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  1. J

    New member & “bloody” question

    Yes…I’m all for you going to the ER
  2. J

    Surgery tomorrow- time to lock in :)

    Congrats!! This forum is a great place to learn how to manage your warfarin. Thank God I listened and bought my own tester. it saved quite a few trips to Doctor.
  3. J

    food poisoning and INR

    Yes, I have had that happen with food poisoning and the flu. If you are not eating well and also “vacating” it can really mess with warfarin levels. If it was me, I would not skip more than one day. One day usually brings it way down for me. Check your level after the skip and adjust...
  4. J

    Availability of CoaguChek XS strips on eBay

    I just received a box via eBay from a company called Self Care. i just received I just receive strips through eBay. There was an email that they may no longer be able to sell via EBay, BUT they would sell direct from their website which is selfcaredepot.com. They have been reliable.
  5. J

    Anyone experience occasional palpitations or premature ventricular contractions?

    I have them and have gone to ER a couple times, scared! I have been assured they are nothing to worry about. One ER doctor Suggested cutting down on caffeine. that HAS helped. I now drink no more than 2 cups of coffee or I drink 1/2 decaffeinated. I, also, keep to no caffeine sodas.
  6. J

    Testing Strips for Roche CoaguChek XS

    I’d get my strips from a company selfcaredepot.com. Reliable . I usually get them within 7 business days.
  7. J

    changes in INR within a week.

    I have a St Jude AND I self test with guidance from my PC if I need. Holding a dose, even ONE dose and not testing For a week is, IMO, stupid. LOL..go ahead and report me too! oh, yeah,,, this is based on experience AND the advice of my Dr . In the USA. geeeze Louise.
  8. J

    Need Help Choosing! 14 Questions For Those With Mechanical Valve + Warfarin

    My bleed when I had food poisoning was because without eating my INR went sky high…Something like 8.1. This prompted bleeding. ( I have some internal hemorrhoids..sorry TMI) Warfarin is closely tied with what and how much you eat. if you decide to fast even one day, I would expect that your...
  9. J

    Need Help Choosing! 14 Questions For Those With Mechanical Valve + Warfarin

    60 9 years Still ticking I've had bleed due to getting food poisoning and not being able to eat. Since that I have self monitored. not too much. I also have auto immune hepatitis. That limits me more than warfarin no problem with bridging BUT be your own advocate when warfarin is...
  10. J

    Warfarin & arthritis: pain relievers?

    Lol…don’t want o argue, but if you Google Tylenol it specifically states it is not an anti-inflammatory.
  11. J

    Warfarin & arthritis: pain relievers?

    Actually, tylenol /acetaminophen, is NOT an anti-inflammatory. It is strictly a pain reducer. I have found that it does work for me. Advil is ibuprofen, an NSAID NSAIDs should not be taken on a regular basis with a mechanical valve…not sure how it works with a tissue valve.
  12. J

    Mechanical Valve Noise and Quality of Life Study

    I have a mechanical valve and after 9 years I still hear it all the time. Some things, like alcohol, makes it louder… However, the extent to which it hinders sleep has decreased over the years. I hardly pay attention to it. Of course, I cannot sleep ON the ear, but have a pillow scrunched or...
  13. J

    What was your best Birthday Celebration

    My best birthday was my surprise 60th thrown by my husband. i was due to go into my second OHS On March 14. My birthday is March 16. This OHS ( first one was a year before) was to fix a second AA and replace my Aortic valve. (I was trying not to think about it!) He talked me into going out for...
  14. J

    INR Jump-intestinal issues

    I didn’t hear this mentioned either. If your appetite was impacted and you found yourself eating less, that would impact your INR also. That has been my case. I’ve had a couple bouts with an illness that affected my appetite. Since my warfarin dosage Is dosed to my diet, if my diet changes...
  15. J

    73 And Scared

    I had that the two days after surgery. In my case it was the pain killer used…Norco. Thank goodness my sister was there and said to get me off of it. I was vey paranoid - thought nurses were talking about me, not telling me things, etc. It’s in my records now that I NEVER take that again.(to...
  16. J

    New member from uk!

    Hello Gail.. St Jude recipient here ..March 14, 2013. (Second OHS. The first was a year prior for an Aortic aneurysm. One year follow up showed another aneurysm close to the valve, so had that replaced) then I retired!!!
  17. J

    Is it rude?

    Not any ruder than me asking the surgeon , “Are you good?” before my first emergency ohs for an aortic aneurysm. Actually, I was ruder!
  18. J

    How did you discover your valve issue?

    I was totally asymptomatic until one day while I was on the phone with a customer. I felt such pressure in my neck and head. Ambulance was called, had all day tests at the ER..blood tests, stress test. My back was really killing me. The ER doc said they might send me home..I asked what he...
  19. J

    Is it Curtains for me?

    Wish you the best!
  20. J

    How get used to permanent metal click after aortic valve replacement

    After 8 years I do still hear my valve..sometimes it just POUNDS. I can always hear it in my ears…. I sleep with a pillow I can bunch so that my ear is not pressed against anything. it HAS gotten better over the years so just give it some time. And when it’s bad I remind myself that ticking is a...
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