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  1. Nesphito

    Should I push to replace my mid ascending aorta?

    I just got off the phone with my surgeon. He thinks that we don’t need to replace my mid ascending aorta at this time. It measured at 4.0x3.8 cm. My thoughts were getting a mechanical valve so I wouldn’t have to get a surgery in the future. But this could mean I’ll have to get one in the future...
  2. Nesphito

    First Surgery Coming Up, And Afraid

    I’m 33 and I’m getting a mechanical valve. I was worried about living a shorter life, but I prefer to think about it as a life extending procedure. Like someone said before. If we were born 100 years ago we’d just die at our young age, but now we get to live a normal full life.
  3. Nesphito

    33yo with BAV and severe stenosis

    Just got my CT results back. My surgeon is away this week so I can’t discuss the findings with him. They found my mid ascending aorta has a diameter of 4.0x3.8 cm. I was hoping it would look normal since when they looked in 2020 everything was fine. Also they found a mass in my spleen that’s...
  4. Nesphito

    33yo with BAV and severe stenosis

    I’m not going to lie though. I’m freaking out that I have symptoms. I had a small panic attack last night. I just tell myself that if my doctor was worried about it he’d have me in surgery right now. All my preop appointments will be done on the 20th
  5. Nesphito

    33yo with BAV and severe stenosis

    I actually thought I didn’t have symptoms and that’s what I told my doctor at first. But I get more tired walking up stairs than usual. I wouldn’t have noticed if I didn’t take the hospital stairs. I thought at the time it was because I was slacking on cardio. I also have a pinpoint dull chest...
  6. Nesphito

    33yo with BAV and severe stenosis

    Here’s a small update: Met with the surgeon today. He suggest getting surgery in the next few weeks. I was going to talk with multiple surgeons, but because of my slight symptoms I feel the best option is to get the surgery asap. My doctor has pretty good numbers, he did 200 heart surgeries...
  7. Nesphito

    Has eBay stopped listing CoaguChek??

    Is coag-sense worth it? I’m getting surgery soon and wondering if I should buy this before everything gets removed.
  8. Nesphito

    Warfarin on a Vegan diet?

    Thanks for the quick replies! Based on my quick 20 minute research it seems like the fear was because turmeric has a chemical in it that has anticoagulant effects, but the amount is so small that you’d honestly probably never have an issue just because of diet.
  9. Nesphito

    Has eBay stopped listing CoaguChek??

    I’ve seen that brand mentioned her before. Are other testers not as good? Will the doctor give me a different one after surgery? Or is it just hard to get one in the US healthcare system?
  10. Nesphito

    Elective Surgery wait lists

    Maybe talk to other hospitals or try to move your date up? The hospital I’m debating on going through said depending how bad a case is they can get you into surgery in a week or two.
  11. Nesphito

    Warfarin on a Vegan diet?

    Good thing I don’t like grapefruit! Any papers I can read up on turmeric?
  12. Nesphito

    Warfarin on a Vegan diet?

    How much do these foods really mess with INR? Turmeric is in everything, I don’t eat a ton of leafy greens so that’s probably not an issue.
  13. Nesphito

    Good doctors in Utah? How to best choose a surgeon/hospital?

    I’ve considered Mayo Clinic. I think unfortunately I’m stuck in state because my insurance will only cover in state. There is 1 doctor in Vegas that takes my insurance, but the rest are in Utah
  14. Nesphito

    Good doctors in Utah? How to best choose a surgeon/hospital?

    I’m actually near the Ogden area! My uncle who’s a doctor recommended me a surgeon there. I’m finding it difficult to know what to look for when choosing a surgeon.
  15. Nesphito

    Good doctors in Utah? How to best choose a surgeon/hospital?

    I found the hospital ranking site. One of our hospitals is top ranked in the entire country, but poorly ranked for valve replacement surgery. Everything else here is related average or below average. Makes me wonder if I should leave the state. I’ll take your advice and call my insurance though.
  16. Nesphito

    Good doctors in Utah? How to best choose a surgeon/hospital?

    I found out earlier this week that I’m gonna need a BAV replacement. I’m 33 and the rest of my heart looks healthy. I’m thinking about choosing a mechanical valve. With that being said I have no idea on how to choose a surgeon. Does it really matter? Should I just see the one my cardiologist...
  17. Nesphito

    33yo with BAV and severe stenosis

    I might be mixing up stats. Because my doctor wanted me to be pretty conservative with weightlifting. Is that because I already have stenosis? Where as with a valve you wouldn’t have that issue?
  18. Nesphito

    33yo with BAV and severe stenosis

    Thank you for the great response! I think I’ll probably go with a mechanical valve. I saw these videos in another thread you posted in and they’ve been very helpful in helping me make my decision
  19. Nesphito

    28 yrs old with BAV & Severe AR

    Nice to see someone closer to my age. I feel Ike every time I’m at the cardiologist it’s full of older people. I think you and a few people in this thread convinced me to look into mechanical valves more. I was worried about longevity as well as using blood thinners. Good luck with your...
  20. Nesphito

    33yo with BAV and severe stenosis

    Hey everyone! I’ve been lurking here for years, but I just found out I’m gonna need surgery soon. Pretty upset it wasn’t 5-10 years later, but what can you do? I meet with my cardiologist next week. I’m kind of debating what surgery I want to go with. Not sure how soon they want me to get...
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