4 year old tonsillectomy on coumadin

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feathrwin

I am relativley new here. My daughter, Annalise, age 4 is going to have a tonsillectomy due to recurrent strep infections. She takes coumadin and has a St. Jude's mitral valve. I am trying to get as much information as possible as to how her coumadin should be managed. With a tonsillectomy there is a concern for bleeding up to 2 weeks after surgery in healthy children. Her cardiologist has spoken of her stopping coumadin a few days before then being admitted for IV Heparin 3 days before the surgery. Then dropping her INR to 2 for the surgery and then trying to raise it back to the therapeutic range after surgery. She will not be allowed to go home until she can swallow a pill (coumadin) and the bleeding issues are passed. Her Ear Nose and Throat Dr. will be meeting with her cardiologist and heart surgeon to discuss the best way to manage this. Who in the hospital typically should be the expert to oversee her coumadin/heparin/bleeding management. Any other suggestions on how this should be handled? I am terrified. She has already had 3 open heart surgeries before age 3. Most tonsillectomies are out patient surgeries and she may be in the hospital for 2 weeks. They also said to probably expect a blood transfusion because bleeding is such a big deal for tonsillectomies (even without blood thinners).

Thank you,
Heather
 
Excellent! Someone finally almost knows what needs to be done and is doing it almost the right way. This may come as a shock to you. I'm sorry. We see people coming in and being told stop the Coumadin 5 days before surgery and then nothing else. That's a disaster waiting to happen. Your Cardiologist is 90% on in how this is to be done. I know the longer hospital stay is the pits, but it's very necessary to be as precautious as possible against clots on the valve. The ENT is going to be the main Doc in charge, but your Cardiologist should oversee the management of anticoagulation and possibly have a Hematologist in on the game too.

I'm not to sure I'd worry about the bleeding. The new tools they use cut and cauterize at the same time. That doesn't mean that there won't be blood, but I cannot see losing enough to require a transfusion.
 
Heather,
Welcome to VR.com. You should be reassured that the doctors seem to know what to do in the case of your daughter. Admitting her and bridging with heparin is the exact thing to do. In addition, keeping her until her INR is back in range and till all danger of bleeding is past sounds like she will be safe in this surgery.
I am sure it is heartbreaking to watch her go through another surgery but it does sound like she is in good hands.
I would think her cadio will be the one to oversee the bridging with her pediatrician and ENT doctor checking in.
We will be praying for Annalise. Please let us know how things go.
 
Heather

Heather

Welcome to our forum......Let us know when your daughter will be having her tonsils out..and where? We would like to keep in touch..wishing her the best..and you, too.:) I have always heard, young children do great when they have their tonsils removed...Not, like my daughter who was age 18..and not a heart patient. Lots of pain.:eek: Sounds like just a boring time for her in hospital..waiting for her INR to drop..and then come back up...Maybe, she can spend time with her IV hooked up in children's playroom?..We have several children her age..with their Mom's posting regular...Sure they will chime in soon. Bonnie
 
Annalise probably won't believe that every hospitalization doesn't require a sternotomy! Your poor little girl has certainly been through the wars, hasn't she? You, too.

Believe Ross - you have wonderful docs involved here. My guess is your biggest problem will be keeping Annalise occupied while she's in the hospital feeling fine. As I recall, when my daughter had her tonsils out (she was 6), she was antsy the next day. Little kids heal so quickly from a tonsillectomy - not at all like teens and older. My understanding is that kids age 12+ are at great risk of hemorrhaging due to larger blood vessels in the throat. Little kids just don't seem to have the same problem.

I'm sorry your youngster has yet another issue; but she'll be so much healthier after the surgery. Compared to what she's been through, this'll just be a bump in the road.
 
Your cardiologist is right. But be prepared for a longer stay after the surgery because 1.) they want her to be able to swallow Coumadin and 2.) raising INR to a therapeutic level can take some time.

I would discuss the possibility of getting whatever the hospital has available for kids like electronic games or whatever is appropriate for your little one. They have all kinds of stuff, usually.

Hoping all goes smoothly for her.
 
Hi Heather

This thread is right up my alley since I am a retired ENT. I retired because I have a cardiac defibrillator, which did not fire for 12 years. When it did, that was the end of my surgical career. You do not want a surgeon operating on you or your child to pass out from ventricular fibrillation, or if not passing out ‘jerk’ when the defibrillator fires. My credentials are as follows, Harvard trained otolaryngologist, board certified, and I have never been sued during my 28-year surgical career.

I never performed a tonsillectomy on a patient taking Coumadin. I have operated on hemophiliacs and a patient with a bleeding disorder called Von Willebrands disease. Under all of these cases I worked closely with a board certified hematologist. All of the appropriate frozen blood products needed to correct the problem were stockpiled prior to the surgery. These patients stayed overnight rather than going home the day of surgery.

