L
lyneebee
Hi everyone,.
I had my tricuspid valve replaced and maze procedure done 9/9.It was a successful surgery.I was up and walking after 7 days out from the hospital. My protime was managed by my primary physician since I could not find a coumadin clinic close to home. discharge at 3.1. I was not monitored for 15 days knowing that everything was OK. Taking 4 mlg/daily. I started to have symptoms like hematoma on the leg, bleeding of the gums, then rectal bleeding, to top it all I took 2 Aleve tablets (prescribed by my doctor) a day before to ease the pain on my leg, Then on 10/19 I was admitted to ER at 7 INR. I was bleeding (G.I.)for 2 days.they gave me plasma, vit K and so on. Then they did some testing colonospy, endoscopy, large & small intestines to rule out where the bleeding was coming from, all negative. They said I was overdosed on coumadin, I stayed for 9 days. I went home 2-3 days early ( my hematologist said, I should be released one week after stopping heparin) since my INR was fine at 2.0 she discharged me at 4mlg. dose and gave me innuhep to inject to come back Monday. Come Monday (10/31) I was awaken by the worst head ache in my entire life followed by vomiting, another trip to ER, this time was scary because the pain was intense, INR was 2.82. Morphine did not help.CT scan showed no bleeding, lumbar puncture show there was bleeding but not sure where the blood was comig from, they punctured a vein. To be sure if was not bleeding internally , they did a cerebral angioram, it was negative no blockage/bleeding, so they waited. On my second week I was having slurred speech, CT scan this time showed bleeding on the left side of the brain which affected my speech, a day later, I could not speak.they said I had subdural hematoma and to get my speech back, they decided to remove the subdural hematoma by neurosurgeon. I was on a ventilator for a day and when I woke up my speech came back. Thanks God, no permanent damaged. I stayed another 2 weeks for recovery and to balance my coumadin level . I never had a problem with my MVR for10 years until now my doctors cannot clearly explain why all of a sudden I had this problem except I was overdosed. I can understand the first time to the hospital (GI Bleed due high INR) but my bleeding in the brain, my INR was OK. Now my hematologist wants to increase my INR target from 2 to 2.5 .Now I realized how important to closely monitor your INR. Until now my INR is still not in range. See below.
Last D/C 11/21 INR2.2 Doze 4mlg. Target is 2.5
11/22 Doze 4mlg.
11/23 1.99 4mlg.
11/24 4 mlg.
11/25 2.04 4 mlg.
11/26/27 4mlg.
11/28 2.35 4mlg.
11/29-11/30 4mlg
12/1 3.22 1mlg.
12/2-12/4 3mlg.
12/5 get protime
I wonder why it jumps from 2.35 to 3.22. the only changes I made were may diet. I started eating a lot to put back 10 lbs I lost during my hospital stay.
Questions to Al or anyone is concern; My oncologist who happened to be my hematologist monitored my INR while I was in the hospital who was very concerned, I?m worried that until now she cannot level my INR. I?m not underestimating her but I wonder if I should stay with her or find a coumadin clinic to manage me. I understand she manages few patients in her clinic. My cardio does not want to manage my coumadin bec. he is too much more busy than my primary which I think does not have the expertise. I ordered a protime machine so it will be easier to closely monitor my INR and more convenient in regards to trips to hospital lab .I wonder how long it takes to put me within the target or normal range. How do you calculate to get your right dosage, I?ve read that in the post but still do not understand. Have MVR (St. June 1995) and tricuspid VR (On X valve 9/05. Maze procedure did not work for me. My cardio said my pacemaker is not working, I started having a-fib since my bleeding began. I am always worried and fear thinking this bleeding could comeback anytime. In my history what should be my normal range. I am writing this to gather some info that I may or may not be aware of to avoid the same situation in the future. Can any one of you give me your feedback or if you have similar experience. I?ve been through a lot and I hope and pray I would not go for another trip to the ER. Thanks in advance for reading my uneventful recovery. I?ve gone back to walking although my muscles, bones and back still stiff and painful due to long hospital stay.
