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  1. BionicBuddy

    Bicuspid Aortic Valve Stenosis & Exercise

    Again, thanks for the info ElectLive. I found your post very reassuring regarding the exercise tolerance testing. My husband and I are only recreational "athletes" and we only do it for fun and fitness. It was very surprising to read that snowboarding is classified as a IIIB activity, but...
  2. BionicBuddy

    Bicuspid Aortic Valve Stenosis & Exercise

    This thread is 7 years old. Does anyone know what that latest info regarding this topic is? I see many, many athletes who post on this forum and who were exercising right up until their AVR surgery. On this thread, it seems like short intensity burst type of activities like basketball...
  3. BionicBuddy

    TAVR vs AVR

    Thanks JeffM. Your information was also helpful. Yes it would be great to receive a re-op via TAVR some day. My husband hasn't had any surgery yet. I'm crossing my fingers that by the time surgery is recommended for him, that TAVR will be available, done with great efficacy and safety, and...
  4. BionicBuddy

    TAVR vs AVR

    Wow! Thanks so much for all of that info ElectLive. Very informative. It'll take me awhile to sort through all of the info on the excellent link you posted. At present, this forum for me is a lifeline to some semblance of my own sanity. :) (and I'm not even the person with the stenotic...
  5. BionicBuddy

    Surgeons

    Anyone with a positive and excellent experience with a skilled cardiovascular/cardio-thoracic surgeon in Vancouver?
  6. BionicBuddy

    TAVR vs AVR

    I've read as much I could regarding percutaneous TAVIs. I was hoping someone could help me answer these questions that I had: 1. In the Phase 3 Partner II trial, BAV patients were excluded and only symptomatic patients were included. Europe appears to be doing many of these procedures, more...
  7. BionicBuddy

    Misdiagnosis

    Hi Matbunch. I'm very happy to hear your good news! A miracle? Very likely not. I'm not saying that miracles do not exist in medicine, they do. But I'd bet yours was a misdiagnosis. I have the exact opposite experience. I've heard a loud murmur in my husband's chest since we started going...
  8. BionicBuddy

    Newbie here; I need advice... would I be out of line in asking for a second opinion?

    Thanks epstns. That was helpful. My husband's AVA is now 0.9 cm2. It was done with a portable echo and a newbie tech. We're going to get another echo redone in the usual way a few months from now. My husband's exercise tolerance had been fabulous and he even said that he was feeling...
  9. BionicBuddy

    How many BAVs have sleep-related laryngospam? how many have GERD?

    Hi Eva, No, it's not sleep apnea. CPAP would do nothing for this problem. The next step would be a PPI. I believe he wouldn't need a PPI if his anxiety regarding his heart health wasn't so high at the moment. It's nice reading how so many people on this site have had OHS and have done...
  10. BionicBuddy

    How many BAVs have sleep-related laryngospam? how many have GERD?

    Hello, I'm pretty new here. I've been reading for a few weeks now. This site is a gold mine of info! I was wondering if anyone had the following concurrent symptoms with your valvular issues? My husband has BAV with asymptomatic moderate/severe aortic stenosis. For years now, he has had...
  11. BionicBuddy

    Newbie here; I need advice... would I be out of line in asking for a second opinion?

    Hi, I don't want to hijack this thread either, but I am really interested in knowing how you knew it was time to operate. Would it be too forward of me to ask you, what your measurements were at that time? AVA? mean pressure gradient? aortic jet velocity? (I'm assuming you had AS?)
  12. BionicBuddy

    How many BAVs have migraine aura?

    My husband has a BAV with moderate/severe aortic stenosis. He is 53 now, and around age 30, he started to get migraines (mostly ocular), where the ocular symptoms last only less than 1 minute, sometimes followed by headache and sometimes not. The frequency is variable: sometimes not for...
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