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And Schwarzeneggers story with his heart issues isnt over yet unfortunately. He Just got a pace maker. Now, he would have probably had three aortic root replacements during his surgeries. One during the original Ross, then in another surgery the next day, then recently when they couldnt do TAVR...

I think given that a) your valve wasnt bicuspid - so your condition is not congenital (meaning you were not born with it) b) Your physicals never detected a heart murmur and you had them annually c) You got sick while on duty How can they disagree with the idea that this happened as part of...

Isnt one of the issues with stocking up though that warfarin tends to 'expire' after two years or so? I think the only way to prep for apocalypse is to yes have a stock one - two years ahead, but also learn how to make the stuff yourself...

I am really sorry to hear your story. I remember there was someone on this board, who had served, like you, and was still doing 100+ pushups in his 60s after his AVR. What I mean to say is that there are many people who are incredible atheletes, but can still have aortic valve issues. Arnold...

Hi @Buck83, sorry to hear about all your issues. Out of interest, what was your initial INR range on the ON-X?

On these survival claims, this is all based on observational studies. But only the healthiest and fittest patients are offered a Ross. These also tend to be patients thst have congenital heart disease, ie not due to lifestyle. to a degree, this patient selection aspect are why the ross results...

It could be the medication. When I was given Candesartan pre surgery to keep the pressure on my LV low, I also beagn to become light headed. But I was already out of breath after a 500 meter walk by then (I am normally fit). I think you need to change medical teams.

Great news on the TOE/TEE result. Nevertheless, I would advise you to get a second opinion. If you are getting light headed you are symptomatic. Bad valves dont only make you light headed. You could also get a TIA or stroke, which is a terrible experience. Is it possible that the...

There is more very important thing to do before you leave India: Get a letter from your surgeon saying that you are a high-risk patient when it comes to infection risk. It is international standard to give valve patients anti-biotics before any dental treatment, including cleaning, to prevent...

@Seaton great news on the Lp(a). I think that this means your elevated aortic valve gradients are probably because you heart is really strong. That can cause the leaflets to wear out prematurely. I am sorry that your valve is wearing out prematurely, but I think it just means that your heart...

I think you should try to get a referral to a UK anti-coagulation clinic as soon as you get there. You will not be able to get warfarin prescribed without being at a clinic. Even having my surgery done in the UK, my private hospital was struggling to get me registered at my local NHS anti-coag...

I can hear my valve tick. It isnt a quite one. My kids can hear me tick when we play hide and seek. But I had two OHS now. I feel warfarin + ticking is a very good tradeoff for a high chance of no more surgeries. Although I did well both times, I did have brain fog for some time after. I would...

I know it is hard, but putting in the work now will pay off long-term. We are all in pain (and in my case feeling quite high) when we get out of surgery. But getting up and moving around is great for at least two reasons: 1) You start getting your strength back 2) Your lower your chance of...

Great news. I wish you a successful recovery.

@hevishot I can only say then that I was very unlucky. My resting heart rate being 60, the bio I had installed at age 33 only lasted 8 years. There was no calcification. The valve eventually ripped during exercise (worn out like an old leather wallet). I always have had a very healthy...

Best wishes.

I will add to @Chuck C point on SVD above. Mine started to leak a bit one year. Then 8 months later my heart started aching during exercise. Turns out that my valve had gone from small AR to very severe in 8 months. My LV was already in moderate dilation. The surgeon and the cardiologist were...

That pillbox was a game changer for me. Perhaps one of the best pieces of advice on this website. I good chunk of warfarin control is making sure to take it regularly.

i am sorry to hear that. I would have thought the inspiria would last longer much longer. I think your gradients are quite high. my onx is 5mg mean and between 8-10 mg peak depending on echo. I am very happy to hear that despite being so overburdened at the moment, the NHS is taking such good...

i hope that they figure out how to fix your mitral via the clips. otherwise the best solution may be a mechanical in the hands of a surgeon who is a reop specialist (those do exist). my reop surgeon had done 6th avr before without a problem and had outstanding mortality and morbidity rates on...