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  1. C

    Mechanical valve ticking

    My daughter has one of these which I now keep close. https://purrble.com/
  2. C

    Mechanical Bentall Resources

    I had my mechanical Bentall last October and am about 7 months post. Like you, when I was preparing for my surgery, I felt a mix of anxiety and hope. But I can confidently say that going through with it was one of the best decisions I've ever made. The recovery process can be challenging, but...
  3. C

    How to Choose

    I was you just last October where at 48 it was time to decide. (I'm 49 now as well) I'm just going to lay out my personal thought pattern on this topic. The American College of Cardiology and the American Heart Association generally recommend mechanical valves for people under the age of 50 and...
  4. C

    Emergency Information on phone

    That’s a feature on iPhone. Not sure about android.
  5. C

    INR range question, 2.0-3.0 vs 2.5-3.5 for mechanical AVR?

    One of the best decisions I made post surgery was to take @pellicle up on this offer. His method makes me feel in control of my INR.
  6. C

    First Surgery Coming Up, And Afraid

    This is a good reminder that recovery is more than just your body, but also your relationship with how your body works. Having access to a multidisciplinary team that includes psychologists is important.
  7. C

    First Surgery Coming Up, And Afraid

    I’ll never get tired of reading your success story.
  8. C

    Awake and recovering

    I was once told “Your heart is gonna be like a 14 year old in puberty. All over the place for a while.” I’m 6 months post and it’s definitely more stable but some days feels different than others.
  9. C

    Navigating Recovery

    I found a pubmed article I think might be useful for you and other folks on the recovery journey Patient experiences of recovery after heart valve replacement “The study presents the main themes of network, body, recovery and reflection for ten patients after heart valve replacement. These...
  10. C

    New member - choosing a valve

    Nice to have you with us @Erwitchin. I don’t have much to add in terms of valve choice, that @Chuck C didn’t already say, but I understand agonizing over valve choice and can promise you are not alone. I will say this is the guideline that influenced me. Find the full article here. “the...
  11. C

    Long time lurker, first time poster

    I may not be the right person to ask since the on-x I got is the biggest one they make. What I will say is that post surgery I’m much more inclined to listen to my heart than I was pre surgery. And that alone makes me notice my heart beats mechanical click more. As I move further and further...
  12. C

    37 yr old with BAV and Severe AR

    I had a similar experience to @3mm. Fortunately all my medical records were in mychart and very easy to transfer.
  13. C

    37 yr old with BAV and Severe AR

    Hi, Sam. Welcome to the forums. I don’t have the specific experience you’re asking for, but I did use Cleveland clinics virtual second opinion service. Which does not require travel. A nurse will guide you through getting all your records and imaging transferred to Cleveland for the review...
  14. C

    My surgery was cancelled 3 days before I was to enter the hospital.

    Sorry you had to go through the false start. Bit of an emotional rollercoaster.
  15. C

    Surgery this Wednesday

    Hi Jeff! Greetings from Doha, Qatar. Your artwork is beautiful. See you on the other side.
  16. C

    Long time lurker, first time poster

    Been reading the forums since I was first diagnosed with BAV in 2013. Got out of the waiting room in late October 2023 and now me and my on-x valve decided it’s time to come out of the shadows and say how much I appreciate you all for being a part of this community. Shout out to @pellicle for...
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