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Hello, I think that a lot of cardiologist and surgeon judgement goes into their recommendation, but in some countries doctors about a bit more frank. My cardiologist, who is the former President of the British Cardiac society and the most well known promoter of TAVI (he worked on famous...

Here is the study where the 20% stroke figure comes from: https://pubmed.ncbi.nlm.nih.gov/32090315/

I will try to explain in Laymans terms. Did you know that even for a normal person, the chance of getting a stroke after age 50 is roughly 20%-25%? So long you manage your INR well (meaning that you stay within the range required for your valve), the chance of somebody with a mechanical valve...

My advice: 1) Your docs are the pros follow their advice in and out of hospital 2) Take your recovery one step at a time 3) The drugs that you will get in hospital can take a very long time to leave your system. You will hopefully get better eventually. 4) Dont stress about things that you...

@pellicle Thanks for sharing this. This comment clearly shows Dr. Lapeyre clearly cares about heart valve patients and I will keep my fingers crossed for his success.

We will not know if this works for another 3-5 years or so, but if it does, it will obviously be a total game changer. From a commercial perspective, this product would probably quickly become the dominant product in the market if it does work. I wish them the very best of luck. This invention...

https://www.novostia.com/sites/default/files/inline-files/Novostia%20-%20Press%20Release%20-%20September%202023.pdf According to the release, they will implant the first trileaflet mechanical valve, which should in theory and animal models not require warfarin, in a human in December 2023...

My understanding is that you need to take these BTK-inhibitors for a least a year and in some cases lifelong. So I am not sure if you can do Heparin replacement for that long and if/or Heparin has any interactions with these inhibitors (I honestly dont know). This recent article discusses these...

Hi Rob, the only issue I see for you is the following: There now new treatments for Leukemia, such as BTK inhibtors which are quickly becoming the standard for treating Lymphoma and CLL because they have less side effects and more effective than Chemo. Now, you cannot take these inhibitors...

Hi Chuck, I feel sorry for him. I am so glad that I didnt choose to have a Ross procedure. This sounds terrible for him. I wonder if we can make this post sticky. Not to criticise the Ross but highlight the risks that can happen even for someone who is really wealthy and has access to the best...

Hi Zara, I can only share my story: I had first AVR with tissue valve at 34. Then 8 years later (last may), I had a mechanical put in. I think that you need to be aware that there some side effects and risks of repeated surgeries that are not mortality, so are not necessarily played up by the...

I had a similar experience, but not as bad. My INR fell to 1.8 after 10 weeks out of hospital. and the clinic was happy with increasing my dose by 1-2 mg a week (I was on 7mg a day at the time, so 2 mg a week is a minor adjustment). Their approach kept me at 1.8 for weeks which I wasnt happy...

Hello, a lot of people on the forum who are about to undergo surgery always ask about rate of complications, etc. The US STS just came up with a new risk calculator: https://acsdriskcalc.research.sts.org/ You can play with it yourself to get your numbers. Of course this should never be...

Hi Kaitlyn, I have my On-X for just over a year now and I hear it most of the time. Sometimes it can get loud, but I got used to it. It hasnt disrupted my sleep thus far. A Germany company called Cardiosignal actually delevoped a Thrombocheck device, which is a device to check if the valve is...

Hi Raoul, I am so very sorry to hear this. Unfortunately endocarditis is a serious, but small risk, in any heart valve operation. The second operation sounds incredibly challenging and your surgeon must be excellent to have performed it successfully. I will keep my fingers crossed for you so...

Hi Maggie, I think those members who had their tissue valves replaced with mechanical ones are those people in whom tissue valves wore out and they didnt want anymore surgeries. At 66 you are just in the age group where a tissue valve is recommended. Nevertheless, depending on your life...

Depending on how we count heart surgeries you could say he has had 4: 1. Ross Procedure in 1997 at 47 2. Reop for failed autograft two days later (We dont know if the fixed the autograft or needed to replace) 3. Attempted transcather pulmonary valve replacement, which converted to OHS in...

With these results you could still be a long time away from surgery. Having said that, any large straining exercise (heavy weight lifting) may strain your Aorta further. I.e. that is how you may eventually get an Aneurysm. I think it is probably worthwhile to discuss your exercise plans with...

Hi Matt, Great to hear you are on the other side now and well enough to post. sorry about your minor complications. These can happen with any OHS, but clearly risk is higher if it is the third. Sometimes these things sort themselves out over time. We just need to be patient. The hardest bit is...

There is actually a randomised trial (LIMIT trial): Low INR to Minimize Bleeding With Mechanical Valves Trial - Full Text View - ClinicalTrials.gov going on right now, with 2000+ participants that randomises people between 2-3 and 1.5-2.5 INR. Given the large number of participants, this trial...