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  1. LisaK

    Can anyone share experiences? or offer advice?

    Thanks for your reply. I think it's the fact that I hear all these irregular beats they are more of an issue for me, but as you say at least I know when they are happening. I will keep a diary to show my cardiologist when I see them. The anxiety definately comes but before or after the episodes...
  2. LisaK

    Can anyone share experiences? or offer advice?

    Hi there, My valve is a mechanical aortic valve. It's a ST Judes 25mm. It clicks loud, lol! :)
  3. LisaK

    Can anyone share experiences? or offer advice?

    Hi there, I have visited my gp, he is really good but sends to send me to a & e alot, I hate sitting there for hours! He has said he will get in touch with my cardiologist and ask him to bring my appointment forward. I use Coventry hospital but also have a Professor in London that I see...
  4. LisaK

    Can anyone share experiences? or offer advice?

    Reply to drivetopless: It's just happened twice this week. I've had a racing heart before but it felt like it stayed in a rhythm, this felt all random and out of sorts but both times it only lasted for about five minutes maximum. Hope you feel better soon :)
  5. LisaK

    Can anyone share experiences? or offer advice?

    Thanks for your replies, I've been to my cardiologist with racing heart beats before and he did some 24 hour monitors but it never happened :( They say it's down to stress etc. I feel like I'm being a pain bothering them but it bothers me! I get so scared as I'm sure lots of people do? I find it...
  6. LisaK

    Can anyone share experiences? or offer advice?

    Hi there, I'm 29 and had my aortic valve replaced in MAY 2009. It's been a journey for me, I also have the condition Takayasu's arteritis which is a form of vasculitis. I'm nearly 2 years on and I still find the "clicking" difficult to cope with. I take pills to sleep at night. Two days ago I...
  7. LisaK

    Anyone ever had mild paraprosthetic aortic regurgitation??

    Thanks for that, my valve is a st judes mechanical. To be honest I had no input in that as things happened so fast. First the takayasus was diagnosed then they found I had severe aortic regurg. Now a year later i'm only just starting to question things and i find it scary. I often get a racy...
  8. LisaK

    Anyone ever had mild paraprosthetic aortic regurgitation??

    Hi there, I've just been to my doctors and he is sending me to my consultant for an issue related to my takayasus arteritis. He printed some previous letters out and one from my recent echo shows I have mild paraprosthetic aortic regurgitation. Does anyone know if this serious and has anyone...
  9. LisaK

    Hi everyone...!

    Thanks again to you all. Can I ask what is a-fib? Is it when your heart feels like a flutter? Cause I've been feeling that alot recently. I do feel stress, emotionally, adds to my irregular beats. As for my ticking, I will get used to it, i'm sure. I should be grateful for it, lol x
  10. LisaK

    Hi everyone...!

    Thank you all for your replies. It's great to hear from you all. Nice to know there are people out there who feel the same as me. The irregular beats are very scary at present and although i'm told they do no harm it doesn't make them any easier to handle.I'm hoping they go away soon :-) Hope...
  11. LisaK

    Hi everyone...!

    Hi all, I'm new here I just found it and I'm glad I did! I had my aortic valve replaced May 2009 due to AR caused by having a rare form of vasculitis. I now take Warfarin daily to keep me anticoagulated and have to go for regular checks on my INR. I see there are lots of people who have this on...
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