Search results

Thank you all for your support!! And I must say I'm very impressed with all this Italian! :) Al, to answer your question, my surgeon is still thinking valve sparing but no one is letting me get too optomistic. I guess my valve's in pretty bad shape, but they're not giving up hope until they're...

thought i'd add my two cents: positive thinking coming your way from yours truly :)

yikes! i can talk pretty big game, but when i heard today that i'll be going under the knife in two weeks, i got the wind knocked out of me. a little shaken up, but still thinking positive!! i will be having AV replacement surgery + ascending aorta aneurysm repair with Doctor Roberto Di...

I've always been a journal writer and in this waiting period when I can't sleep I write down everything that's running through my mind. Surprisingly sometimes I'll just write about surgery stuff only to go back to bed and have random thoughts run through my head, like shopping lists for the next...

Hello all!! Me again, crazy BAV girl with asc. aortic anny at 5cm on the list to have surgery in Italy!! (hence the "crazy" part :p). Thought I'd check in and give an update because around here, no news is NOT always good news. :o So, back in May when my cardio said it was "time" for surgery...

let's hope that bandaid's on there nice and tight as I'm kind of freaking out a bit more every day that I wait for this operation!! as far as my valve goes... it's debatable whether or not it can be repaired. even after the TEE, the surgeon didn't make any promises. he said that he could...

i hear you loud and clear adrienne!!! grr... frustrating. on top of the stress that waiting brings, i also have to stress about the fact that if something DOES happen in august (knock on wood that it doesn't) who the heck am i gonna end up with in the ER?? no no no... they need a new system...

well so much for being subtle, ross! no need to tell me what i already know and what i've been trying to stress to the surgeons here!!!! i want this surgery. now. but that doesn't mean i have a talented surgeon at my beck and call just because i've decided i'm ready. i'm on the list, and...

Hey all, random post by yours truly. I was diagnosed with BAV at age 5, suffered a bit of mild SOB every once in a while from 2006-2008 and in 2009 it became almost a daily occurance. I was then told in early May 2009 by my cardio that I'd be needing OHS soon and SOB increased and I also...

I've just taken my first 25mg dose this morning, could be why i'm draaaaaagging now. (or could have been the 6am wakeup call this morning?) :rolleyes: It's 7:30pm here and I'm just counting down the minutes until I get to go home and crawl into bed! thanks for all your replies. my gut is going...

:( setback today :( setback today So met with the surgeon in Bologna this morning. And he seemed every bit "the best" that his reputation implied. He boasts a personal 0,8% morbidity/mortality risk for this surgery which sure beats the 2-5% they told me elsewhere. This is the problem: as I...

?? I didn't gargle anything.... I was however hooked up on an iv for the first time ever. yikes

Hi everyone!! It's me again: BAV girl with ascending aortic aneurysm, looking at an OHS in Italy this summer. So I'll get you up to speed on where I'm at: Had a TEE last Tuesday (oh holy crap, it was awful... how am I gonna cope with the surgery if I thought THAT was bad?) I don't mean to...

I have been "air hungry" often lately. At first I thought it was a symptom of my BAV (could well be..?) but I wouldn't exactly call it shortness of breath. It's exactly how you described it. Almost like I can't satisfy my lungs with a nice deep breath and yawning is sometimes the only way to get...

I didn't get a physical either! I feel gipped! I've met with 3 surgeons so far. First was not the cheif of surgery. Had my parents and boyfriend cram into his tiny office and we kept him for over an hour. He did not seem rushed and answered all my questions, and my mom's questions, and my...

reading some of these emergency cases really makes me feel lucky i've got so much time to digest this all!! in fact, I've digested it so much that I want this thing scheduled NOW. TEE on Tuesday, then meeting with surgeon and hopefully setting the date. we'll see...

touche' "in there" was suppose to mean while he's operating, on OHS day... not during the TEE. i seem to be having little control over how all the different thoughts that are frantically bouncing around my brain come out and in what order. should go to a shrink while I'm at it with all these...

ok, now I'm REALLY confused. Met with surgeon number 3 yesterday. And he seemed pretty set on "saving the valve!" (makes me think of "save the whales" campaign for some reason. ...I digress) He was adamently against the Ross procedure, even though he performs them regularly, mainly for kiddies...

Thanks Lotti, good call. In fact, my boyfriend and I discussed how "ironic" (read: horrifying) it would be if the only reason I opted for a tissue valve would be to have kids and then find out that both or either one of us is physically unable to have them. I admit that it is one of the primary...

Thanks for all your replies. Yes, I do have a BAV, diagnosed at age 5. At my last surgical consult I was about 80% convinced that I wanted a tissue valve with standard AVR surgery. Just as I was going to ask how to go about booking an OR, my surgeon said he wanted me to get more informed on the...