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kfay, Thank you... I did not even think about asking for a copy of his records.

ElectLive, Thank you for the information. In the first 6 months after he was diagnosed we had an echo ever 2 months and a MRI at the 6th month and another echo at a year to give use a base line to work with to see how fast it is growing bigger. He has to have an echo every year as well as a MRI...

Hi! My son is 2 months away from turning 14 yrs old. Last summer (2011) we took him to the dr because he fainted and a couple of times he was starting to get dizzy. He is a very health kid. He is hardly ever sick even if there is an illness going around school he very rarely gets it. The...