Your daughter presents a more complex problem. There seem to be several concerns regarding this procedure and the postoperative care. These are pain control and the related topic of eating and taking oral medications, the concept of bleeding, and finally the management of bridging therapy with IV heparin until the INR is backing range. Let me discuss each in order.

Pain control involves not only the choice of pain medications but also the technique by which the surgery is performed. Oral medications range from Tylenol and Motrin to combinations with potent narcotics such as codeine and hydrocodone. In addition, every patient is different. The same surgeon performing the same technique will have patients that eat a full regular meal as soon as they get home from the hospital to those that come back in for several days on IV fluids and refuse to eat at all. (My technique for dealing with these patients was to come into the room and tell the child, “You have to drink”. When they didn’t, I would say, “Well, if you won’t drink, then I’m turning the television off. When you start drinking we will let you watch it.”)

The ENT medical literature is filled with different medical therapies and surgical techniques to reduce pain. The use of intraoperative antibiotics and steroids in some studies reduces poet operative pain. Many of the surgical techniques are supported by the equipment manufacturers that sell single use disposable devices that add $200 to the cost of the procedure. For many hospitals that receive a fixed amount of money from the insurance companies for the procedure and total care, this increase in costs is often the difference between making a profit or losing money. (A nun who headed one of my hospitals many years ago when talking of the Mission of the hospital to help the poor said,” If there is no money, there is no mission”.) So, what are the choices? All techniques use some sort of mechanism to cut, coagulate, and remove tissue. The tonsil itself does not have any pain fibers in it and it is damage to the surrounding muscular tissues on which the tonsil rests that causes pain. This trauma is most commonly related to thermal damage from the cautery of bleeding vessels. Many years ago, tonsils were removed with sharp curved scalpels and the bleeding controlled with ‘slip knot’ absorbable sutures. There is lots of anecdotal evidence that these patients had much less pain then current techniques. However, the blood loss was very significant, and in a 30 lb child often left them weak and tired for several weeks. Historically this lead surgeons to start using cautery techniques to both remove the tonsil and reduce the blood loss simultaneously. Unfortunately, this increased the level of pain markedly. Thus there was a good aspect and a bad aspect of the techniques. A technique called “Coblation” used radiofrequency to focus the energy on the tonsil but reduce heat energy to surrounding tissue was developed. A massive advertising campaign in the lay magazines lead to mothers coming into the office, waving the articles and demanding this new technique. The hot new rage is called a partial intracapsular tonsillectomy. This seems to be done with a microdebrider and spot cautery during the procedure. There is a learning curve to this technique and it is unreasonable to expect a surgeon with little or no experience to learn on a Coumadin patient. Along this same line is the fact that while the operation is effective for airway obstruction from enlarged tonsils, the jury is out as to whether it is effective for recurrent infections since a portion of the tonsil is left in place.

Next lets discuss bleeding. There is intraoperative bleeding, postoperative bleeding, and delayed bleeding. Intraoperative bleeding is under the direct visualization of the surgeon and responds to usual control measures. Postoperative bleeding occurs within the first several hours after surgery, usually when the patient is still in a medical care facility. (However, some out patient facilities have tried discharging patients within 1-2 hours of the completion of surgery). Finally there is delayed bleeding. Statistically this occurs usually between the third and tenth day after surgery. Longer periods are described in the literature, and I had an adult who bled on the 34th day post operative. The incidence of bleeding in the literature ranges from between 1-4%. (Any ENT who says that they have never had a bleeder is either a liar or hasn’t done very many. My bleeding rate over my career was slightly less over 2% and I never had to transfuse a patient or am I aware of any doctor in my surrounding communities that had to transfuse a patient.) The degree of bleeding ranges from spitting up 1-2 teaspoons of blood which stops spontaneously, several cups of blood which requires control either with local anesthesia in the examining chair or returning to the operating room for control. Finally, the amount and rapidity of blood loss can result in death. The figures for that risk are that there are somewhere between 400,000 and 600,000 tonsillectomies done each year with a death rate of 250-800. There is some evidence to show that sucking on 'popsicles' as soon as possible after surgery and as frequently as possible decreases the time to resumption of diet and may prevent monor bleeding.

Finally there is the question of bridging therapy. Assuming the ability to take oral Coumadin, the time on IV Heparin until the INR is back in therapeutic range should be 3-5 days. Thus staying in the hospital for 2 weeks will not help regarding bleeding and becasue of boredom, may delay healing. The concept of decreased activity and change in diet has been discussed elsewhere on this sight and has to be kept in mind. I would favor daily INR (I hope you have a home testing device).

This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.
 
What????

What????

feathrwin said:
I am relativley new here. Thank you,
Heather

What do you mean relatively???? This is your first post!!! :D

Sorry, had to do that. I am so glad you made it here, Heather. Like I told you, this is a great group of people and a wealth of information. YOu even lured Dr. A out of hiding, and I'm sure Al will be along soon, too. Welcome to the family. Don't get me wrong, I love PDHeart, but there are not many valve moms on there, so when I need coumadin advice this is where I come. Plus, these people have a bad habit of growing on you.

