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  1. K

    Dental Work and Artificial Tissue Aortic Valve

    My daughter has had traditional metal braces twice with a mechanical mitral valve and wears a nightly retainer. It was never suggested that she take any antibiotics during any of her orthodontic treatment.
  2. K

    X

    I'm mom to a sixteen year old daughter who received a mechanical mitral valve when she was nine. I think parents of children receiving mechanical valves are in a different position than adult valve recipients when it comes to making decisions about what constitutes acceptable/unacceptable risks...
  3. K

    Age of Mechanical Valves

    My daughter got a 25mm On-X mitral valve when she was 9 years old and 65 pounds. This was her third OHS. We were thrilled that her surgeon could put an adult-sized valve in her small body and are hopeful it might last a lifetime. She'd already had surgery for a complete AV canal defect when she...
  4. K

    Issue with bruising after using electric neck massager

    I gave a deep tissue electric neck and back massager to my 29 year old daughter for Christmas. I had noticed when I purchased the gift that one of the reviewers mentioned that her cardiologist had told her to stop using the massager immediately after she noticed the directions suggested those...
  5. K

    Revisiting Post of Home Monitoring

    I have been testing my daughter at home weekly for the past 6 1/2 years since she got an On-X mitral valve when she was 9 years old. Originally, I rented the Coaguchek through a company and also got the strips from them. However, I quickly realized this was a money maker for them, and the...
  6. K

    Question on Brown Urine and Taking Today's Warfarin Dose

    My daughter developed coffee-colored urine after a mitral valve repair when she was six years old due to hemolytic anemia which was caused by her surgery. She literally went through a daily cycle where she would wake up with coffee or cola-colored urine which would then eventually turn orange in...
  7. K

    Dental work and prophylaxis question

    My daughter, who received a mechanical mitral valve at 9 years of age, has had braces twice since her replacement. With all that orthodontic work, she has never taken antibiotics prior to the treatments. She does take 2000mg of amoxycillin 1 hour prior to each dental cleaning, but her...
  8. K

    MItral Valve Repair

    My 15 year old daughter has had three open-hearts surgeries (3 weeks, 6 years and 9 years). When she was six years old, she had a repair to correct a severely leaking mitral valve, and the surgeon told us the same thing--that she would have much more energy after the surgery and would seem like...
  9. K

    Questions about old Roche Coaguchek verses new Roche Coagucheck monitor

    I started getting error codes regularly on my daughter's meter after a few years of use. Even though the meter showed the batteries as being fully charged, I decided to change them anyway to see if that would solve the issue. That did, indeed, completely solve the problem.
  10. K

    Gastritis and daily aspirin regimen...

    Back in 2011 my daugher, who was nine years old at the time, got a mechanical mitral valve. Post-surgery, her cardiologist put her on a daily aspirin in addition to the warfarin. A year later she started having terrible stomach issues, which got so bad that she was frequently vomiting throughout...
  11. K

    30 years - 10/25/89

    My daughter was able to get an adult-sized mechanical mitral valve (On-X 25 mm) when she was ten years old and has been on warfarin since. And she was not a big girl; I think her weight was somewhere between 60-70 pounds.
  12. K

    Mitral valve RE-repair questions

    Iggy, My daughter was born in 2004 with a complete atrioventricular canal defect. One of the defects was that she had one common valve where she should have had two, so when she was three weeks old, the surgeon had to create a mitral valve for her. At six years of age she had to have a repair of...
  13. K

    Need an MRI

    My daughter has an On-X mitral valve and was told there was no problem with an MRI due to the valve. However, she has abandoned pacemaker wires/leads from that surgery (they originally thought she would need a pacemaker, but she achieved sinus rhythm on her own two days post-surgery), and was...
  14. K

    Still bridging with lovenox 11 days after procedure

    I resumed checking her INR on March 26. She was at 1.3 and her dose that day was 3.5 mg (ignore the mistaken second entry for 3/26). Note that after entering all the above results initially, I edited my post later this morning after I checked her INR today, and it was 2.7! Quite an increase...
  15. K

    Still bridging with lovenox 11 days after procedure

    She had her endoscopy on March 23. I resumed warfarin the next day as well as bridging with lovenox. Below are her dosage and INR each day beginning with March 26. I realized in looking back that I didn't check her INR on March 24 or 25 because I knew she wouldn't be anywhere near in range...
  16. K

    Still bridging with lovenox 11 days after procedure

    I've been testing her every morning using the Coaguchek XS. The first five days after the endoscopy she was taking her usual dose (3 mg or 3.5 mg, depending on the day of the week). This past Tuesday the cardiologist upped her dose to 5 mg. As I mentioned in my original post, three days after...
  17. K

    Still bridging with lovenox 11 days after procedure

    My 11 year old had an upper endoscopy 11 days ago and, per pediatric guidelines at the hospital, was required to bridge with lovenox. My concern is that it's now 11 days after the procedure, and we're still bridging with lovenox because her INR is only 1.9. We can't figure out why it's taking...
  18. K

    Dental Extractions

    Thanks for the replies. Did any of you go off warfarin and go on lovenox prior to your extractions? I know there is debate about whether that is necessary or not.
  19. K

    Third OHS

    My daughter had her third OHS when she was 10 to replace her mitral valve (She got an On-x valve). Two weeks after her surgery she was ecstatically running down our driveway (no small feat because it's 1/10 mile long). Prior to this surgery, she could not run any distance without getting...
  20. K

    Dental Extractions

    My 11-year old daughter has an On-X mitral valve replacment. Due to the fact that (as her brothers say) her mouth is an orthodontic nightmare, she is due to have six teeth extracted in a few months to prepare for future orthodontic treatment. I am feeling a great deal of fear and trepidation...
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