Thank You all so much for the info. I will just follow Ryan's lead, he is a very smart and I know when he is ready to talk he will let me know. I have a great family who offer alot of support but its nice to know I can talk to people whis are going thru the same thing. I will give all this info...
Hi everyone...I am the mom of a 13 year old boy with Bi-Cuspid Aortic Valve/Critical Aortic Stenosis/Pulmonary Hypertension. We have just learned that he is now at the point where he needs surgery. He had his valve ballooned at birth and until now has had no other surgerys or complications. We...