Lynneebee
I had my tricuspid valve replaced and maze procedure done 9/9.It was a successful surgery.I was up and walking after 7 days out from the hospital. My protime was managed by my primary physician since I could not find a coumadin clinic close to home. discharge at 3.1. I was not monitored for 15 days knowing that everything was OK. Taking 4 mlg/daily. I started to have symptoms like hematoma on the leg, bleeding of the gums, then rectal bleeding, to top it all I took 2 Aleve tablets (prescribed by my doctor) a day before to ease the pain on my leg, Then on 10/19 I was admitted to ER at 7 INR. I was bleeding (G.I.)for 2 days.they gave me plasma, vit K and so on. Then they did some testing colonospy, endoscopy, large & small intestines to rule out where the bleeding was coming from, all negative. They said I was overdosed on coumadin, I stayed for 9 days. I went home 2-3 days early ( my hematologist said, I should be released one week after stopping heparin) since my INR was fine at 2.0 she discharged me at 4mlg. dose and gave me innuhep to inject to come back Monday. Come Monday (10/31) I was awaken by the worst head ache in my entire life followed by vomiting, another trip to ER, this time was scary because the pain was intense, INR was 2.82. Morphine did not help.CT scan showed no bleeding, lumbar puncture show there was bleeding but not sure where the blood was comig from, they punctured a vein. To be sure if was not bleeding internally , they did a cerebral angioram, it was negative no blockage/bleeding, so they waited. On my second week I was having slurred speech, CT scan this time showed bleeding on the left side of the brain which affected my speech, a day later, I could not speak.they said I had subdural hematoma and to get my speech back, they decided to remove the subdural hematoma by neurosurgeon. I was on a ventilator for a day and when I woke up my speech came back. Thanks God, no permanent damaged. I stayed another 2 weeks for recovery and to balance my coumadin level . I never had a problem with my MVR for10 years until now my doctors cannot clearly explain why all of a sudden I had this problem except I was overdosed. I can understand the first time to the hospital (GI Bleed due high INR) but my bleeding in the brain, my INR was OK. Now my hematologist wants to increase my INR target from 2 to 2.5 .Now I realized how important to closely monitor your INR. Until now my INR is still not in range. See below.
Last D/C 11/21 INR2.2 Doze 4mlg. Target is 2.5
11/22 Doze 4mlg.
11/23 1.99 4mlg.
11/24 4 mlg.
11/25 2.04 4 mlg.
11/26/27 4mlg.
11/28 2.35 4mlg.
11/29-11/30 4mlg
12/1 3.22 1mlg.
12/2-12/4 3mlg.
12/5 get protime
I wonder why it jumps from 2.35 to 3.22. the only changes I made were may diet. I started eating a lot to put back 10 lbs I lost during my hospital stay.
Questions to Al or anyone is concern; My oncologist who happened to be my hematologist monitored my INR while I was in the hospital who was very concerned, I?m worried that until now she cannot level my INR. I?m not underestimating her but I wonder if I should stay with her or find a coumadin clinic to manage me. I understand she manages few patients in her clinic. My cardio does not want to manage my coumadin bec. he is too much more busy than my primary which I think does not have the expertise. I ordered a protime machine so it will be easier to closely monitor my INR and more convenient in regards to trips to hospital lab .I wonder how long it takes to put me within the target or normal range. How do you calculate to get your right dosage, I?ve read that in the post but still do not understand. Have MVR (St. June 1995) and tricuspid VR (On X valve 9/05. Maze procedure did not work for me. My cardio said my pacemaker is not working, I started having a-fib since my bleeding began. I am always worried and fear thinking this bleeding could comeback anytime. In my history what should be my normal range. I am writing this to gather some info that I may or may not be aware of to avoid the same situation in the future. Can any one of you give me your feedback or if you have similar experience. I?ve been through a lot and I hope and pray I would not go for another trip to the ER. Thanks in advance for reading my uneventful recovery. I?ve gone back to walking although my muscles, bones and back still stiff and painful due to long hospital stay.
Lynneebee
