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Once we get a "base" dose for where they want his INR to be, I will ask for a range of tablet concentrations. I'm sure they will look at me like I have two heads as why in the world would I question their expertise and not just call with an INR and wait for an updated dose, but I will try to...

Curious, as I begin to start ACT on Mathias, when you take partial doses, are you splitting the pills in half, quarters, etc? Someone suggested lowering by one mg, not sure how to split a 5mg tab into 5 pieces. Or over the years have you acquired different dose tablets so you can make what dose...

Thank you for asking! He is doing remarkably well so far, thankfully. His PT consult and check list is complete, as is his OT and RT. He has everything on track to come home tonight or tomorrow, which is days ahead of his last OHS. He is being very good about walking the floor and all of his...

We were told the aneurysm may need surgical intervention closer to the 4.5-5cm mark, but it was dependent on patient size and stature. When Mathias got his repaired, it was 5.2 cm and he could feel the aneurysm in his throat after exerting himself, caffeine consumption, and hard alcohol...

Good luck, John! As a recent member myself (fiance just had his second OHS/AVR yesterday...all in the span of 8 months), this forum has been a godsend. The people are so forthcoming with gritty recovery details and answer questions a lot of medical professionals dont know the answers to because...

Well, folks. 8 hours later we are out of surgery and it was a total success. Of course we aren't out of the woods yet, but I am so grateful it worked out and we can start recovery. Thank you to everyone that has sent positive thoughts and answered my questions...I appreciate you all more than...

It's very possible that's what they meant. I unfortunately was not at the pre OP appointment this time, I couldn't take the time off work so Mathias went with his mom. It just made him nervous that maybe he should be expecting more than what surgeons and doctors have been telling him, and since...

I have an additional question...at the Pre op this time around, the hospital staff had recommended and started planning for a home nurse for the days following discharge. Is this normal? After the last surgery, Mathias walked out of the hospital a week after OHS, we went back to our hotel for...

Thank you very much. Sorry to be so mushy about Mathias, I get that way sometimes!!

I have also learned a BAV predisposes you to an aneurysm by all of the surgeons and cardiologists we've seen (at the last "experimental" type surgery in June, he had 23 doctors present! :eek:), none of which brought up anything about a connective tissue disorder. In any case, I wish you all of...

I appreciate that. I am so lucky to have found a best friend to journey life with. He is amazing and teaches me things everyday. I'm hoping for many, many happy years together!

Thank you! I'm glad to hear your second operation went well. We were certainly not expecting another sternotomy so soon, but relieved to know others have been through the same thing and have lived to see it as part of their distant past. The heart is incredible...complex and strong, yet delicate...

We have looked into this and it's unlikely that a connective tissue disorder is the case. His orthopedic surgeries were injury related...football almost took both of his legs as a pre-teen in high impact tackles, the arch of his foot collapsed and needed reconstruction, and he smashed some hand...

Thank you very much. Having read some of your replies in other threads, I am grateful that you have taken the time to reply to mine. You hold a wealth of knowledge that I am happy to have in my corner, however I do not envy the curve balls that have given you the knowledge on this particular...

I'm glad to hear you've had 2 successful surgeries and recoveries! We are hoping for the same outcome. I'm also happy to hear not to be too concerned with anticoagulant therapy. As a 25 year old, it was something that definitely scared Mathias, but we are coming around to know he can lead a...

Not sure if you are addressing me still, but no we did not pick the surgeon. Mathias' employer footed the bill for the whole trip--surgery, pre OP and post OP testing, hotel, flights, food...the whole shebang. Svensson was assigned to the case.

Per 5 other cardiac surgeons and 3 cardiologists, it was not surgeon error. Simply anatomy not cooperating. We investigated the situation as thoroughly as we could have. It just wasnt in the cards for this one to work.

Thank you very much for your kind and encouraging words. We are looking forward to moving past this whole thing and moving on with our lives. We just want to plan a vacation without scheduling around appointments.

Yes Yes, the leak is quite signifigant... moreso than the regurgitation pre OP. The ejection fraction is much worse now. I can't place blame on anyone, the cards we were dealt just aren't easy ones to play.

Thank you for your words of encouragement! We are not travelling back to Cleveland this go round, not because we were unhappy with their care or are bitter about the outcome at all...that hospital and its staff are amazing and the quality of care was top notch. Being away from home was too hard...