A brief history of dwfreck (Dale).

Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
D

dwfreck

Hello,

I would have submitted this to the "waiting for surgery" section of the "personal stories" site, but it's going to change to a "had surgery" situation in the next few months, so I'll put it here.

Besides, I'd like to get all of your help polishing the story...

I'm 39, male, caucasian, married, two kids (no dog, yet).

I was born with a bicuspid aortic valve. My parents were quite surprised when they took me to the peditrician for a cold when I was one year old, and he kept listening to my chest, and eventually asked, "Does he ever turn blue?" I was an "active" child, and the answer was an emphatic "No."

For most of my life, I've been told that my valve had stenosis, and that it needed to be checked regularly, but that it didn't limit my physical activities. At some point, my valve developed insufficiency as well as stenosis, but, again, it was not a limiting problem. Then around 1994 I was told to avoid high-exertion activities like tennis and racquetball. Then around 1999 I was told I would need most likely need surgery in three to five years. Over that time, various medical professionals have marveled at the sound of my valve through the stethoscope (apparently, it whistles Dixie!).

I've just recently started to have mild chest pain and shortness of breath during "normal" daily activies that require a moderate amount of exertion, like mowing the lawn, or running across a baseball field with my six-year-old. That worried my cardiologist and I. Several echocardiograms, one stress test, and one angiogram later, my cardiologist told me that I would definitely need surgery, preferably within the next two or three months. The angoigram indicated that the insufficiency is more serious than we had thought from previous measurements. That was last month, so I'm looking at surgery in January or February.

I've got a meeting with a surgeon tomorrow, December 2, 2003. I'll post more details as I get them.
 
Dale,
With my limited exposure to the site, I'll say you have definetly come to the right place. Good luck and keep us informed because we are all learning from each other. Dave
 
Dale, your story is so very similar to mine, except that I got about seven more years out of my bicuspid valve. I went downhill rapidly in the months before surgery, and I have felt so very much better since. I look forward to hearing more details from your meeting tomorrow.
 
Hi Dale and welcome to this site. There is a wealth of information and great camaraderie here. Make yourself at home and, especially during these months before your surgery, take of advantage of a whole pool of people who truly understand what you are going through.

You will most likely feel better (after you heal up from your valve surgery) than you have felt for years!
 
hi dale!
welcome to this wonderfully supportive site. you've come to the right place.
my husband joey also had stenosis and insufficiency. the cardio told him that in the end it will most probably be the stenosis that will "do him in" _ he was right. the year before surgery, especially the 6 months before, his stenosis accelerated so much that he was no longer able to walk up our stairs without stopping to catch his breath (he was a strong runner before that).
when the surgeon came out after his surgery, he said that he couldn't believe that joey had not collapsed on the streets!
two years and 2 months later, joey is running, biking and lifting weights and feels so good.

the upcoming few weeks/month will probably be the most difficult_ the decision of what type of valve, teh surgeon, and the waiting once you've decided are the hardest part, we found.
please keep coming back and let us know how you are doing. you will see how much better you will feel in time after the surgery.
please keep us posted. wishing you all the best, sylvia
 
Dale,

I also had a bicuspid valve with stenosis. My surgery was just 4 months ago and I'm doing great. You have definately come to the right place. As Sylvia said in the post before mine, the decision as to the kind of valve, the surgeon and the wait are the worst part. Please let us know what the doc says tomorrow. Welcome!!!!
Heather
 
Hi, Dale, and welcome to The Waiting Room. Although you may be waiting only a short time, you definitely have come to the best place for all the straight info on valve issues and surgery from the patient's perspective.

I, too, have a "probable" bicuspid aortic valve that is stenotic, but thus far only in the "moderate" category. I've been keeping in touch with others on the same path as I, especially those like you who are just a few miles ahead of me -- I can learn from your experiences and be more ready for my own when the time comes.

Ask all the questions you can think of -- I'll bet that someone here can answer nearly any of them, from their own experience and research.

In the meantime, be well and learn. . .
 
Thanks for the encouragement everyone.

A few clarifications/additions: my regurgitation is apparently the more serious condition and is the primary reason for the AVR surgery, though the fact that I also have stenosis is a contributing factor.

My wife, Kris, and I visited the surgeon today and we're not happy. I'll post the reasons why in a separate thread.

Ross,

Considering the upcoming events, and the fact that I want a border collie puppy if/when we get a dog, I don't think having a puppy and a recovering AVR patient in the house at the same time is a good idea. HOWEVER, I had a dog as a kid and the kids have been hounding us, so a dog is inevitable. I also know that owning a pet has been proven to help heal.
 
Back
Top