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  1. Bryan B

    Athlete with Multiple Heart Surgeries at your disposal...

    Sorry not Limbtwister but I can give you both an answer since I had valve replacement in 2004 (ross procedure) and valve, root, ascending aorta replacement in 2011. I found that the recovery was easier the 2nd time from a mental and emotional perspective. The actual physical recovery/time was...
  2. Bryan B

    Why is it bad to be in flutter?

    Thanks for the explanation Laurie. I knew that fib/flutter could cause clots but I didn't know the details of why and exactly where in the atrium.
  3. Bryan B

    Main problem now - severe insomnia

    Tovah, At the time I wasn't seeing a cardiologist. I had moved from NC to TN for a job and I neglected to find a cardiologist for regular followups because I was down to visits every 3 years (my condition was very stable). It was my general practitioner who was treating me and he did do white...
  4. Bryan B

    Why is it bad to be in flutter?

    I wasn't on warfarin for my valve but i was on it when they found a clot in my atrium (not sure which side) due to the a-flutter. I had to be on warfarin for 6 weeks before my ablation and my range was 2.5-3.0. They brought me down to 2.0 to do the ablation and I had no bleeding issues. After...
  5. Bryan B

    Main problem now - severe insomnia

    Only 5% or less (I read 2-6%) of all infective endocarditis cases are related to fungal infections so the odds are low. BUT...of those 5% of cases approximately 50% occur in people with prosthetic valves. Like I said earlier there are many different things that could be causing his symptoms. I...
  6. Bryan B

    Still hear whooshing...

    I'm in the group that still has a slight murmur after surgery. You should have left that stethoscope alone lol. That's like searching for symptoms on the internet...whatever symptom you may be having you can always find some really bad illness tied to it if you look hard enough. Since you are...
  7. Bryan B

    Toprol XL (Metaprolol) Withdrawal

    I started having panic attacks about 15 years ago (I was going through a personal crisis at the time) and my doctor put me on xanax and toprol xl. He said the toprol really helps with the physical symptoms of anxiety and I only took the xanax if I felt my anxiety was heading towards a panic...
  8. Bryan B

    2nd AVR with full root this time on May 7th

    I was like Laurie. I told people "the good news is that I know what to expect, the bad news is that I know what to expect". I was somewhat symptomatic before my first surgery but there was no rush to do the surgery (surgeon said within 6 months). Before the second surgery I had no symptoms but...
  9. Bryan B

    Main problem now - severe insomnia

    Tovah, I would call his cardiologist and get him in to see him asap. He needs to know about the symptoms he is having, especially if they have just recently started occurring. Make sure you tell the cardiologist about all of the symptoms including flu-like symptoms and cold sweats. They might...
  10. Bryan B

    Why is it bad to be in flutter?

    This pretty much covers it. I was in constant a-flutter the summer before my last surgery. They were going to do a cardioversion on me but found a blood clot in my atrium (don't remember which side) and had to abort. I was put on coumadin, a high dose of metoprolol and a high dose of enalapril...
  11. Bryan B

    MANY Random Questions for AV'ers... Sorry :-/

    You beat me to it Bill. At least we used different colors. :) Looks like we were pretty much on the same page. As far as the lifting restrictions I guess that depends on what type of surgery. Since I had my aortic root / ascending aorta replaced I have permanent lifting restrictions although...
  12. Bryan B

    MANY Random Questions for AV'ers... Sorry :-/

    I'll give it a go as well but remember I am not an expert, just sharing my experince.
  13. Bryan B

    Which test is most crucial to decide about AVR ?

    ElectLive, Yes for yearly monitoring I will be having a cardiac MRI with contrast and only get a CT scan "as needed". My surgeon is one of the rare ones that follow his patients for life and I will see him annually for a MRI and checkup. I also see my cardiologist annually for an echo and...
  14. Bryan B

    After valve repair or replacement surgery do you still need to be on beta blockers

    Hi AJC62, As you can tell by the others that have posted it is fairly common, but everyone handles this situation differently. It does sound he may be putting off the inevitable, which in turn may be why he is avoiding those who are closest to him. To answer your other question yes I am still...
  15. Bryan B

    After valve repair or replacement surgery do you still need to be on beta blockers

    This is fairly common after being diagnosed. A lot of times we are having symptoms we really don't notice until after we are diagnosed, I felt the same way. Also it's hard for "us" to talk to others who don't understand what we are going through. You are doing good to come to this board and gain...
  16. Bryan B

    24 year old with BAV

    cewilk, I had a Ross Procedure in 2004. Unfortunately I developed a dilation of my aortic root and ascending aorta after a few years and it reached the point that I needed surgery again to replace my aortic root and ascending aorta. The dilation also caused my aortic valve to leak and it needed...
  17. Bryan B

    After valve repair or replacement surgery do you still need to be on beta blockers

    Hi AJC62, In 2004 I had my aortic valve replaced using a technique called a Ross Procedure. In 2011 I had my aortic valve, aortic root and ascending aorta replaced. My dilated aortic root and ascending aorta damaged my replaced aortic valve, that is why it had to be replaced again. Having my...
  18. Bryan B

    Which test is most crucial to decide about AVR ?

    plsflgood my first thought after reading your post was...ALL OF THE ABOVE. I think a good cardiologist and/or surgeon will take all things into consideration. Having said that I think the echo is most used to follow the progress of valve deterioration over time. If you have aortic disease (root...
  19. Bryan B

    After valve repair or replacement surgery do you still need to be on beta blockers

    AJC62, Your boyfriend will be in good hands if he has his surgery at Duke. I had both of my surgeries at Duke and they are top notch. They are ranked the 7th best heart hospital in the country. Mass General is ranked 5th and Brigham & Women's is ranked 8th, so I don't think he can go wrong...
  20. Bryan B

    Doctor said they never seen this before....

    I think it is unanimous, get a second opinion. I find it highly unusual that a moderately leaking aortic valve could destroy the mitral valve in one year. I'm not a doctor so this is just my non expert opinion. It just seems that if you were getting regular echos they would have noticed a...
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