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Thanks for sharing @Lisa from LJ , I don't have an autoimmune disease, I do however have Hereditatry Fructose Intolerance. I haven't found anything that would link HFI with pericarditis. How often do you suffer pericarditis?

Hey @jeffreycaulfield , The pericarditis episode didn't last longer than a couple of days, however medical guidance has been to reduce exercise for a period of 1-3 months (dependent on a number of factors) - this is probably the most frustrating thing about the whole thing. I started...

Hi @jeffreycaulfield You've already read my surgery experience post, but I'm sharing the link again for anyone that is looking for a Sydney based surgeon: https://www.valvereplacement.org/threads/38-m-5-5-weeks-post-av-root-replacment-surgeon-selection-recovery-pericarditis.889022/ As Tim...

Hi @jeffreycaulfield My current energy levels are no different to pre-surgery as I was asymptomatic. The pericarditis pain has now eased, but the advice seems to minimise any strenuous activity for 1-3 months :(. I was always a casual surfer at the best of times and given current...

Hi @jeffreycaulfield, Thanks for reaching out - generally speaking, I am doing well post op. I'm at the 15 month mark now and back to full health (in fact, I climbed Yosemite's half dome just last week; 28km with 1,500m vertical in 8.5hrs). At this point I have no regrets choosing a mechanical...

I’ve traveled to China (from Oz) three times over the past 9 months - in fact, I’m here right now, and I notice a significant drop in INR every time. I put this down to a very different diet to what I would normally eat at home, including a lot more steamed leafy greens. I also tend to drink...

Unfortunately not in Australia - largest dose of Coumadin/Marevan is 5mg with 1mg & 2mg also available. All sold in 50 pill bottles.

I’m currently taking around 18mg/day. I’ve come to terms with the high dosage and now focus on the INR value as the desired out come. It is however annoying that warfarin is only prescribed at 5mg tablets with nothing stronger available. My GP has prescribed 3 x 5 bottles, reducing overall...

@pellicle - I had always assume the lancets were single use and I threw them in the bin. You haven't run into infection issues or similar reusing the same lancets (assume not, otherwise you would've stopped reuse)? I too used to have issues getting a large enough sample, so I've been spinning...

Went to my local pharmacies earlier this week and it appears that 5mg Coumadin is back in stock (in the 'new' blue bottles). Happy days!

Hey Ric, my situation is slightly different to yours in that I knew about my BAV and aortic aneurysm for the past 20 years - however this did not make it any easier to deal with the prospect of having OHS. A good way I found how to deal with this is by engaging with people on this forum and...

Hi @francie12, I'm a little bit older than your son, but his current situation mirrors mine quite closely at his age. I've written up my experience here: https://www.valvereplacement.org/threads/38-m-5-5-weeks-post-av-root-replacment-surgeon-selection-recovery-pericarditis.889022/ Including...

4 Month Update I had full intentions of giving everyone a three-month update, but then normal life got in the way and so here we are at the 4 month mark! At three months I had follow up appointments with my cardiologist and surgeon. The echo results were very positive, the left ventricle size...

Hi @Lucker, as previously mentioned I was asymptomatic prior to surgery. Post surgery it feels as though my heart has a much stronger beat, this is particularly exascerbated when I take a deep breath in and it feels as though my heart is 'thumping' within my chest cavity. This is not reflected...

Thanks for your offer @pellicle - I'll send you a PM re INR. Hi @Lucker, I was asymptomatic prior to surgery - every now and then I would get mild chest pain, but everytime I had it checked out, the medical team advised that it was most likely referred musko-skeletal pain and a back massage...

First Attempt at Surgery (11/11/2022) It felt a little surreal as I began to get closer to the day of surgery. A significant effort was spent on coordinating family members to look after our kids, squaring away work projects for my planned absence and mental preparation for the surgery/recovery...

Hi All, (Posting in two parts due to character-count limit) I’ve been lurking for the past six months, ever since I (/my cardiologist) made the decision to have my aortic valve and root replaced. I have found tons of useful information and lived experiences on this forum, but the most...