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mrfox, I am not sure where you have seen the 20 year claims. In the articles I have read even Dr. Svensson at Cleveland who is quite bullish on this valve says in no uncertain terms: “The results of open surgical AVR were uniformly excellent,” says Dr. Svensson, but he adds that longer...

MrFox...good luck to you with this decision and all I can offer is some data that will help you make a better decision, this is after all a very personal matter. The below is an important study which Stanford published late last year on this issue, I thought you might find this of interest...

Interesting piece on the continued use of bacteriophages. I am hopeful that in the coming years this will become more of a standard and as such can be used in cases of endocarditis that do not respond to antibiotics; It would be great to have this arrow in a quiver before going to surgical...

EasterRat I am curious as to why they are saying your repair would only last 5 to 7 years. A few fail early but the numbers are getting to be very good in many instances, Cleveland is now at 91% freedom from ReOp at ten years with a BAV and this number is steadily getting better as they gain...

mrfox, great to see that you are starting to look past the surgery. It might make sense to ask your surgeon about a repair, if it all a possibility in your circumstance. It means a second OHS but can also mean 10+ to 20+ years with your native valve. There has been tremendous progress with...

That is the spirit !!! It really bothers me when BAV is referred to as a disease, I see it as a condition which if need be can be treated with excellent success. When you think of all the people who have a bicuspid valve, you do not think of these people as being sick from some disease: Arnold...

MrFox good luck to you through your journey and it is great to see the support you are getting from this wonderful community. All heroes in my mind and an inspiration to us all. I thought you would enjoy this blog from a member here who is a firefighter in Colorado and recently had surgery...

Cleveland does a minimally invasive procedure to deal with the aorta with a repair of the valve. Other centers feel it is better to do a complete median sternotomy so as to generate better results with the procedure. Keep in mind that despite the name, which can be misleading, "minimally...

Lastly, here is a good story on the Head Coach of the Chicago Bulls who was born with a bicuspid valve and had an aneurysm operated in 2005 and then a follow up surgery to have his valve replaced in 2015. It is quite good except for the heavy marketing of the On-X valve. Chicago Bulls Coach...

It is more than normal to feel anxiety with this condition and it is important to find ways to work through this anxiety, whatever works best for you but it could be family, yoga, meditation, exercise or someone to talk to. And it is also helpful to understand that IF it comes to surgery the...

Great article / a good man and a tremendous ambassador to help educate people about BAV https://www.smh.com.au/sport/cycling/national-heart-foundation-ambassador-michael-rogers-bears-his-heart-20180203-h0t3zj.html Michael Rogers admits his congenital heart problem started to worry him in his...

This Trainer Was Warned His Heart Could ‘Explode’ If He Lifted Over 50 Pounds ​Find out how he stays fit—and inspires other guys to do the same https://www.menshealth.com/health/dan-geraci-and-bicuspid-aortic-valve-disease/slide/1 How the BAVD Diagnosis Can Be a Life-Changer The doctor who...

Some comments based on the extensive research I have done, although I am by NO means an expert and most certainly not a doctor. - the answer to your first series of question is essentially yes. BAV is both a condition of the valve and the aorta. Some people do not have an issue with their aorta...

Beautiful note, Congratulations !!!

A good article I thought many on this forum might enjoy... https://www.news4jax.com/health/live-healthy/local-man-runs-his-fastest-marathon-ever-after-risky-heart-surgery It's National Heart Awareness month. Doctors want to remind you why you should follow your doctor's orders. If one man...

Here is the data...actuarial life table https://www.ssa.gov/oact/STATS/table4c6.html At 81.5 a male has about a 7% probability of dying in a years time At 86.5 the probability is about 11% Agreed that in surgical valve replacement we have TODAY a fantastic option. No one is implying that OHS...

There is a great saying: "Things always take longer than we expect to happen but when they finally do happen, they happen faster than we ever expected possible." These are early days in TAVR and it will take much longer than many expect for the technology to be available to young/healthy...

I am not so sure, pick up basketball with a bicuspid valve can be detrimental to your career. After all Aaron Boone tried that and then lost his contract with the Yankees because of an injury to his knee ;-) In any case, you will read here and elsewhere regarding a lot of athletes (many elite)...

The only thing I might add is that it could make sense to consider simple lifestyle changes that may be of some help. There is a case to be made for staying healthy and active so as to keep your blood pressure low. And there is some evidence that vitamin K2 (more leafy greens) could be of help...

Jmprosser.lab it is difficult question to answer as this procedure is evolving as they gain more and more experience. And it will never be clear until you are closer to surgery and until they actually see your valve during the procedure. Svensson at Cleveland tends to say about 70% of...