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I've been reading many articles lately on my symptoms. Everything suggests that I may have a clot on my valve. I suspect it's been there for several years and has finally gotten large enough that it's causing problems. Pellicle pointed me in the direction of tpa treatment for clots. This morning...

Very interesting. Going to read this all after Thanksgiving travels. Dealing with a similar issue with my 24 year old St. Judes mitral valve. After 24 years, I am having symptoms of a failing valve. Doctors want to replace it instead of looking into options of saving it. They do not know why it...

NewValveNY, thank you for sharing that article. I am dealing with a similar issue. i have a 24 year old St. Judes mechanical valve. I have moderate mitral stenosis and am having congestive heart failure symptoms. I would personally love for the doctors to do some tests to see what is causing the...

pellicle, Does tpa work for an older clot or only a new clot? The kids have not allowed me the time to read everything yet. Thanks

My last surgery was 24 years ago at the age of 13. I remember going back to school in maybe 2 to 2 1/2 weeks. I remember still having the steri-strips on and feeling pretty good. I don't remember when I felt "normal," but I was young and recovered quickly. My 82 year old grandma started feeling...

Thanks pellicle. I will read up on all of this in the morning.

Congratulations Superman, and hope you have a very happy Birthday!

Pellicle, if you were asking about the "last" operation, it was done to put an adult sized valve in. I was showing heart failure symptoms then too. They were going to wait until the following summer, but my symptoms got too bad, so they did it over Christmas break from school. I had been...

Thanks pellicle. I read your story of your surgery and infection awhile back. Very interesting. My last one was when I was 13, so like you, I didn't think too much about it. I'm 37 now. They also told me they plan to have me up walking that day or the following morning. I do not remember being...

I would love to hear stories of people's third open heart surgeries. I know there are quite a few of you out there. I will be having my third this year. Still waiting on a date. We are guessing it will be early December. I would love to hear how your third OHS went. Thanks

dornole, they did not give me a timeline. They originally said surgery would probably be 1st or 2nd week of December..possibly even the week after Thanksgiving. When my nurse called back yesterday, she said it probably just hasn't been long enough for them to get any appointments scheduled...

I haven't heard anything since meeting with the surgeon on Thursday. It's now the following Wednesday. The surgeon did say that they might want to put me on potassium if they keep me on 40mg of Lasix for awhile. Thank you for the advice on that. I think I will call them today to ask about...

Thinking of you pellicle. Wishing you good news with your additional scan. This wasn't the best news outcome, but this is just another small bump in the road for you. I pray it will be a blessing for you. Like you said, you could be blessed with early detection due to this. Keep up the great...

I still test in the lab. I own a home tester, but stopped using it a few years ago. I may go back to it someday.

Thanks for all of the advice. And, Steve, thanks for your info about pacemakers. I learned about the possibility on Friday, and it was a lot to process. I've had a few days to think about it, and I think a pacemaker might be a blessing for me. For at least the last 10 years, my heart has thrown...

Here is an update on my upcoming surgery. I've been pushing for surgery for several months, but the Dr. was not on board. My symptoms have been increasing rather quickly. I've been swollen with fluid for 2 months. I think I have had fluid for much longer, but it was finally at the point of being...

Lisa2, did you have your surgery last month? Hope it went great. We're you having an artificial valve replaced? I hope you are recovering quickly.

Thanks for all the info. I gave my update on another post, but here it is again. I called the cardiologist's office last week and was more aggressive. I basically told them something had to get done or I was going elsewhere, because my heart is saying it is time. I spoke to my old nurse, and she...

Thanks for the update Mick! Glad you are doing well. Glad they were able to repair your valve. That's great news!

Steve, I agree with everything you said in your post. I also have good news. On Wednesday, I got my old nurse involved. Cindy was my nurse from the age of 2 to 35. Two years ago at age 35, they changed me to a different doctor, the one I'm not thrilled with, so she is no longer my nurse...