When is Annalise's surgery? Keep us posted. Many hugs. Janet
 
Her cardiologist has spoken of her stopping coumadin a few days before then being admitted for IV Heparin 3 days before the surgery. Then dropping her INR to 2 for the surgery and then trying to raise it back to the therapeutic range after surgery.

This cannot be done. Stopping the Coumadin for a few days will drop the INR below 2. Heparin does not affect the INR.

The INR only measures whether or not she is getting enough Coumadin. It about a week after she can swallow the warfarin before the INR will be a significant number. You can "force" it to go back above 2 by giving overdoses when she restarts but this is only a false sense of security.

She needs a hematologist involved in this to manage the warfarin correctly.
 
allodwick said:
Her cardiologist has spoken of her stopping coumadin a few days before then being admitted for IV Heparin 3 days before the surgery. Then dropping her INR to 2 for the surgery and then trying to raise it back to the therapeutic range after surgery.

This cannot be done. Stopping the Coumadin for a few days will drop the INR below 2. Heparin does not affect the INR.

The INR only measures whether or not she is getting enough Coumadin. It about a week after she can swallow the warfarin before the INR will be a significant number. You can "force" it to go back above 2 by giving overdoses when she restarts but this is only a false sense of security.

She needs a hematologist involved in this to manage the warfarin correctly.
Pretty hard to sneak one by you isn't it? For some reason, I didn't spot the word 'then' in Stop days before, then start bridging.
 
Al

Al

allodwick said:
It about a week after she can swallow the warfarin before the INR will be a significant number.

Why couldn't the warfarin be crushed and given to her in her favorite flavor of milkshake?
 
Until a child is swallowing well and can take the tablet whole or crushed into a teaspoon of applesauce, one cannot tell how much of a dose mixed in a? milk shake? has been taken. Even the applesauce routine is fraught with difficulty if it is not completely swallowed.
 
Well in that case.........

Well in that case.........

DrAllan said:
Until a child is swallowing well and can take the tablet whole or crushed into a teaspoon of applesauce, one cannot tell how much of a dose mixed in a? milk shake? has been taken. Even the applesauce routine is fraught with difficulty if it is not completely swallowed.

If you don't finish the milk shake my little dear
"then I?m turning the television off. When it is done we will let you watch it.?
I don't think that is too harsh- do you?:rolleyes:
 
Having been a foster parent, I am sure that it would then get spilled "on accident"
 
Hmmm

Hmmm

allodwick said:
Having been a foster parent, I am sure that it would then get spilled "on accident"

Then there is more where that came from and the TV stays off!

This is not exactly castor oil, of course you could always resort to what nurses used to tell me as a little boy when I was too cranky to taking my pills- They would whip out a hyperdermic needle and say " If you don't take
those pills right now, I'll give it to you in a shot!" She only had to say it once.

Of course, this was when they still wore caps. Anyone who remember them, knows I'm not kidding.
 
Thank you all for your replies and well wishes. Annalise's tonsillectomy will be sometime in July after our vacation to South Dakota. I will let you know how it all goes. I trust her doctors but I always need to do my own research just to be sure.

Blesssings,

Heather
 
Hi Heather,
Glad to see you joined here! This place has been a lifesaver for me and helped keep my sanity, somewhat! lol
 
DrAllan said:
Until a child is swallowing well and can take the tablet whole or crushed into a teaspoon of applesauce, one cannot tell how much of a dose mixed in a? milk shake? has been taken. Even the applesauce routine is fraught with difficulty if it is not completely swallowed.


Ha

That is why I give Amelia her "rat poison" mixed with water in a syringe and make sure she washed it down with a good gulp of water.

Hi Heather
Hope all will go smoothly for Annalise. It's really hard for her to go thru another op, but children heal so much faster than adults. Not too sure how they will manage her INR but Amelia was on Heparin, asparin and warfarin at first and then they slowly wean off heparin and then asparin and then try to stablize her INR. It's not so easy for us as Amelia was just 2 months old when she had her MVR.
 
allodwick said:
Having been a foster parent, I am sure that it would then get spilled "on accident"


Have her wear a plastic bib and a spoon on hand to catch the spilled "on accident" bit. BTW don't mixed it too much with water, they will spit it out more. Then have her wash it down with water.

Amelia is on 0.7mg on every other day (and will be adjusting soon due to her growth spurt) and I mix 1 mg warfarin tablet with 1 ml of water. It is very concentrated but I give the suspension a good shake to be sure it is uniformly suspended in water. So far it has been stable only when she has growth spurt.
I am so thankful that she is thriving after her surgeries. Best of all we got the new CoaguChek XS. It's such a neat little thing!
 
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