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When I had my surgery, I clearly remember being so very grateful that I was the patient and not the caregiver! I was more concerned about my husband than I was about myself, and he never said that he was concerned about me, but I just know that it has got to be tough waiting around not knowing...

I had heart palpitations almost every night beginning in January of 2011 – didn’t think much about it since my 42 year old brother had just been killed in a bike accident six months prior so I was grieving and I thought I was stressed. A couple weeks later I blacked out while driving my car...

For three days right after surgery, food didn't taste good.....but then..... I ate.....and ate..... and ate!!! For whatever reason it was super hard for me to gain weight after surgery and so eating was a ton of fun....I think the surgery took its toll on me and I needed all the food and sleep I...

Thinking of you Catie - all the best!!!

WOW - Just saw your video, thanks so much for posting that, I love it! You are so strong and such a beautiful person, I can tell you live your life to the fullest. I don't post here as often as I'd like, but I'm really glad I caught your post and I'm really happy you joined and got connected to...

Congrats on a great echo report!!!! ​ I go in every year for an echo and every other year for a MRI with contrast dye....and I'm super comfortable with that...then again I have a tissue valve and the doctor's visits keep me humble and grounded to my reality. Failure is less of an option with a...

I'm in menopause - I'm 51 and I've been dealing with all sorts of menopausal related symptoms from dry everything to mood swings to insomnia due to hot flashes for almost a full year now - but I will not take HRT - I have a tissue valve and am not on any anticoagulant therapies - I have just...

I will second this plan - GREAT plan - worked for me too!

Hi HopefulHeart – I know how scary this is - but it sounds like you're doing a great job being proactive. This was my experience I’m 5’4 and 117lbs My aortic aneurysm was 5.2cm with BAV First cardiologist I saw told me he wouldn’t recommend anything for me for the next...

I agree with both of you - I think that if your heart and arteries are healthy then you don't have heart disease. I don't have heart disease, I have a birth defect which required surgery to fix. So unless I start having symptoms of heart disease I'll continue to leave the heart disease boxes...

This is great! My first day home after surgery I woke up in the middle of the night and thought I heard a comet hitting the Earth…......I swore it was a comet…......and it was going to kill us all –HAHAHA!!! Then I thought – “oh great, I survived open heart...

Time to come out of the shadows….sounds like a good place for me to jump in – I’ve been a member here for several years but I don’t post much, however seeing that your situation seems to be similar to mine I’ll share my experiences – I found out about my bicuspid...

I get these - zig/zaging flashing lights, starting with a blind spot in the center of my vision, eventually dispersing out of my visual field after 20-30 minutes and no headache.....started in my early 30's - freaked me out the first couple times - thought I was going blind!!!! Mine were worse...

Congrats!!! That's great news!

Also thinking of you - I also had an aneurysm - mine was 5.2cm when detected - yup very scary. So glad you're having your surgery - I too hope all went well.

I just went in for my yearly echo last week and got talking to the doc....I was surprised to hear her say that they are seeing more and more tissue valves being put into 'younger' people - I'm also 50 and had my surgery at 46 - now that's young I know, but I went tissue. I however didn't really...

Just checking in - I had my OHS about 4 years ago to replace my bicuspid and repair my ascending aorta - I posted here on occasion after that, but I haven't posted in about a year - wow how time flies!!!! I'm doing very well, so nothing special to report - I did travel to Iceland last June where...

Best of everything Dean! That's the valve I have. Thinking about you today and wishing you a good recovery. Rachel

Hi Carla, Sorry to hear about your dad's complications and your stenosis. My murmur was not detected until I was 45 years old - I only went to the doctor because I almost passed out while driving my car....only to be given an EKG (which was normal) So its been my understanding that an EKG is...

HAHA Well.....I've been a mid-distance runner (half marathons) for over 20 years now and although I was cleared to run (and did in fact "run") at 12 weeks........ ain't no way I was gonna do a 5K in that amount of time!!!!!!! Not only did I need to get over some PTSD so to speak - but I was...