicates increased thickening in intraventricular septum to 13.4 (normal 9-11)
My cardiologist said he wants me to meet my surgeon .. I will meet with him on 27th.. he also said that this is not the situation expected from my valve ..which also dissapoins me a lot .. I remember a thread here about a friend (RobNYC) who had 100 gradient maximum in an echo test ..(with the same size "21" valve) but the result he got in cath was 50 in maximum so his planned OHS were cancelled ... I try to think in a positive way and hope that my echo result is also showing more than the actual situation ..
I am not symptomatic ...can walk with a speed of 5.6 - 6.0 km for an hour in cardio .. but I also feel that I am not as good as I was last year ..I dont know whether this is psycological or because of the stenosis... but really dissapointed to see the decreasing level of function of my valve ...
while waiting to see my surgeon in a couple of days, maybe it is too early but as the worst case scenario, I am trying to prepare myself for a possible 3rd surgery since the valve opening area seem at a very critical level,
I have seen many friends here who had more than 2 OHS's .. their words/experiences really give me strenght for another possible war to come with destiny ..
