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  1. Cyberian

    BAV, but it's not ?

    Surgeon's office called to schedule aorta repair in a few weeks. Not gonna happen until they can convince me that that's all it will take to end the symptoms. That appointment is next Wednesday. I forget where, but have seen reference to aorta or aortic root expansion causing a bicuspid valve...
  2. Cyberian

    BAV, but it's not ?

    Mayo has been mentioned a few times. Our clinic here is affiliated with them. Cardiac electrophysiologist hasn't been talked about yet that I recall, but we do have two I think and may be involved in the consulting and discussing that the surgeon is/has been doing. The symptoms all I've ever...
  3. Cyberian

    BAV, but it's not ?

    Symptoms identical from childhood to now, just quite a bit more pronounced in the last year. As exertion ramps up I get increasing burning pain, pounding heart beat, short of breath, nearly passing out. Normal activities like walking, even at a relatively brisk pace bring little or no symptoms...
  4. Cyberian

    BAV, but it's not ?

    I don't think that you misunderstood, you are correct that it should've been caught then. I guess what I'm trying to say is that I'm not sure that the valve(s) having a problem is the bicuspid. BAV is new to the family we think. Prolapse mitral valve is not. Heart murmur diagnosed as a child...
  5. Cyberian

    BAV, but it's not ?

    Cardiologist suspected a valvular issue from the start due to symptoms. Late triggering electrical issue has been mentioned and I could go along with that. Heart rate jumps very rapidly on exertion, slows when the hammering starts. Palpitations and irregular pulse post episode for lately...
  6. Cyberian

    BAV, but it's not ?

    Burning chest pain, hammering heart beat, can't catch my breath, nearly pass out- moderate to heavy exertion usually sets it off. It's been like this since childhood, markedly worsening in the last year so off to the clinic I go. Family physician doesn't like it one bit and refers to...
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