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I was convinced this was the case when I was on warfarin. There was a week when my INR jumped from 2 to 3.3 for no apparent reason, and my only diet change was drinking fresh ginger and cinnamon tea every day. The warfarin specialist was baffled but insisted that diet wouldn’t have any...

Thanks for the advice! I’m just aware that once you’ve had any of these once, they are more likely to happen again. However I am really trying to not focus on that as it would drive me insane wondering what when the next episode will occur! Although I’ve just ordered myself an expensive...

First infection was one month post surgery and second was after 3 months. I’m not sure why they were so certain it was viral the first time, maybe as I didn’t have a fever. I’m just praying that it wasn’t endocarditis or sepsis as I don’t want to deal with a permanent recurrence of those, I...

Yes I agree that I probably didn’t recover fully the first time. I have an appointment in a few months with a top cardiologist who specialises in this, but was advised that patients often get it twice (?) and hopefully it won’t recur. I have had a lot of CRP tests. Cardiologists and the...

I’ve only had one surgery, and have now had pericarditis/myocarditis twice in 3 months afterwards! I’ve never had any issues before the op and hardly ever got sick, no known autoimmune issues or other complications. They only gave me a 2-month supply of colchicine initially, and most doctors...

I attend a pretty good anticoagulation clinic who do finger prick tests every 2 weeks (only on warfarin 3 months). My INR has jumped between 3.3 and 2.6 so I queried this but they still insist I don’t need to be seen more frequently, and to just follow the dosage adjustments.

I’m still recovering from pericarditis which I got 4 weeks after surgery, and I had quite similar symptoms plus pericardial effusion. Just saw that you’re on Colchicine which is the most effective treatment, so hopefully it should clear up soon. My pain reduced after a few weeks of being on...

Thanks Zoltania- I think it’s very similar but it makes me quite dizzy if I keep my eyes open. Perhaps it will take some getting used to!

This is also what I’ve been doing, it happened 2 days in a row but I wasn’t too concerned as it’s all over within 20 minutes. However, I will be seeing patients in clinic when I’m back at work, and have realised this is going to be majorly disruptive! 🙁

I’m not too sure about the preparation but I doubt it has significant impact on side effects if it’s a similar dosage. I’ve started taking it before bed as per instructions on the box, rather than in the morning which was advised by nurses on the ward. Since then I’ve not had the headaches, but...

Hi, yes that’s what I was advised at the anticoagulation clinic regarding the effect on the stomach. Colchicine alone doesn’t seem to be working yet but I really hope I don’t need steroids. On a more positive note, I spent the entire day sitting and leaning forwards. I’ll probably end up with...

I was also advised that I could take the max dose of paracetamol, didn’t realise that could affect INR. When I was admitted in hospital it was checked every day, and kept jumping between 2 and 3 within a couple of days. I was also on colchicine though which makes me sick and my diet was very...

Thank you so much Pellicle, wishing you all the best! Hi Seaton, many thanks for your reply! It is very helpful and reassuring to know that I’m not the only one this has happened to, but yes it was unfortunately quite soon after surgery. So sorry to hear about what you went through, although I...

Thank you both! @pellicle : Frozen shoulder was ruled out, they said it was unlikely, as I didn’t have any problems after the surgery for 4 weeks and my neck /shoulder were checked in hospital last week. Currently there is no change in symptoms when I move my shoulder/arm, but it’s more painful...

Hi all, I had my bicuspid valve replaced with an Edwards Resilia just over 5 weeks ago, and was recovering quite well until I was diagnosed with pericarditis during week 4 and hospitalised again- they were unable to find any other reasons for my shoulder and chest pain. I’ve had scans and the...

Thank you Seaton. My blood pressure has been around 96/60 at the lowest point, but it was 120/75 today and no change in symptoms. I guess it could also be the warfarin, it’s taken a while for my INR to be within range/ stable plus other side effects, and I was in hospital for 8 days because of...

Hi and thank you both! I assumed the headaches were related to blood pressure, I think I’m on the lowest dose of bisoprolol already though! I’ll discuss coming off it when I see the GP next, but wasn’t sure if this was wise as it’s recommended to lower the heart rate etc in the early stages of...

Hi all, I finally had surgery 3 weeks ago to replace my severely stenotic bicuspid valve with an Edwards tissue valve, and replace the ascending aorta. I’m on warfarin for 3 months and bisoprolol 1.25mg, generally recovering okay but I wake up with an excruciating headache daily, sometimes it...

Just an update, I went on my holiday pre surgery. I had been advised that it would be dangerous to fly for even an hour due to the pressure and the current state of my valve, however my surgery kept getting delayed so I decided to risk it. A 7-hour flight ended up being 12 hours due to floods...

My holiday was postponed from October to April as I was deemed unfit to fly due to severe aortic stenosis. The surgery got very delayed due to cancelling appointments and it’s now planned within the couple of weeks, so I will have about 5 weeks before taking two 7-hour flights one way. Not sure...