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Any Indian patient here who was bicuspid and have got aneurysm and what size you are following to be operated on? Is there any variation on aneurysm size by asian(Indian)

Tom , i cant see any info about the grafts specifically on FDA. seems only info about valves of various companies. My main concern remain going early for surgery at 5.1-5.2 range or waiting to see if it can remain stable before 5.5 remains doubtful in my mind. Since graft also cannot guarantee...

Jeanie in one the facebook group of aortic dissection said : Dacron graft was put in at 14 for coarctation of the aortic arch. Surgeon said it would last to my 60s and never stressed life long visits. It eventually eroded through my aorta into my lung and caused a fistula and 7.4cm aneurysm(doc...

No Tom I didn’t misunderstood , he was firm in what he said. today also I heard from one lady that her aorta graft dissected after 20 plus years. I am trying to find if the Dacron graft used now is different than earlier age grafts or they are same.

Hi Again it’s not about valve it’s about aortic Dacron graft. Valve always had risk of failure or can run while life. pellicle why you are not leading normal life? Any issue after third OHS?

Currently am in Usa and unfortunately Cleveland clinic is the number 1 hospital of Usa

Yes this has increased lot of anxiety in my mind and am debating if I should then wait for surgery till aneurysm reaches 5.5( lot of researches shows less risk till 5.5) for bicuspid patients also. May be will increase few years of my life

https://www.annalsofvascularsurgery.com/article/S0890-5096(06)62133-X/pdf

Hi Thanks @pellicle for whatever you are doing on this group along with some other great members. I keep reading your responses on most of users questions and its awesome always. My Surgeon at Cleveland Clinic says that graft CAN remain life long , but cardiologist specifically said that i...

Hi All, I am 32/M and have aortic valve replaced 8 years ago. I have been diagnosed Ascending aortic aneurysm (5.2cm) and Aortic root(4.4) and have ben told foe Bentall procedure for full replacement. Cardiologist at Cleveland Clinic told me you will be lucky to see each day after 20 years when...

I am posting on this thread after long time of inactivity , but would like to know what is the observation of all members on durability of graft. I am 32 and Cardiologist of Cleveland clinic said to me after this surgery i should be lucky to live an more days after 20 years

I did had phone consultation with Dr Alberto Puchittino at Mayo. He also told that when root need to be replaced , he will need to replace the valve also as thats the best way to remove all diseased tissues.But he end up saying that my case is borderline case for surgery with current 5.2 cm...

Hi All, I have asked many questions in many forums but still not able to decide on my current 2 hospitals where i have visited - Stanford( Dr. Craig Miller) vs Cleveland Clinic (Dr Svensson) as both have different surgica opinion. I am thinking to do a third opinion also. Since i live in SFO ...

Hello Kathy, Which surgeon are you looking in Stanford? Ping me if you get chance

I talked to multiple other surgeons back in India over phone including my previous surgeon , everyone said the decision should be taken during surgery , in case valve and the ring of valve is good enough then no need to replace valve , else if there is any calcification on valve or ring then...

What I meant is Miller told me that he is expert so no more discussion. guys I really don’t understand what discussion going on but definitely see no agreements. To me it seems to just believe that CC is better hospital and Svensson must be doing more re do surgeries and I should go to him. I...

Yes I am also not happy with wordings Dr. Miller used for another opinion. Regarding taking these info to the surgeons both are stubborn wiTh their recommendation. Dr Svensson at CC will not meet anyone more than 1 time before surgery nor he will personally answer more questions Dr Miller on...

Hi brother i have pasted the response from Dr Miller Mail itself. I am not sure if I understand your response fully. Do you mean that replacing valve with composite graft can lead to pacemaker? while composite graft is faster? i always think that attaching the graft to existing valve can...

Which valve they put in first and Second time? St Jude only? I heard st Jude need more INR than ONX and ATS.? Does they said anything about your old valve after surhery? on the contrary see what Miller at Stanford says : But, you are getting very bum advice regarding extracting your normally...

Don’t know why it is posted as guest. I did posted this .