11 months post op - Ross Procedure - Royal Brompton, London

[andyabernethy]

Hi All

I promised myself I would be a regular visitor to this extremely useful site post surgery. I'm afraid to date i haven't kept that promise. I am 37 years old and had the ross procedure at the Royal Brompton in London last year. No major complications and a fairly text book recovery thankfully. I was off work for 8 weeks. Pretty much back to normal now. I am cycling Lands End to John O'Groats in May this year in 9 days. Training is going really well and the 'extra puff' generated from the operation comes in handy.

I recall the anxiety that I suffered pre surgery and how much use this site was as a reference. If I can be of any assistance to anyone considering the ross procedure (especially in London) then please don't hesitate to get in touch and I'll try and give you as much information as possible.

I know it's almost a cliche on the site but the truth is the worst part is the wait. Once you are on the other side of the mountain thing look far better.

All the best
Andy

 

[Lynlw]

glad to hear things are ging so well. Good luck wth the cycling

 

[Jason]

Good to hear you are doing so well. Thanks for coming back and giving an update.

 

[Jkm7]

Nice to hear from you and especially that you are doing so well.

Glad you dropped by.

 

[spartangator]

Excellent to hear, and what a ride you have planned! It'd be great to get an update in spring.

 

[tommyboy14]

QE re Ross Surgeons in London

QE re Ross Surgeons in London

Hi Andy,

I am also in London and looking for options and am thinking about the Ross as well.
[I.e. I am looking for something that is durable and would like to discuss how durable Ross is with a specialist surgeon in London].

Would you mind telling me please who you went to see at the Brompton in London?

Thank you

Tommy

Hi All

I promised myself I would be a regular visitor to this extremely useful site post surgery. I'm afraid to date i haven't kept that promise. I am 37 years old and had the ross procedure at the Royal Brompton in London last year. No major complications and a fairly text book recovery thankfully. I was off work for 8 weeks. Pretty much back to normal now. I am cycling Lands End to John O'Groats in May this year in 9 days. Training is going really well and the 'extra puff' generated from the operation comes in handy.

I recall the anxiety that I suffered pre surgery and how much use this site was as a reference. If I can be of any assistance to anyone considering the ross procedure (especially in London) then please don't hesitate to get in touch and I'll try and give you as much information as possible.

I know it's almost a cliche on the site but the truth is the worst part is the wait. Once you are on the other side of the mountain thing look far better.

All the best
Andy

 

[Duffey]

Tommy, I checked the community list, and it appears andyabernethy hasn't visited the forum for almost a year. If you don't mind the suggestion, you might try sending him a personal message and see if you get a response that way. It seems unlikely that he will see your post on the forum, and I imagine you are anxious to receive an answer.
Good luck and best wishes!
Mary

 

[Arne]

Hi Andy,

I just joined this forum recently since I'm about to get heart surgery in the coming months. I still need to pick a date and choose the valve/procedure.

I have a bicuspid valve that was stenotic from birth and it started to regurgitate after I had a balloon valvuloplasty at the age of 12. Now at 30, I have developed an aneurysm (4.7cm) in the ascending aorta, an enlarged left ventricle, and the valve is obviously not getting any better.

Basically, it's time to do something about the valve and the ascending aorta.

I have been told I could do the Ross procedure. My pulmonary valve is a bit leaky but that I was told it could be fixed as they put it in the aortic position. My worry about this surgery is that it is more complicated and that they also need to fix my ascending aorta while in there. The gamble with the Ross seems to be that if all goes well, it outperforms both the tissue valve and mechanical valve in quality of life.

My worry about getting a tissue valve is that it'll have to be replaced a lot sooner that I would like. And my worry about the mechanical valve is the fact that I'll have to take Warfarin. I'm afraid I might have an adverse affect to it, that it'll be difficult to maintain my INR levels, or that I'll be dependent on a drug for the rest of my life.

Did you go through this sort of back in forth with options? What made you decide to go for the riskier operation?

Arne.

 

[Patsman07]

Thanks Andy, I'm going for surgery tomorrow week and its great to hear from someone who has been through it and is doing wel. I hope to get the Ross procedure too. Like the op this site has been a great source of reassurance. The only drawback I find is the lack of posts from previous ross patients, so thanks again Andy.

Hi All

I promised myself I would be a regular visitor to this extremely useful site post surgery. I'm afraid to date i haven't kept that promise. I am 37 years old and had the ross procedure at the Royal Brompton in London last year. No major complications and a fairly text book recovery thankfully. I was off work for 8 weeks. Pretty much back to normal now. I am cycling Lands End to John O'Groats in May this year in 9 days. Training is going really well and the 'extra puff' generated from the operation comes in handy.

I recall the anxiety that I suffered pre surgery and how much use this site was as a reference. If I can be of any assistance to anyone considering the ross procedure (especially in London) then please don't hesitate to get in touch and I'll try and give you as much information as possible.

I know it's almost a cliche on the site but the truth is the worst part is the wait. Once you are on the other side of the mountain thing look far better.

All the best
Andy

 

[spartangator]

Hi Patsman07, all the best with the upcoming procedure. I had the Ross procedure a little more than seven years ago and am happy to discuss it if that's helpful to you.

 

[Patsman07]

Hi Patsman07, all the best with the upcoming procedure. I had the Ross procedure a little more than seven years ago and am happy to discuss it if that's helpful to you.

Thanks Spartangator,

I will pm you with some questions